Originally Posted by velvet rose
Do people with lupus ever start to feel better and normal again? Do the flares eventually stop coming? Does medication help people to feel the way they were before they had lupus?
some days, in some ways and then sometimes not!
sounds cryptic - sorry! (sly is the wolf that we live with) .............. but yes and no and at different times.
personally, i've had normal, i've had sick but i've not had life threatning! so i am blessed and my world has not ended yet!
but i seen mentioned ......... you should pretty much know what you are in for regarding organ involvement within 5 years of being dx'ed
for instance lupus nephritis = kidneys, CNS = brain etc, some are potentially life threatning,
but i personally think if you look after your organs you give yourself the best chance!
doctors are there to help us and keep us safe best they can! but they are human as well.
sorry the next part may seem stupid but if it bothers anyone i can edit it .........
when you buy a house you go look around, there is a lot to consider (schools, public transport, motorway access etc etc) so when you go to a doctor so there is much that is to be considered, sometimes the first one we see is not the perfect doc, if our issues change and the need for a different specialist arises, the team will change and the Rx and all we must do is KEEP BREATHING!