Re: how do you tell u have lupus please help and read my story
Hi, amg80, and welcome! I'm sorry you're feeling low. There are "sticky posts" = permanent info, at the top of the thread list, that will help you understand the symptoms of lupus are & how it's diagnosed. Dx is tricky, because the criteria include standard bloodwork, specialty bloodwork, constitutional symptoms, skin rashes, etc.---it's a real grab bag, for which patients meet some (not all).
To be Dx'ed with systemic lupus, patients typically must meet 4 or more of the criteria, which may happen over time, not all at once. The dr. who said five years ago that you were "one point away" may have been alluding to that. (But he could have explained much better!)
When you say "blood clotting syndrome that's associated with lupus", do you mean antiphospholipid syndrome? There's a "sticky" on that, too. I think it's seen both with lupus and "standalone". How was your clotting problem diagnosed, by special blood tests? Do you require medication for it?
Is your dr. a GP, a rheumatologist, or some other kind of specialist? Has he discussed the lupus criteria checklist items with you? Has he run the specialty bloodwork generally done when lupus is a possibility? Does he do repeat "standard" bloodwork? I'll stop here, to give you a chance to post more. I hope others chip in soon, too. Meanwhile, sending you best wishes! Please hang in there, OK? Sincerely, Vee