It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lupus Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 10-19-2009, 04:44 AM   #1
Newbie
(female)
 
Join Date: Oct 2009
Location: huntsville
Posts: 1
amg80 HB User
how do you tell u have lupus please help and read my story

5 nyears ago when i was pregnant a doctor came in and said you have lupus then turned around and said your one point away from having lupus which i still dont understand so if so one may answer that i would appreciate it . but i have the blood clotting syndrome that is associated with lupus

these are my symptons
plus im on an add medicine which has speed in it plus i take nuvigal which is also a speed medicine

fatigue all the time
my body aches from my shoulder to my back to my arms and finger tips down to my legs all the time
my doctor put me on lyrica but its not working

olease help me i dont understand are signs of lupus

 
Old 10-19-2009, 07:47 AM   #2
Facilitator
(female)
 
Join Date: Feb 2004
Posts: 4,821
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: how do you tell u have lupus please help and read my story

Hi, amg80, and welcome! I'm sorry you're feeling low. There are "sticky posts" = permanent info, at the top of the thread list, that will help you understand the symptoms of lupus are & how it's diagnosed. Dx is tricky, because the criteria include standard bloodwork, specialty bloodwork, constitutional symptoms, skin rashes, etc.---it's a real grab bag, for which patients meet some (not all).

To be Dx'ed with systemic lupus, patients typically must meet 4 or more of the criteria, which may happen over time, not all at once. The dr. who said five years ago that you were "one point away" may have been alluding to that. (But he could have explained much better!)

When you say "blood clotting syndrome that's associated with lupus", do you mean antiphospholipid syndrome? There's a "sticky" on that, too. I think it's seen both with lupus and "standalone". How was your clotting problem diagnosed, by special blood tests? Do you require medication for it?

Is your dr. a GP, a rheumatologist, or some other kind of specialist? Has he discussed the lupus criteria checklist items with you? Has he run the specialty bloodwork generally done when lupus is a possibility? Does he do repeat "standard" bloodwork? I'll stop here, to give you a chance to post more. I hope others chip in soon, too. Meanwhile, sending you best wishes! Please hang in there, OK? Sincerely, Vee

 
Sponsors Lightbulb
   
Old 10-19-2009, 08:52 AM   #3
Senior Member
(female)
 
teeha's Avatar
 
Join Date: Jun 2009
Location: Louisville Ky USA
Posts: 114
teeha HB Userteeha HB User
Re: how do you tell u have lupus please help and read my story

Hi amg80,

I was just diagnoised with Lupus this year, but suffered with symptons for many years. I have the muscle pain also and was told it is from fibromylgia associated with Lupus and was put on Cymbalta which has worked great for me. Many people will have different associated dieases that others wont as we are all different. I have been to Dermi, Rhumie and my GP. MY GP is the one working with me on all the symptons I have since my blood work is to good but I have been diagnoised with TLE and SLE. I highly suggest keep control of your situation ,asking all the questions to can when you see your doctor, keeping a log of your daily symptons etc incase something new comes along. This way you wont forget anything when you see the Doc. Keep us posted on things.

Teeha

 
Old 10-20-2009, 03:47 PM   #4
Senior Veteran
(female)
 
Join Date: Mar 2007
Location: USA
Posts: 964
goldyfm HB Usergoldyfm HB Usergoldyfm HB User
Re: how do you tell u have lupus please help and read my story

Hi Amg80, I have to join in to welcome you and suggest the sticky posts at the top of this section also. There is wonderful info there. If you do not see a Rheumatologist, please try to get in. There are so many of us that have had to go through several doctors to get a proper diagnosis. I know how helpless one can feel without a confident physician looking after your health. Please do not be discouraged as a lupus diagnosis can be tricky as there are several varieties and not everyone presents with the same symptoms. There are meds that can help. Please be patient as it may take some time to get the right treament for you.

 
Old 10-31-2009, 06:12 AM   #5
Junior Member
(female)
 
Join Date: Jul 2009
Posts: 42
momto HB User
Re: how do you tell u have lupus please help and read my story

Hey I just wanted to let you know that my best friend had the same blood clotting disorder while she was pg and her ana was positive. But it was all pregnancy induced. (at least that is what they told her) She has never had any issues since then.

I do agree with the others, to see a rheumie!!! So you can be certain!!

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
can anyone tell me what a ssa-igg-ab positive mean my ssb-igg-ab was negative whiteyowl Lupus 1 01-27-2009 02:20 PM
Having some symptoms may be related to lupus? please help... msunique28 Lupus 4 08-03-2008 05:49 PM
please share stories of symptoms before you DX with lupus kw123 Lupus 8 02-05-2008 06:24 AM
Thyroid Disease and Lupus Blessed4Life Thyroid Disorders 25 07-23-2005 06:02 PM
Could I have Lupus? creinha Lupus 13 06-13-2005 06:18 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



VeeJ (170), ladybud (41), AngelicBrat (16), luca689 (7), neveragain444 (6), ksp (6), luvinmusiq (5), brooklyngirl (4), Daisygrace (4), AgedFlowerChild (3)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (855), janewhite1 (823), Titchou (769), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (654), BlueSkies14 (610)



All times are GMT -7. The time now is 04:36 AM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!