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Old 11-11-2009, 07:24 PM   #1
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tiesha HB User
Recently diagnosed with lupus and needs answers!

Hello Im new to the site, but I was diagnosed with lupus in July 2009. I'm so stressed and confused because I don't understand what's going on. I know I'm not supposed to stress but I can't help it. I'm currently seeing a specialist but I still don't know what the lupus is doing to my body. I'm always tired regardless of how much sleep I get, my body hurts, and I'm a college student which is a struggle now. I don't know what to do I really just want someone to help me understand. Thank you

 
Old 11-11-2009, 08:22 PM   #2
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goldyfm HB Usergoldyfm HB Usergoldyfm HB User
Re: Recently diagnosed with lupus and needs answers!

Welcome, I have to say that if you have not read the sticky posts at the top of this thread, please take time to do so. There is some wonderful info there on the subject. Arming oneself with a good knowledge of your illness seems to take the edge off the surprise of having a new diagnosis. One can better participate in one's care when they know a bit about their illness. I am not so new to Lupus myself, only having had the diagnosis for a little over 2 years now. I do also have Fibromyalgia, which is sometimes seen accompanying Lupus. I do hope you find the site helpful and if you have any questions, someone here usually has an answer or a source for you to find. Is you specialist a Rheumatologist? Most of us here are under a Rheumatologist care for the lupus.

As for the sleep issues, I became a chronic insomniac about 10 years ago and have fought that problem continually. I do take something mild to aid sleep at night now and also discovered I have sleep apnea that is being treated. I do advise that you pace yourself and if you need to take a break and rest a few minutes throughout the day, then do so. Trying to keep a healthy sleep schedule is also important. I find that when I adhere to a healthy schedule that I feel more rested in the morning. Also know your limitations, don't spread yourself thin as stress can bring on a flare. A little pampering of oneself and saying no!!! seems to help as well.

I do hope you find the site as informative and supportive as I have. Let us know how you are doing!

 
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Old 11-12-2009, 04:59 AM   #3
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VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: Recently diagnosed with lupus and needs answers!

Tiesha, hi & welcome! Were you prescribed meds? The reason I'm asking that is that some do take awhile to reach full effect. And have you been back to your dr. for a follow-up since being diagnosed?

Glad you found us & hope you drop in often! Post more when you can, OK? Bye for now, with my best wishes, Vee

 
Old 11-25-2009, 06:32 AM   #4
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Madison104 HB UserMadison104 HB UserMadison104 HB User
Re: Recently diagnosed with lupus and needs answers!

Hi Tiesha, I am new to these boards but not new to Lupus. Educate yourself all that you can, and see about some support groups in your area. I know this is a tough diagnoses, but we can get to feeling better with meds, and by modifying our lifestyles. We really need to rest and watch our stress.

WELCOME and keep reading and asking questions. Everyone understands and cares.

 
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