My wife has been in the hospital for nearly five weeks now.
She came in with blood in the urine, nausea, vomiting, feeling horrible.
During our stay, her kidneys began to fail. Her urine output is back up some now, but there is a chance she may have lupus nephritis. The final biopsy report isn't back in yet, but from what our doctor's p.a. said while ago, a tissue sample shows it "quacks like a duck". We have a kidney specialist on her case as well.
Hers is not an easy case. It is very complex, and we were told she is the sickest patient on the floor now. We have both been crying in devastation for the past month, and that devastation only mounts higher.
She also has to take blood thinners, but they can't give her one yet due to her kidney bleeding from the biopsy site the other night, so she now also runs the risk of a clot until we know the other bleeding has stopped.
We are devastated due to her having to have dialysis. Her case is so complex I am also on the Healthboards Kidney forums.
The small ray of hope we have is that her urine output is up some. The p.a. said that is a good sign.
I don't know what will happen if she does have lupus nephritis, but the drug Cytoxin (SP?) has been mentioned. I would like to think and do pray she can be gotten better and could go off dialysis and feel good again before long. Only God knows, and it is Him we are relying on as our Great Physician in guiding the earthly ones as to what to do.
Has anyone else ever been through this? Ours is not a bright Christmas, but we are happy anyway... We do still have each other!
Hi Trog. Sorry your wife is so sick. You are a great husband to reach out.
I don't have kidney issues although there are some on this board who do. Cytoxin seems to be the treatment of choice for those that do. I think it is considered a form of chemo. I hope someone with more experience will chime in.
I hope your wife does well and gets to come home for Christmas. As a long time lupie I'll give you my best advice....take one day at a time.
On top of all of this, now she has a cough and burning like a URI or cold starts out! All we needed! I've told the nurses, but nothing coming of it yet. I'm afraid her immune system is rock bottom and she'll take every bug within 50 miles. I hope I don't get it, or I'll have to go home, and she won't be taken care of right if I'm gone. This hospital, you have to watch their every move!
Her urine output is picking up and we are so thankful, but it needs to clean her blood better according to the kidney Dr.
Thanks so much for very encouraging words and coming back to us.
We also hope and pray we are home for Christmas. We were here, of course, for Thanksgiving.
I spent a Thanksgiving in the hospital with pneumonia....wasn't fun. When I'm in the hospital my husband and 2 daughters set up shifts so most of the day I have someone with me. It's terrible that we can't trust the care we get. I have a terrible time getting my meds in the correct dose at a reasonable time. I complained to one doc and was told to "smuggle" my own meds next time. My oldest daughter worked in a hospital for many years and isn't intimidated by the doctors and nurses so she's good to have there to keep bugging them until I get what I need. So don't let them get to you....your wife deserves good care.
They want to give her cytoxan, but after reading the horrible, terrible side effects of that stuff, I don't think so. She would get it by IV. Nausea and vomiting are guaranteed, maybe for days afterward. No thank ya', doc.