Introduction & looking for advice support
I was diagnosed with lupus 2 years ago. During that time my labs have been very off.
Normal blood count WBC High end 10,000 mine ranges from 13,800-average 18,000.
My RBC are elevated to the high end
I have been tired for the entire 2 years. Have gone to specialists and been told I don't have Leukemia as a result of blood tests.
Since 11/09 I have just became completley phyisically, emotionally, mentally exhausted. My physician has written me out of work for this time.
I have gone through a series of Rosephryn injections, prednzone that is difficult for me to take. My skin hurts when I take it, nauseated, etc.
My joint pain is terrible and getting worse. My hips, knees and legs hurt all the time and more frequently it is difficult for me to walk for any lenght of time I then have difficultly walking. I have been going to the DR every 2 weeks and nothing seems to get any better.
The last visit I had a lung xray was taken and she didn't like what she saw and was sending it to the hospital to be looked at by someone more qualified. I haven't gotten the reading results back yet. I told her I still wasn't any any condition to perform my job. She wrote me out for two more weeks and to be honest I go back on Monday and I still don't feel like I can do my job. I have at least 3 nights out of the week that I can't sleep. Usually in a row so by the 4th night I am so exhausted I can sleep.
I feel like she doesn't want to write me out for work any more. But I can't do my job I have had a headache for 3 weeks and 2 of those weeks it was associated with nausea, it was like motion sickness, if I moved the headache worsened and so did the nausea.
My job is very stressful and I need ot be very active and mobile. If I am on my feet or walking for an hour by the after noon I am unable to walk without being in horrible pain and have to have help getting in and out of bed, auto mobile. I feel like she thinks I am making it up but I'm not. My husband has been having to help me and I push through most of what I can.