Hiya, I too am in the UK and would like to welcome you both.
What I would suggest firstly is that you strive to get a good lupus doctor. This I know is hard to do as in the UK it is difficult to get appointments. If you can, push and push for a consultant who knows what he/she is talking about. Never be afraid to ask questions and make sure you understand exactly what is being said to you. If you don't then please ask and ask until you do. It is essential that you get as much information from a lupus doctor as you possibly can.
They in turn will be able, if they think it is necessary, to make appointments with other relevant clinics to ensure you and they get an overall picture of your condition.
This forum is an invaluable source of support and understand though. Emotional support with this and any other chronic illness is paramount I believe, and you will get that in tons here.