It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lupus Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 01-23-2010, 08:47 PM   #1
Senior Veteran
(female)
 
Join Date: Mar 2007
Location: USA
Posts: 964
goldyfm HB Usergoldyfm HB Usergoldyfm HB User
Dizzy, dizzy, dizzy

I have had episodes of syncope after a cervical fusion some 10 years ago and also when all the Fibro symptoms first started, but have not had that much of a problem since the Lupus diagnosis and treatment until the last couple of weeks. I know that previously I would get the dizzy spells at times when shopping, or doing some activity like cleaning or showering, etc. Now I am having them just by moving my head and even when reclining. I catch myself spinning even as I try to go to sleep at night. I know my Rheumatologist is out for the next couple of weeks, and even though I have a scheduled appt for this week with my Im, I do not have much faith in her. I don't really know if this is Lupus or Fibro or a heart valve problem (long history) Do any of you have dizzy spells to this extreme? Have they been described as a Lupus symptom? I have not had any med changes other than increasing LDN about a month ago and did not notice any specific changes. I know that today, I had to get out for a while and I could not wait to get home and lie down. I fell asleep and even when I would wake up after an hour or so, just coulf not get up. I went all day without eating anything but breakfast as I just felt so darned wiped out, and I feel it was whatever is causing the dizziness. Other than this bout, I had been feeling pretty good lately. Go figure.

 
Old 01-24-2010, 12:24 PM   #2
Senior Member
(female)
 
Join Date: May 2007
Location: CT
Posts: 167
sk84life HB Usersk84life HB Usersk84life HB User
Re: Dizzy, dizzy, dizzy

I have to wonder if there is a virus going around giving people classic symptoms of BPPV (Benigh Paroxysmal Positional Vertigo) as I am just winding down from a 4 week episode, the first 7-8 days/nights were rough. It would awaken me several times as I rolled over in bed, then upon awakening just getting to a sitting position. I had the same BPPV 30 years ago and it lasted 5-6 weeks - just bending or turning my head would make the world spin over. Each person is different and triggers may vary from day to day. My right ear seemed to be the culprit. Just recently I was working with an ENT MD and he related that he has seen almost 50 people in the last month with BPPV with nausea and vomiting.
I've done a fair amount of medical online search to get updated and most say to try and wait it out. Unless labyrinthitis is diagnosed, most times this does pass. It does get more frequent as we 'mature.' There does not seem to be any direct corrolation with autoimmune diseases
It is very scary to lose your balance and/or feel the world spin over. I upped my hydration (I'm terrible about getting enough fluid) and just took my time with movements. So move with caution - don't want any broken wrists or hips here!

Keep us posted on how you are doing.

 
Sponsors Lightbulb
   
Old 01-24-2010, 01:20 PM   #3
Senior Veteran
(female)
 
Join Date: Mar 2007
Location: USA
Posts: 964
goldyfm HB Usergoldyfm HB Usergoldyfm HB User
Re: Dizzy, dizzy, dizzy

Thanks so much for the info. I am a little better today. Just feeling a little drugged, but not taking anything that should make me feel this way. I have not been around too many people lately so I wonder what the incubation period might be if it is the virus you mention. Since it is not worsening, I hope to tough it out to Friday. I know living alone, it scares the dickens out of you to feel this way. But as I said, I am taking it easy and haven't had any worsening, so I suppose it could be something as simple as a bug.

 
Old 01-25-2010, 02:52 PM   #4
Senior Member
(female)
 
Join Date: May 2007
Location: CT
Posts: 167
sk84life HB Usersk84life HB Usersk84life HB User
Re: Dizzy, dizzy, dizzy

Just checking in to see if you are feeling any better. I reread your original post and wonder if you are in a mild flare with the fatigue and general not feeling well. Of course any virus can effect multiple body symptoms and sometimes it really is hard to differentiate what is the lupus, what is just a garden variety 'bug' and what is a new symptom.......sometimes you just have to wait and see and take it hour by hour....and do anything that will divert your attention.

 
Old 01-25-2010, 07:56 PM   #5
Senior Veteran
(female)
 
Join Date: Mar 2007
Location: USA
Posts: 964
goldyfm HB Usergoldyfm HB Usergoldyfm HB User
Re: Dizzy, dizzy, dizzy

Still having the dizzy spells, but I am to see doctor Friday. I did call my family and let them know what is going on and they asr calling to check on me. I think I will be okay til Friday and see what the doctor says. Thanks for checking in on me. You guys are great!

 
Old 01-31-2010, 07:17 PM   #6
Senior Veteran
(female)
 
Join Date: Mar 2007
Location: USA
Posts: 964
goldyfm HB Usergoldyfm HB Usergoldyfm HB User
Re: Dizzy, dizzy, dizzy

I did see my PCP on Friday, where she did some extensive labs. She tends to believe I may have some positional vertigo going on lately. She mentioned that it could be inner ear as well. I am awaiting the labs to see what they show and will go from there. The dizzy spells are improved, but just want to make sure there is nothing more serious going on. I have fought to maintain my weight over the last year or so and had started on protein shakes every other day. I had picked back up about 7 pounds, so I don't think it is diet related. I am just in a holding pattern til I hear the results. I don't think it is anything serious, the doctor is probably right!

 
Old 02-01-2010, 01:23 AM   #7
Senior Member
(female)
 
Join Date: May 2007
Location: CT
Posts: 167
sk84life HB Usersk84life HB Usersk84life HB User
Re: Dizzy, dizzy, dizzy

Glad to see your update and that the dizziness is abating. I saw my rheumy last Thursday and had him check my ears just to make sure nothing was going on. All looked well. Am glad my positional vertigo also went away - didn't last as long as the episode 30 years ago
Hope you continue to improve!

 
Old 02-01-2010, 11:27 PM   #8
Senior Veteran
(female)
 
Join Date: Mar 2007
Location: USA
Posts: 964
goldyfm HB Usergoldyfm HB Usergoldyfm HB User
Re: Dizzy, dizzy, dizzy

Nurse called today but I was in dentist's office and missed her call. I left word for her to call again. Maybe I will hear something tomorrow.

 
Old 02-07-2010, 07:52 AM   #9
Senior Veteran
(female)
 
Join Date: Mar 2007
Location: USA
Posts: 964
goldyfm HB Usergoldyfm HB Usergoldyfm HB User
Re: Dizzy, dizzy, dizzy

All bloodwork came out fine. I guess the doctor was correct in her initial thoughts that it is probably transient positional vertigo. At least it has subsided. Another day another symptom. LOL.

 
Old 02-07-2010, 01:30 PM   #10
Senior Member
(female)
 
Join Date: May 2007
Location: CT
Posts: 167
sk84life HB Usersk84life HB Usersk84life HB User
Re: Dizzy, dizzy, dizzy

Glad to hear your bloodwork was okay and that your symptoms have subsided!! Since it can happen more often as we 'mature' you will recognize the symptoms immediately. Just be patient with it and it will subside. But glad you saw your doc just to be sure.

I reported my episode to my rheumy at my 3 month visit in late January and he just assumed I had my PCP check me out. Told him no, just waited it out......didn't tell him I was all over the internet for the latest descriptions and what to do about it
Did have him look in my ears - no wax in the 'bad' side, but some wax in the 'good' side.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Dizzy carrieann30 Anxiety 7 01-07-2010 03:01 PM
Not really dizzy but....... LadyinNY Inner Ear Disorders 36 06-25-2008 05:35 AM
Please Read~If you are a Dizzy Suffer! boxerlover227 Anxiety 34 08-30-2007 09:20 PM
weird, fuzzy, disoriented,light-headed, dizzy fuz High & Low Blood Pressure 34 05-16-2005 04:15 AM
Dizzy for 1 1/2 years 24/7 suzyisdizzy Inner Ear Disorders 15 01-04-2005 05:13 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



VeeJ (172), ladybud (43), AngelicBrat (16), luca689 (7), ksp (6), neveragain444 (6), luvinmusiq (5), brooklyngirl (4), Daisygrace (4), AgedFlowerChild (3)

Site Wide Totals

teteri66 (1180), MSJayhawk (1004), Apollo123 (904), Titchou (847), janewhite1 (823), Gabriel (759), ladybud (754), sammy64 (668), midwest1 (668), BlueSkies14 (610)



All times are GMT -7. The time now is 07:53 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!