The problem with fluorescent lights affects lots of people with lupus and also without lupus.
It's difficult to do much about if it is in stores and so on, where you can't ask them to have their lighting changed, but luckily there are things you can do at home or when purchasing new lighting. I came across this excerpt from a seminar attended by a Dr. Werth who is chief of the Division of Dermatology, at the Philadelphia Veterans Administration Hospital. She is also a Professor of Dermatology and Medicine at the University of Pennsylvania School of Medicine.
Dr. Werth speaking:-
I have been asked to make a few comments about fluorescent lights. UV rays are emitted by full spectrum and fluorescent lights, as well as most compact fluorescent light bulbs. The amount of ultraviolet light emitted from fluorescent lights is about the same as with incandescent lights. There are a few compact fluorescent lamps that have less ultraviolet emission - here Dr. Werth names a couple of Companies, which I have omitted from this - but suggests using Daylight Energy saving bulbs. There is enough emission from many bulbs to cause problems in photosensitive patients, so filters and tube covers should be used for most lights, as well as lamp shades when possible.
As I said it is difficult to do to approach large organisations to change things. The only other thing to do is identify which stores and so on have this kind of lighting and avoid them. Try to make your reasons for not using the stores known to the Head Office of these organisations if you can and they might, just might, do something if they can. I lert two companies know where I live and they did indeed take it on board. They out some type of filter on the lighting and it improved things greatly.
If you are sensitive to the sun, even sunlight filtering through clouds can cause you to feel very unwell. This is why it is always advised to avoid the sun. If you definitely have to go out in it, wear loose fitting cotton clothing, long skirts or trousers and always wear a hat. Sunglasses too if you can. Always apply sunblock, you can get them with excellent moisturising properties and they are not gooey to use. Avoid as much as you can though going out in the sun.
I have no doubt that you know all of this already but I think it helps sometimes to refresh our memories about what and what not is safe when you have lupus. Please take care.