I have been dxd with SLE for 8+ years and have recently experienced Raynaud's phenomenon in a couple of fingers and livedo reticularis on my legs. My rheumatologist started me on 81 mg aspirin daily. Is that a pretty standard starting treatment for APS?
I would really appreciate any information that you guys have on this. Thanks in advance!
Hi. That's what I've read, also, that baby aspirin is the standard first-tier therapy. Then you have labs done regularly & hopefully won't ever need anything stronger (like Coumadin, etc.) Best wishes, Vee
Lupus is such a very strange disease! My first symptom way back in 1989 was severe immune mediated thrombocytopenia. I was bleeding from just about everywhere with a platelet count of 4,000. It took three years of prednisone and experimental therapies before the ITP finally went into remission. Now all these many years later I'm on blood thinning therapy. Seems kind of ironic!
Interestingly enough, though, my 1st pregnancy was cut short by a large blood clot under the placenta. They diagnosed me with intra uterine growth retardation and had to induce a month and a half early. During that time I had tested negative for anticardiolipin antibodies and the lupus anticoagulant, so they still weren't even calling it Lupus. I wasn't diagnosed until 2001 when my ANA finally flipped positive. Those APS tests are still negative to this day...this time, though, my dr. checked for one called beta 2 glycoprotein 1. I was positive for that and for anti RNP just last week.
Thank you so much for the response. I appreciate it very much.