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Old 02-19-2010, 08:30 AM   #1
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Join Date: Feb 2006
Location: naples, fl.
Posts: 303
kw123 HB User
I need help......

I have posted here before. I have had many problems for the last few years. I have seen many Dr's and had many test. I always feel bad and go through periods of feeling terrible. Here are my symptoms:

Severe panic attacks
irregular and skipping heart beats
hairloss
exhaustion
high BP
low potassium- recently-sent me to hospital 3x-going to neprologist today
dry skin
hands and feet freezing
dizziness
brain fog
lack of motivation
body aches
shooting pains
eyes sensitive to light
depressed
freq urination
shaky inside
red lace pattern under skin on legs
flushing of face on nose and cheeks. It gets super hot ,not raised but goes away. Roseacea I was told....

Have seen neuro, rheumie, endo, you name it. I always have something out of wack but nothing that points to one thing or another.Here are things that have been out of whack in labs. All my bloodwork-CBC, Metabolic, Diffs come back great. My glucose was elevated in the Er though.

B12-276 806 now
Ferritin 15 43 now
TSH- 5.41- on synthroid 3 weeks and I am 1.02???
low potassium- 2.8- on supplement now
Rheumatoid factor- 44 this lead me to rheumie and everything came back perfect for lupus or anything else????

I am at a loss. For 3 weeks I have been very sick with low potassium. Body aches, exhaustion, irregular heart beat 120 resting, BP elevated. I do not know what to do. Could this be lupus? Why would it not show up?? I am so worried. I do go to a kidney Dr. today and see what he says. The endo yesterday asked if I was ever tested for Lupus and I said yes. I am really scared and do not know what to do. Can you please share your thoughts and stories. I just need some advice.

Thanks- kw

Last edited by kw123; 02-19-2010 at 09:52 AM. Reason: Add

 
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Old 02-19-2010, 06:47 PM   #2
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Join Date: Jun 2009
Location: Brielle, NJ
Posts: 221
heidiclouser HB User
Re: I need help......

I would look for a university medical center where you could get a comprehensive evaluation. Lupus effects all of us differently and crosses the autoimmune spectrum. Usually the rheumy makes the diagnosis but mine consults with the other members of my medical team -- cardiologist, gastro, dermie, oncologist/hemotologist. Good luck to you.

 
Old 02-19-2010, 08:04 PM   #3
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Posts: 4,822
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: I need help......

kw123, I don't understand whether you posted your results for some earlier & later times, or whether you posted a range vs. your findings? i.e., are you HIGH or LOW for B12, Ferritin, TSH?

It seemed clearer to me that you're low for potassium & are taking a supplement; and that you're RF was high @ 44.

I had low potassium often, probably due to deehydration from hideous chronic irritable bowel problems. (Those resolved quickly, once I was diagnosed with lupus & started Plaquenil.)

How did you make out with the nephrologist today?

When your rheumie did tests, did you get copies to see EXACTLY what tests were run? Hopefully he or she tested for ANA, but *also* many more specific autoantibodies, including those seen in antiphospholipid syndrome.

I'm with Heidi---if you don't feel you moved forward today, I hope you can get to a university center where a team of specialists can bring their collective knowledge together.

Let us know how you did today. I know you're horribly frustrated, and no wonder. So please keep pressing, OK? Sending you my best wishes, Vee

 
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