Hi, this is going to be quite long so please bear with me! I'll attempt to make it as brief as possible. I'm a 21 year old female who's been unwell for almost a year. I've had various symptoms for much longer but my level of functioning slowly got worse and by May 2009, I was in a lot of pain and I was sleeping 20 hours a day and unable to go to work. I was misdiagnosed with ME/CFS and Fibromyalgia until I requested a second opinion and struck gold with my current rheumatologist.
I was diagnosed with an undifferentiated type of inflammatory arthritis in November 2009. Scans showed inflammation in both feet, right ankle, both hands and both wrists. My rheumy said it sounds like rheumatoid arthritis because of the pattern of joints involved but the rheumatoid factor is negative, although my ESR is very high and CRP is positive. However, he said it's important not to rule out lupus because I'm showing symptoms. In a letter to my GP, he said that despite negative ANA, anti-DNA, anti-ro and lupus anticoagulant, I still could have lupus.
I thought it might be helpful to describe my symptoms as well, to see if anyone recognises any of them. I know it's important to trust your doctor and I do trust my rheumy but I'm confused and interested in other people's opinions. Obviously I have the stiff joints, swelling and pain due to the arthritis, as well as fatigue and general muscle aches and pains but I also have....a rash across my cheeks and nose....constant headaches....my rheumy wrote that I have livedo reticularis (sic?) on a letter to my GP....photosensitive rash....ulcers in nose and mouth....and I can't think of anything else that may or may not be related.
I know you can have seronegative RA (and it's quite likely that this is what I have) but can you have seronegative lupus....is there even such thing?
Thank you for reading this, I'm very grateful.