I am fairly confused. I've been diagnosed with MCTD/SLE.
I'll read in one place that MCTD is a horrible disease to have. In another place I'll read it is no big deal.
I'll read that HIGH globulin is an indicator of SLE. Mine is very low.
I'll read that SED is high, that CRP is high. My SED has been the same for the last two years...2....is 2 considered HIGH? My CRP is very low..<.03...is this HIGH? What numbers are considered HIGH?? I can't find any information on what number is considered HIGH.
My white blood, red blood, platelets, hemoglobin, cholesterol, creatine, hormones, urine test are ALL well within the so called normal ranges.
What is considered HIGH for rheumatoid factor?? Should it be zero, or is a low number (which the range for RF is anything <14 is considered NEGATIVE on my paperwork) considered HIGH??
I read all the messages here about ANA tests and number, mine is called an "ANACHOICE SPECIFIC AB CASCADING REFLEX" and there are no numbers only "positive" or "negative" as the result....AND I'M CONFUSED.
**So...If you are diagnosed with MCTD/SLE at 45 years of age and THE only symptom you have is FATIGUE, does this mean this is as bad as it gets? I mean basically I have been living with this fatigue for WELL OVER 30 YEARS. I've had none of the other symptoms on the criteria list for MCTD/SLE.
I've had odd symptoms over the years (ears ringing, gums receding, insomnia.....)but nothing to write home about and nothing to run to the doctor with....nothing has occurred with great intensity, consistency, or caused any harm. I've had NO rash and NO blue fingers/hands.
PLEASE can someone enlighten me?? I am trying to have SOME understanding of this. I can read in one place one thing, then read somewhere else that completely negates what I just read. Case in point, one place says people with SLE SHOULD use NSAIDS, yet I JUST read that they should NOT. Honestly, which is right??