I have Behcet's...It is sometimes very difficult to get a diagnosis because there is no one confirming test and it is rare in the US and many doctors (including rheumies) know very little outside of their medical school books...The disease also presents a little differently in western cultures than the more commonly diagnosed Eastern cultures.
I was finally diagnosed with Behcets after biopsies of my mouth and genital ulcers...I think the biopsy shows differences between lupus and BD. I've also had a negative blood marker test for Lupus, so it was ruled out.
The biggest symptom with BD is the mouth sores. If you think you might have BD, you should see an eye doctor to see if uveitis is or was present. (50% of BD pts have eye problems). I don't have eye problems, but have had weird skin (zit-like) issues as well as genital ulcers (looking like canker sores) and arthritis (which in BD is due to inflammation and not degenerative
. All 4 issues (which can come and go for years before reappearing): eye, skin, mouth, genital issues can give a complete diagnosis for BD. However, many BP have what's referred to as an incomplete diagnosis if they are missing one of the main symptoms.
Anyway, the treatment for BD might be a little different than lupus, but is a trial and error process with drugs and each pt is different. I am now working with a naturopathic Dr who has found that I have had extreme IGg sensitivities to certain foods that may be triggering my symptoms and also have abnormal neurotransmitter levels....I'm hopeful to keep my flareups under control with the right diet, supplements, and stress levels instead of meds...
Good luck with your diagnosis and symptoms! You have my sympathies!