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Old 05-02-2011, 01:19 AM   #1
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Should I have my 14yr old tested for lupus?

We have a family full of auto-immune disease sufferers. My mom has lupus/fibro/cancer and others, aunt has RA and others, uncle has lupus and others. My sister and I were just diagnosed almost a year ago w lupus/fibro and positive ANA's for Sjogren's and Schleroderma. I've had some of my symptoms since before age 11. My daughter has many of my symptoms, such as...constant headaches, leg pains, eye pains, mood swings, muscle twitches, etc. She has an appt at the end of the month. Should I request extensive blood testing? Oh yea, she also has light patches on her arms and legs. They are not quite what I would think of as vitiligo, but I can't explain the skin lightening...

Any responses would truly be appreciated...
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Old 05-02-2011, 04:31 AM   #2
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Re: Should I have my 14yr old tested for lupus?

I would if I was you. The problem is so hereditary and a 14 year old really shouldn't be having health problems. I would have my 16 yr old tested but she refuses blood work, she has multiple problems too. It would probably be good, if it's present, to start treatment early, it might keep her from getting really bad sick later on in life.

 
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Old 05-02-2011, 05:21 AM   #3
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Re: Should I have my 14yr old tested for lupus?

"five", hello & welcome. I'm sorry your daughter is having problems. Here's another thought. While your 1st choice is probably a rheumatologist, a dermatologist could biopsy her skin. Various rashes are seen in the autoimmunes. For example, the lesions of discoid lupus eythematosus (DLE) scar and/or depigment; the vitiligo you mention is likewise autoimmune in nature; etc.

If the rheumatologist alone can prove what's going on, she may not need a dermatologist. But dermies are particularly useful when bloodwork is sero-negative, which it generally is in the DLE "skin-only" subset of lupus.

Yell if this doesn't make enough sense, and let us know how you two make out, OK? Sending best wishes to your daughter & you, Vee

 
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Old 05-02-2011, 05:48 AM   #4
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Re: Should I have my 14yr old tested for lupus?

I don't think it would hurt anything to have her checked just to be sure. I have vitiligo and not all of my white patches are extremely white in color. Vitiligo can destroy some of the melanin and cause lighter patches, but some melanin is still ok so the skin is not completely without color. Try looking at the skin in a dark room lit up by a black light, the patches should glow (its obvious and has a white/blue look) under the light. Other conditions can cause similar white patches such as tinea versicolor which is a fungus and can easily be treated but vitiligo most often will not go away with treatments.

 
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Old 05-02-2011, 07:23 AM   #5
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Re: Should I have my 14yr old tested for lupus?

Thanks ladies...I have debated about having her tested because I wonder if a positive DX will limit her mentally. However, I think about all the symptoms that I experienced when I was younger, especially the mood swings (depression) that could have been treated when I was younger...I could have had a much better childhood/teenage existence. I was always so bitter and upset and just downright unhappy and didn't know why. She def has some of those tendencies to be upset about nothing and I would be thinking to myself..."what do you have to be upset about, your life is 1000 times better than mine", now I am starting to realize that this is something that she might not be able to deal with on her on. Anyhoo, ignorance is not bliss and I want to do all that I can to help my baby out.

Again, thanks so much!
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