Hi, I havent been diagnosed yet and go to a rheumatologist in a few days for my 1st appt due to a positive antinuclear ab test (nucleolar) due to a history of joint pain, IBS, depression, muscle pain, rash on my face
I have several questions
some test results are unexplained: what does this mean?
Estimated glomerular filtraction rate >60*
bilirubin total 1.6H
cyclic citrullinated peptide ab <15.6*
also, I went fishing day before yesterday and got sunburned. I usually just tan and only got a rash on my arms from the sun once and that was this summer, though I have one on my chest almost all the time.
Anyway, I burned my back. I used aftersun and burn cream and it hurts. But since I burned it my stomache has been upset again, badly. Also I have had a headache which got worse through the night (second night since burned) and is awful today... I am also more naseous ,
I also noticed that I have tiny red dots on my chest ... they are just a few but seem to be getting more.
does any of this mean anything? I sure appreciate anything you can tell me!! Thanks!!
The sun can really make you sick.....I've had sun poisoning twice. Once I was sick for a week with flu like symptoms. The next time was worse, my joints were so inflamed I couldn't walk. Sounds like the bumps may be hives from the sun. I don't go in the sun anymore unless I wear a wide brim hat and have all my skin covered. I've had 2 skin cancer surgeries, and have been told I would probably have more. Alot of the autoimmune diseases can make you sensitive to the sun....Be careful, hope you feel better soon. Drink lots of water to keep hydrated!
The Following User Says Thank You to gingertea For This Useful Post: AgedFlowerChild (08-06-2011)
Hi. Here are thoughts about those 3 lab results, which you'll want your rheumatologist to explain properly, and in context of all he's seeing.
GFR (glomular filtration rate) indicates how well kidneys are doing their job (filtering). If > 60 is above the danger zone, that would be good news.
Elevated bilirubins indicate liver issues, e.g., cirrhosis, hepatitis, drug toxicity, fatty liver, etc. The "H" may mean your reading is high?
Cyclic citrullinated peptide ab is one early indicator of rheumatoid arthritis. I say "one" because I think it's viewed properly only in the WIDER context of Rheumatoid Factor, all other labs, and clinical symptoms. Similar to lupus criteria, the diagnostic criteria for RA are sort of a "Chinese menu" mix of labs, symptoms, durations, etc. requiring "art" as well as "science" on the part of the doctor. (Meaning these criteria aren't cast in stone.)
Before I developed rashes, I hit a point where sun induced vicious headaches, GI upsets, overall flu-like feeling, etc. I was told much later that those are some common signs of increasing photosensitivity. I hope your appt. goes well. Sending best wishes, Vee
The Following User Says Thank You to VeeJ For This Useful Post: AgedFlowerChild (08-07-2011)
Thank you Gingertea and VeeJ for your responses.
It was so strange to sunburn! My husband even remarked that this is the first time he has ever seen me burn where it didn't tan off by the next day. I haven't had a burn that hurt in 20 years! And this one has just made me so sick. This headache will not go away with advil, perciset, sleep... My stomach aches and I"m nauseous... dear Lord I would never have believed that I could react so badly to the sun and I have always loved the sun and spent much time in it...
Didn't mean to go off about me there... I was wanting to thank you both for responding as this site is helping me feel like maybe I"m not losing my mind... Much thanks and hope you both feel wonderful today!!! !
AgedFlowerChild, if OTC's don't touch your headache, maybe you need a stronger prescription Rx? I needed either Bellergal or Fiornal for my whopper headaches. (Good news is I haven't had a headache like those since started Plaquenil years ago.) Here's hoping you get everything you're dealing with handled soon! Thinking of you, Vee
The Following User Says Thank You to VeeJ For This Useful Post: AgedFlowerChild (08-08-2011)
VeeJ, how long will it take for my tests to come back once I go to the rheumy on thursday? I don't know whats worse, wondering if I'm a hypocondriac or being dx with lupus or some other autoimmune(s)... I guess at this point I am just anxious to have an answer!! Thanks
Hi. My checkup autoantibody blood panels & urinalysis (all simple & straightforward) come back in 2-3 days, but I suspect that for a NEW diagnosis, that's overoptimistic. For example, he may call for tests beyond that (your bilirubins?)... Also, if you're sent for a skin biopsy, I remember one specialist taking 3-4 weeks to complete tests on 3 separate skin samples. Also, based on initial results, he may order add'l tests. And he may call for tests I've never had & thus have zero feel for...
I hate to say this, but many people don't get answers on the first try. Many autoantibodies rise & fall as flares appear, then recede. (The goal is to catch a flare "on the rise".) And for some diagnoses, e.g., systemic lupus and RA, you need to meet a certain number of established criteria; and you may fall short because the condition is still developing.
What a wordy way to say that I really don't know! I know you're eager for answers, and no wonder. Main goal is to have a thorough & logical first appointment, and to feel able to trust your new dr. to carry thru to conclusions. Let us know how it goes, OK? Wishing you luck! Hugs, Vee
The following user gives a hug of support to VeeJ: AgedFlowerChild (08-09-2011)