I really think I may have Lupus but would like the take of more experienced sufferers....
Currently now suffering fourth week of "tonsillitis", which today's doctor believes to be Glandular Fever. May explain why no antibiotics were helping.
I am to see a Rheumatologist next week due to:
Recurring tonisllitis (6 or so bouts in past year, but have had this all my life)
Recurring sinusitis (again, 6 or so bouts and again have had this all my life)
Uveitis for 13 years (in remission since my son was born 11 weeks prematurely - after I miscarried the first baby-)
Allergy/intolerance to PenV
Cannot take Cephalexin - bad allergy, blood pools in joints?
Migraines as a young teen to early adult, but not now.
Inexplicable rashes on the tops of my hands and feet when in the sunshine (sometimes??) - steroids and/or steroid creams had no effect - neither did Factor 50!
Swellings (sometimes, not always) if I go into cold water (yes, we swim in the seas and lochs in Scotland sometimes)
Severe over-reaction to midgie or cleg(horsefly) bites...massive swellings that take a long time to heal.
Sudden onset of asthma???? I'm 41 and have only in the past year had to take inhalers.
About three occasions of fairly severe hair loss - each time I just cut my hair short and ignored it and it grew back?
I had the test for "Photo sensitive light eruption" done on bloods that came back negative.
I had the ANA test which also came back negative... this was done by a dermatologist who I was referred to due to the awful, itchy, red, rash all over the backs of my hands... which had gone by the time I got my appointment and I'm still waiting for it to come back so they can do a biopsy??
I also have appalling chilblains on my fingers all Winter, despite wearing sheepskin gloves and trying to keep my hands warm....
To my limited knowledge all of the above do seem to indicate Lupus, but what if this next appointment is yet another wasted journey.....
I am SO TIRED OF FEELING ILL AND TIRED... I've forgotten what it feels like to have the energy to want to do anything, my garden was even a struggle this year for me....
Does anyone have any comments or suggestions for me?
I would be ever so, ever so, ever so extremely grateful