Hi all,
I have had things happen just one time that were odd. Such as having my right hand and forearm turn so cold that I could bang it on the table and not feel it.
My left thigh would burn with achiness. Then one Christmas Eve, I had vertigo and went to the walk in clinic, was told I had hyper reflexes, go to the neurologist to rule out MS. That started a 10 month journey of tests and second opinions, even being on meds, only for it all to fade and I was told everything was....normal.
I had pink urine one time, went to Yale for a urogynecologist to examine me during surgery (same time as endometriosis surgery) to get a diagnosis of interstitial cystitis. Went to urologist every 6 months, for a year or two, labs come back fine each time, only for it all to fade and i was told everything was....normal.
I have had sensitive skin, hearing, stomach, eyes, but nothing specific, just how God made me I guess. Oh, and sensitive feelings too, I don't like going to these doctors so much, I hope they won't yell at me.
I had an endoscopy, with esophagus dilation 5 years ago, due to food sometimes (not always!) getting stuck. This summer the stuck feeling came back, the dilation did not work, then I had a barium swallow test......it came back normal. Last week I went to Yale for a swallowing motility test. I am waiting for the results in another week or so.
I have had shortness of breath~on exertion~! I emphasize this, because my pulmonary function tests show I have small airways disease, the pulmonologist says I do have asthma, I firmly disagree. It's a totally different thing, this shortness of breath! I have had treadmill testing, a nuclear treadmill test too, PFTs, CT scan, EKGs, etc........ only for it all to fade and I was told everything was....(everybody sing!
) NORMAL.
I have had Raynauds a few years ago, fingers would throb so much that I would cry. They were beet red. But not the unique kinds of colors you can see on the internet pictures! I was on nifedipine but I felt the millisecond it hit, ughhh, so the dr. let me go down to half a dose. Then I got off it as the weather warmed up.
Now I have a suggestive subacute cutaneous lupus phrase hanging over me, as found by a biopsy of an active lesion. All bloodwork labs by the dermatologist and rheumatologist say I am fine, just a bit anemic on the CBC.
I wonder if I have a combination of autoimmune stuff going on here. I have started to say I am Sampler Suzy, I have a smidge of this and that, and nothing specific.
Thanks for reading my story. I love to read, here's my own novel.
Suzanne
