Re: hi, i need some information
Hi. Another thought: there are several companies that manufacture clothing with SPF protection built into the fabric.
I became very photosensitive over time, with systemic problems AND rashes being worsened by sun. Avoiding & blocking sure helped reduce my disease flares, but I eventually became Vitamin D deficient, so now I take supplements. So you might ask your dr. to monitor your Vit D level.
Are you on medication? I've taken Plaquenil for years. It's helped me a lot.
I found reading helped, too, as I knew so little about the disease. You could look in your local library for books on lupus that you could borrow for free.
I hope this helps a little. Keep posting, OK? You'll meet nice people who are always happy to talk. Sending you my best wishes, sincerely, Vee