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Old 03-15-2012, 05:53 PM   #1
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Re: Lupus symptom nasal narrowing

Yes...I have had a lot of problems with my nasal passages. My rheumatologist prescribed an ointment called triamcinolone acetonide that I put up my nose with a cotton swab. The swelling went away. I do have to use it 2 or 3 times a week . If I stop using it ,after awhile it comes back.

 
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Old 03-15-2012, 07:20 PM   #2
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Re: Lupus symptom nasal narrowing

Hi & welcome, Minnietwo. I'd have been surprised, too, and annoyed! I looked this up---I was that curious ---and found that nasal PERFORATION can happen in lupus, especially when vasculitis is present. NARROWING can apparently be caused by many things, incl. Wegener's, relapsing polychondritis, chronic sinus infections, breaking one's nose, etc. So the doctor's "only 3" statement seems weird to me, and probably off the mark.

I have cutaneous vasculitis on my ankles, too. My dr. said it's no big thing UNLESS the skin ulcerates.

When do you expect your labs back? I hope you get clarity quickly. Where bloodwork isn't helpful enough, rashes can be deep-punch biopsied & subjected to immunofluorescent stain tests that light up in "lines" that are considered diagnostic of lupus. I had the skin tests---not a biggie for me because my rashes were on arms & back, not face. But I hope your answers come easier! Let us know how you're doing, OK? Warm wishes, Vee

 
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Old 03-17-2012, 04:38 AM   #3
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Re: Lupus symptom nasal narrowing

Minnietwo, I was told that even doctors can't identify rashes without a skin biopsy. My local dermatologists proved this! They gave me pics of rashes that resembled mine, so I was mollified for awhile. Well, ha! None of their pics were of the the lupus rash that mine turned out to be, once biopsied properly.

So I bet that, in addition to dermatofibromas, there are OTHER lumpy-like skin conditions. Here are just two I've heard of. One is lupus panniculitis (profundus) = inflamed fat pads in the dermis that can turn lumpy. The second: my husband has lipomas on his arms & legs, which have nothing to do with lupus.

You're right, waiting isn't fun. While I was on hold, I went to my local library for lupus books written for patients, then scanned just the chapters that looked like they could apply to me. Wishing you a good weekend, Vee

 
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