It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lupus Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 03-16-2012, 08:59 AM   #1
Newbie
(female)
 
Join Date: Mar 2012
Location: Chicagoland
Posts: 4
Raddant HB User
Mouth sores

Hi. I'm new here, and waiting for a possible dx of SLE. But, in the meantime, I have a question which, even if it's not SLE, you all may be able to help me with. I have several sores in my mouth - one off and on for over 15 years. Anyway, I digress. Because of these sores (I think), I have an awful taste in my mouth, and an altered sense of taste (food totally does not taste right or good). Is there anything (prescription or over-the-counter) that can help with this issue. Even if it's not SLE, I thought that someone here might have a suggestion.

If it does turn out to be SLE (which I 1/2 hope it does (because then I will at least understand what the heck is going on) and 1/2 hope it doesn't (cause I am not really looking forward to dealing with this disease for the rest of my life)), I will introduce myself further.

Thanks in advance!

 
Reply With Quote
Old 03-18-2012, 03:39 AM   #2
Facilitator
(female)
 
Join Date: Feb 2004
Posts: 4,931
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: Mouth sores

Raddant, hi & welcome. One of my books has old-fashioned reco's for SLE mouth ulcers. (1) Buttermilk gargles. (2) Hydrogen peroxide diluted in a few ounces of water, gargled & spit out several times a day.

Another is Orabase dental gel, a topical steroid (a drug store item, I think).

If those don't help, I'd probably ask my dentist & doctor to check the sores, on the chance they could be something else entirely.

The author says that systemic meds, like antimalarials and steroids, also help oral ulcers, but a formal diagnosis would be needed (duh, obviously ).

I bet many here can appreciate your wanting & yet not wanting the diagnosis. But please know that proper treatment and follow-ups can make such a difference in the quality of life, and can lower your odds of serious complications. Plaquenil (antimalarial, the lightest class of meds) has helped me. I still have pain & fatigue remaining, not as bad as before; but my nastiest problems, that stopped me cold, have been well-controlled.

Is this your first round of tests, or have you been tested before? I hope you keep posting! Sending my best wishes, sincerely, Vee

Last edited by VeeJ; 03-18-2012 at 03:43 AM. Reason: spelling

 
Reply With Quote
Sponsors Lightbulb
   
Old 03-18-2012, 04:58 AM   #3
Newbie
(female)
 
Join Date: Mar 2012
Location: Chicagoland
Posts: 4
Raddant HB User
Re: Mouth sores

OK - guess I should have been more specific in my original post. I have now seen 3 periodontists for the one sore that has been there off and on for at least 15 years, besides my regular dentist. Have now seen my regular doc for the newer sores on my cheeks (about 3 months or so now) and just last week saw the rheumotologist. Don't have another appointment with her for a month (don't really want to wait that long for my test results!). Will be calling my regular doctor tomorrow due to swelling in my ankles and feet. He's supposed to get the results also, so maybe he might be able to tell me what's going on.

Never been tested before - never even crossed my mind that my joint aches might be anything more than getting older (although 45 is NOT old) and being quite overweight. Actually the fact that I can barely taste my food right now seems to be helping in that respect.

The only "bright" side that I can find right now is that the cholesterol medication that I have been taking to control chronic diarrhea which is a powder that you mix in liquid and tastes nasty, does not taste so bad. I guess you have to take the silver linings when you find them, right?

Thanks for the reply!

 
Reply With Quote
Old 03-18-2012, 05:00 AM   #4
Newbie
(female)
 
Join Date: Mar 2012
Location: Chicagoland
Posts: 4
Raddant HB User
Re: Mouth sores

ooops - sorry. Looks like I have been misspelling Rheumatologist. I am a horrible speller...

 
Reply With Quote
Old 03-18-2012, 05:32 AM   #5
Facilitator
(female)
 
Join Date: Feb 2004
Posts: 4,931
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: Mouth sores

Raddant, I had episodic, horrendous GI bouts for 20+ years, to the point of being hospitalized. My local drs. and specialists never considered lupus, to my knowledge, until I started yammering that my arm/back rashes seemed to be sun-induced. Yet I read later that GI problems are very common in SLE. And to my surprise, that was the first of my chronic problems to recede dramatically once I started Plaquenil... and not a moment too soon!

Since you've been under periodontist's & dentist's close care for years, I see why you suspect some cause beyond their purview.

Have you read the sticky posts (permanent info posts) at the top of the thread list? The "alternative criteria" knocked my socks off: I matched many, from childhood on. Let us know how you're doing, when you have time. Good luck, from Vee

 
Reply With Quote
Reply Reply

Similar Threads
Thread Thread Starter Board Replies Last Post
Mouth sores Where do I go? Need diagnosis neveragain444 Lupus 16 09-08-2010 05:04 PM
Sores In Mouth mom1999 Lupus 7 06-10-2007 09:35 PM
Sores in my mouth adeki Lupus 4 10-08-2005 02:59 PM
Some advice for mouth sores UT_mom Lupus 1 03-30-2005 06:05 AM
Mouth Sores VeeJ Lupus 13 08-27-2004 05:41 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



VeeJ (172), ladybud (43), AngelicBrat (16), luca689 (7), neveragain444 (6), ksp (6), luvinmusiq (5), Daisygrace (4), brooklyngirl (4), paperbgprinces (3)

Site Wide Totals

teteri66 (1177), MSJayhawk (1004), Apollo123 (903), Titchou (847), janewhite1 (823), Gabriel (758), ladybud (753), sammy64 (668), midwest1 (668), BlueSkies14 (610)



All times are GMT -7. The time now is 05:25 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!