Re: Was just diagnosed
Hi & welcome. Me, too!---meaning, I'm sorry you were talked to like this! She may have meant, "Your labs & clinical symptoms suggest you don't need meds at this time". But if that's the case, she should have cited specific reasons (all tests & findings that prove lupus is present but mild), indicated in what scenarios she'd consider meds, told you to call if you noticed changes, told you when you should come in for followup, and explained any necessary lifestyle changes (e.g., should you avoid UV rays?).
QUESTION (only curious): what SUBSET of lupus did she diagnose? I can only think of one, Drug-Induced, that could warrant a brief explanation (but not that brief!), and that would be ONLY if you'd already discontinued the culprit drug & your labs showed only a little "hit". But for DISCOID (skin-only) or SYSTEMIC (especially), she should have had considerably more to say!
I'm considered systemic but subacute (no major organ involvement). I take an everyday med (Plaquenil) & OTC ibuprofen, and have a check-up every 4 months, more often when warranted.
In your shoes, I probably wouldn't seek add'l tests before the May appt, only because good drs. re-do everything, as opposed to trusting labs done elsewhere; but you could request copies of your labs to give to your new dr.
Kidney problems show up, I think, in basic labs as elevated BUN & creatinine, or in urinalysis, as protein. As for heart, lung, and brain, presumaby you'd have noticed/reported some symptoms. BUT if you start feeling punk before seeing your new dr., you could call & beg to come in to see him earlier.
While waiting, you could do some reading, starting with the "sticky posts" (permanent info posts) at the top of the thread list. Also, your local library should have books written for patients. From reading, you could get the lingo down & also see where your symptoms/labs fall on the wide lupus spectrum (and that could be somewhat comforting). I hope you keep posting here! Sending my best wishes, sincerely, Vee