It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lupus Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 04-03-2012, 03:57 AM   #1
Senior Member
(female)
 
Join Date: Sep 2005
Posts: 239
mbbasketball HB User
A long time getting a dx

Finally, got a diagnosis. I have MCTD and was told I will have to take Plaquenil for the rest of my life. I have a negative ANA and all other autoimmune except extremely high RNP. My total body pain has side line my activities, but rheumy told me that it will take several months to see if the medication will work.

So, I was not crazy or all my pain and various issues was not in my head as some of the doctors I said.

Lesson that I have learned is, if you know something is wrong don't give up.

Also the reason why medicine is called a "practice" is that is just what it is a "practice" with your mind and body.

 
Reply With Quote
Old 04-03-2012, 10:55 AM   #2
Veteran
(female)
 
Agenda's Avatar
 
Join Date: Jan 2012
Location: Ireland
Posts: 329
Agenda HB UserAgenda HB UserAgenda HB UserAgenda HB UserAgenda HB UserAgenda HB UserAgenda HB UserAgenda HB UserAgenda HB UserAgenda HB UserAgenda HB User
Re: A long time getting a dx

Congratulations on getting a diagnosis. I am still trying to get there, also on plaque nil. Would you mind explaining what MCTD stands for I have not heard of it before.

Thanks
__________________
Osteoarthritis
Rheumatoid arthritis?
Fibromyalgia

 
Reply With Quote
Sponsors Lightbulb
   
Old 04-03-2012, 01:07 PM   #3
Senior Member
(female)
 
Join Date: Sep 2005
Posts: 239
mbbasketball HB User
Re: A long time getting a dx

Quote:
Originally Posted by Agenda View Post
Congratulations on getting a diagnosis. I am still trying to get there, also on plaque nil. Would you mind explaining what MCTD stands for I have not heard of it before.

Thanks
MCTD is short for Mixed Connective Tissue Disease. It is autoimmune. Some say it is a combination of several autoimmune disease over lapping. You have to have high RNP antibodies for this diagnosis. Why are you on Plaquenil if I may ask? I have heard that Plaquenil can lower your RNP antibodies.

 
Reply With Quote
Old 04-03-2012, 02:21 PM   #4
Veteran
(female)
 
Agenda's Avatar
 
Join Date: Jan 2012
Location: Ireland
Posts: 329
Agenda HB UserAgenda HB UserAgenda HB UserAgenda HB UserAgenda HB UserAgenda HB UserAgenda HB UserAgenda HB UserAgenda HB UserAgenda HB UserAgenda HB User
Re: A long time getting a dx

Thanks for that. My rheumy has named my condition undifferenciated connective tissue disease. He thinks at some stage it will show itself as RA or lupus or similar auto immune condition. I wish it would hurry up 8 years and still waiting.
__________________
Osteoarthritis
Rheumatoid arthritis?
Fibromyalgia

 
Reply With Quote
Old 04-03-2012, 02:56 PM   #5
Facilitator
(female)
 
Join Date: Feb 2004
Posts: 4,945
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: A long time getting a dx

mbbasketball, WHEW, FINALLY! I'm glad you got a Dx & medication after all this time. I hope the Plaquenil kicks in nicely. I felt some (not full) effect fairly quickly & hope you do, too. Let us know how you're doing, all my best, Vee (Your last remark made me smile. They "practiced" on me, too. )

 
Reply With Quote
Reply Reply




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



VeeJ (172), ladybud (43), AngelicBrat (16), luca689 (7), ksp (6), neveragain444 (6), luvinmusiq (5), brooklyngirl (4), Daisygrace (4), AgedFlowerChild (3)

Site Wide Totals

teteri66 (1180), MSJayhawk (1007), Apollo123 (906), Titchou (851), janewhite1 (823), Gabriel (759), ladybud (755), midwest1 (669), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 01:01 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!