Finally, got a diagnosis. I have MCTD and was told I will have to take Plaquenil for the rest of my life. I have a negative ANA and all other autoimmune except extremely high RNP. My total body pain has side line my activities, but rheumy told me that it will take several months to see if the medication will work.
So, I was not crazy or all my pain and various issues was not in my head as some of the doctors I said.
Lesson that I have learned is, if you know something is wrong don't give up.
Also the reason why medicine is called a "practice" is that is just what it is a "practice" with your mind and body.
Congratulations on getting a diagnosis. I am still trying to get there, also on plaque nil. Would you mind explaining what MCTD stands for I have not heard of it before.
MCTD is short for Mixed Connective Tissue Disease. It is autoimmune. Some say it is a combination of several autoimmune disease over lapping. You have to have high RNP antibodies for this diagnosis. Why are you on Plaquenil if I may ask? I have heard that Plaquenil can lower your RNP antibodies.
Thanks for that. My rheumy has named my condition undifferenciated connective tissue disease. He thinks at some stage it will show itself as RA or lupus or similar auto immune condition. I wish it would hurry up 8 years and still waiting.
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mbbasketball, WHEW, FINALLY! I'm glad you got a Dx & medication after all this time. I hope the Plaquenil kicks in nicely. I felt some (not full) effect fairly quickly & hope you do, too. Let us know how you're doing, all my best, Vee (Your last remark made me smile. They "practiced" on me, too. )