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Old 04-25-2012, 11:20 AM   #1
Join Date: Apr 2012
Location: new jersey
Posts: 2
jenmac287 HB User
Worsening Body Aches and SLE

I was dx with SLE 5 yrs ago...I have been on Plaquenil since then and it has helped. But in the last 6-8 mons my body aches have really gotten WORSE!! I am a nurse...I work 8 hrs / day when I get home if I sit down "That's It" entire body just stops working and it becomes very difficult for me to function. I have all-over body aches (esp. legs/back) and I am just so's like before I started on the plaquenil. I am considering calling my rheumy for help...anyone have a ideas or suggestions?? I'm very interested!!! Thx, Jen in NJ

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Old 05-01-2012, 05:28 AM   #2
Join Date: Feb 2004
Posts: 5,276
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: Worsening Body Aches and SLE

Jen, it sure can't hurt to ask your rheumatologist. You might also ask about vitamin D & thyroid levels (because Vit D can tank in people who avoid sun and hypothyroidism is just plain common).

Plaquenil has helped my chronic problems for > a decade, but because I've had pain all along, I take Advil daily. I've found this spring especially rough & have been taking more Advil than usual. (Bottoms of my feet & my shins are especially awful.) Although I replaced some of my "comfort shoes", I haven't noticed any difference as yet.

I hope you find out something useful & get some relief. Good luck, Vee

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