Re: Bone pain in flare
spellinGoldy, as I understand it, lupus is a connective tissue disease. Personally I find this term so vague as to be meaningless to a non-doctor. The best definition I've found is that connective tissue is the glue-like material between cells that gives form and strength to tissue. It surrounds many organs; specialized kinds include blood, bone, and cartilage.
Most literature I've seen on skeletal problems speaks just to JOINTS, which I find weird, because I've had pain along the long bones of arms/legs since age 13. It's always been a much worse problem for me than joints. I said as much to my rheumatologist early on. His (not very helpful) response: "Well, you DO have a connective tissue disease". But if the definition above is correct, bones ARE a form of "connective tissue".
My doctor asked if barometric changes affect me. Definitely yes, but it's not a mild vs. cold weather thing for me, it's year-around. Along with Plaquenil, I take Advil daily, but I try to take additional amounts ONE DAY BEFORE a weather front hits. If I wait for the front to arrive, it's too late. This helps me some, not perfectly.
One of my hardcovers says that the jaw joint (temperomandibular joint, abrreviated TMJ) inflames in up to 1/3 of lupus patients. I grind my teeth at night when mine's active, doubtless worsening the problem. Last month my grinding cracked a wisdom tooth, whcih I'm having capped. (I only mention that so you can have your dentist check you, if you've caught yourself grinding.)
That same hardcover says that hips are lined with synovium. And synovium can inflame in lupus wherever it's located.
That's about it for my research, such as it is. Wishing you luck with your Jan. appointment & happy holidays, Vee (dx'ed only with lupus)
Last edited by VeeJ; 12-06-2012 at 02:53 AM.