My sister was diagnosed with Lupus when she was in treatment for schizophrenia at the age of 16. Butterfly rash, inflamation and I don't know what else. But the doctor that she had at the time was one of many at the healthcare center, and the lupus thing was dropped and never came up again. She's on medication (for schizophrenia) and sleeps 12 hours a day, but has a job and is doing well.
I'm 27 now and have been so tired for all of my life. As I've gotten older, my sleep hygeine has become better, I've lost weight (from 200 to 150) but I still feel tired all the time. I work out, I eat well, and I'm a healthy weight. (Just below a BMI of 25 so I probably could afford to lose a couple pounds).
I did a lot of pushing to get the hypothyroid tests (NOT just TSH) because I thought it had to be a thyroid problem. My TSH leaned towards hypo, but was still within the confines of normal. Finally my gyno did the others, and all came back relatively normal - except TPO (thyroid antibodies) at 90-something were higher than the 45 (?I think) maximum value of the "normal" range. I got a letter saying all good, check.
I kind of despaired. My GP put me on antidepressants and I did those for about two months (selexa made me groggy & sleep constantly... zoloft I might try again, but it also made me very sleepy)
Basically lately... I feel like I'm going crazy. I went to a psychologist last February or so, he said I seemed fine, referred me to my GP. Sometimes I'm afraid I'm going schizophrenic like my sister. The worst part is when I talk to people and I can't concentrate on what they're saying, I can't come up with the words I'm looking for, or lose my train of thought. I remembered that diagnosis of lupus my sister had and wondered if it was at all possible I have that... my grandma was also diabetic (insulin dependent but not sure if type I or II)
The things that sound like me in lupus are severe fatigue, brain fog (awful, awful brain fog), the rash (I only get it sometimes and not as bad as my sister does -- and she gets these rashes on her arms and legs, I think she needs to bring up lupus to her doctor), the Reynaud's syndrome (my toes... are purple. Like permanently. And people are always commenting on my icy hands) and pleurisy (only get this occasionally, when I was younger, I'd call it 'the hole in my chest'. It's really painful to breathe, but it usually doesn't last very long.) Oh and thinning hair!! It's pretty awful to be 27 with a bald spot on top of your head
I get pain in my knees, like arthritis, but only when the weather's changing.
So I guess... I feel that I have lupus "light". It's not as bad as some people describe, but the brain fog and forgetfulness are awful. I don't like feeling like I'm going nutters. Sometimes I feel just fine.. but others I feel like I'm losing my marbles!
Interestingly enough, there's some research linking schizophrenia and lupus and I wonder how much my sisters handful of episodes had to do with possible untreated lupus?
Wow that was a long ramble. Thanks to anyone who made it through all that... would like some suggestions if lupus seems likely/possible and how to broach this subject with my GP.