Do NOT like my new Lupus Doctor!!!
Well, appointment number 2! I do NOT like my new Lupus doctor. Mine retired after 30 years due to health issues.
My new doc is from India. That would NEVER make one iota of a difference to me except I really cannot understand him and he talks fast. Second, I asked if I could donate blood as years ago I was told no, and wondered if anything has changed as that can really help people. His answer? Why DO you want to do that, get out there and talk to others about Lupus, MIND OVER MATTER!!
I was in tears. He knows nothing about my spine because he did not look over my chart, OR does know that I can barely sit at all, let alone walk for any length of time, and well, he mine as well told me to dig ditches.
Anyone that knows me knows that I DO AS MUCH AS POSSIBLE, because I am stubborn and I want to be a fighter! Sure, I get worn down, but my limits are REAL, and they make me sad, but this MIND OVER MATTER? Maybe if we had already established some doctor/patient relationship or maybe if I "felt" he gave a damn but I don't. And at 57 my intuition has never steered me wrong, ya know. That little inner voice that God gave us. What a gift!
(SIGH) Anyway, there is a doctor about 40 minutes from my house that I hear is FANTASTIC for Lupus patients. I will need my coccyx injection to make that trip and I made an appointment for that "meet and greet."
Life can be really hard. I do like living in the solution. Some doctors? WELL they never should be. I wanted to say "IF YOU lived with what I live with, you would NOT be saying "MIND OVER MATTER."
I feel I must add this. My mom was a gem, bless her soul. I lost her 7 years ago. My upbringing is that of gratitude, NOT giving up, STAYING POSITIVE and fighting the good fight. So when I say I cannot do something, I promise from the bottom of my heart it is NEVER from the lack of trying. I like to think I could be an inspiration to others.
Please wish me good luck with the new doctor. I am willing to bet many here, sadly have dealt with the same thing. And if you have anything to add, I would greatly appreciate it. Thanks so much everyone.
I am sending positive thoughts to each and every one of you!!!