Was diagnosed this past August after 9 years of severe, chronic fatigue and severe, suicidal depression since age 14 (I am 30 now). Plus much more in the way of symptoms. Anyway, I started noticing more frequent palpitations this past June, before I even knew I had the Lyme. My Dr had me have an EKG, echocardiogram and 24-hour Holter monitor. Just found trace mitral regurg and heart murmur that I had long forgotten I had had. I didnt think much at all of these things until around August when palpitations started happening a lot more often despite being on a beta-blocker now (Inderal) for them. Also a couple episodes of shortness of breath. For months, Ive had exertional shortness of breath but dont remember if I mentioned that to my Dr or not, I think I did but figured echo woulda shown anything too serious, u know? Ok, now palps and skips, etc are happening pretty much every day now that its November and last week Im asleep and dreaming Im short of breath, like someone is sucking the air out of my lungs. Very weird feeling. I wake up and sure enough, its actually happening but goes away when I wake up.
(Note: It wasnt a panic attack or anything like that, it was unlike anything Ive ever experienced). Then I was at a friends and talking and had to stop talking and sit down because I was having palps again and getting short of breath. I was a little concerned but true to form, blew it off and went to work. It really hasnt happened since these incidents Im describing, hasnt happened again other than the palps every day, most of the day at that. Im just wondering how seriously I should be taking this because Ive talked to others with late-stage Lyme like I have and theyve said theyve had these symptoms but tests showed up OK and its all from Lyme, etc. I just have a nagging feeling maybe I should see a cardiologist now. Does anyone have any experience with Lyme and heart probs from it? Can u offer me any insight and advice?
I've had some heart palpitation symptoms, and I have Lyme disease. It comes and goes. I was told that I have a 'heart murmur' years ago, but it's never been any problem at all and I don't think that has anything to do with my recent symptoms. I can also relate to the shortness of breath. I've only had real symptoms for a month now, and I can't wait to get rid of them.
__________________
Tested + for Lyme 2002.
Tested + again 2003.
Had 8 mercury fillings removed 2003.
Hi Farmgirl. I am sorry you have been sick for so long. Have you been tested for all of the co-infections ticks can also transmit--Babesiosis, Ehrlichiosis HME & HGE and Bartonella? Heart palpitations and the shortness of breath you describe are major symtpoms of Babesiosis. Many Lyme doctors feel the co-infections need to be treated first before Lyme treatment is effective.
I am seeing a LLMD, yes, but I have no faith in him. Am seeing a new one this week. I was tested for Babesia and it was negative but Ive been told a lot how there are many different strains of Babs and most tests just look for 1 or 2 or something. Is this correct? Anyway, I would not be surprised at all if I have it. Im just wondering why after 9 years of symptoms, these new heart ones waited until June thru the present time to really manifest themselves? In no way were they happpening to me all these years. I am like ???
I have just been being treated for Lyme and no co-infections, and my Lyme treatment is coming to an end around Thanksgiving (IV Rocephin, 56 days). So if I do have Babs, looks like I was treated the wrong way... Lyme first and not co-infection first, huh? *sigh* What do u suggest I do from here? I am very frustrated with all of this and I am also very POOR. It is by the grace of God that I got on Medicaid around the end of the summer -- *before* I even learned I had Lyme btw! -- which is paying for my treatments so far, but Im not sure how much more they will pay for. I was taking supplements but I get confused when I hear conflicting advice and info on what to take, not to take, how often, what dosages, etc. Overwhelming, u know?
Thanks!
-FarmGirl30
Last edited by FarmGirl30; 11-20-2003 at 04:50 PM.
I am seeing a LLMD, yes, but I have no faith in him. Am seeing a new one this week. I was tested for Babesia and it was negative but Ive been told a lot how there are many different strains of Babs and most tests just look for 1 or 2 or something. Is this correct? Anyway, I would not be surprised at all if I have it. Im just wondering why after 9 years of symptoms, these new heart ones waited until June thru the present time to really manifest themselves? In no way were they happpening to me all these years. I am like ???
I have just been being treated for Lyme and no co-infections, and my Lyme treatment is coming to an end around Thanksgiving (IV Rocephin, 56 days). So if I do have Babs, looks like I was treated the wrong way... Lyme first and not co-infection first, huh? *sigh* What do u suggest I do from here? I am very frustrated with all of this and I am also very POOR. It is by the grace of God that I got on Medicaid around the end of the summer -- *before* I even learned I had Lyme btw! -- which is paying for my treatments so far, but Im not sure how much more they will pay for. I was taking supplements but I get confused when I hear conflicting advice and info on what to take, not to take, how often, what dosages, etc. Overwhelming, u know?
Thanks!
-FarmGirl30
Hi Farmgirl,
Sorry that you are going through all this. I was wondering if you have always felt bad since the begining. When you get symptoms do they stay or will they come and go. On the symptoms list I can say I have had all the symptoms but they dont stay. Some symptoms I may have had for a week and never again.
One of the symptoms is loss of memory. I am very forgetful but everyone can say they are, is there a difference? What one thinks is painfull another may think is not. What I am saying is that I an afraid I am being a hypochondriac. What was it that made you or the docs think it was lyme.
Like you I am poor to. Being that I cant work because of my 6 month bout with dizziness and brainfog I am 2 months away from losing my unemployment and I am very scared I may lose everything. I have never had the rash. I have had leg pain for 10 years, the joints and muscels in both legs. I always felt like it was hard work but after 6 months of not working it is clear that is not the case.
After many trips to dr's in last 6 months all they could come up with is anxiety.
My symptoms favor inner ear disorders, docs have not even considered that. The paxil I am on has made my temperol head aches and pain at base of skull
leave. I know this because my head and neck pains came back after two days without. I will quit whinning.
Linear Mode
