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Old 11-17-2004, 07:42 PM   #1
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Help! Antibiotics are causing an intestinal REVOLT!!

I just started antibiotics for Lyme disease today and my intestines have already waged WAR against me! What can I do?? (please don't say "buy diapers") My doctor (who was recommended to me on this board a couple of months ago---it took a long time to get an initial appointment but the doctor is excellent) has me on 500 mg/ twice a day of Biaxin, plus 250 mg/three times a day of Flagyl. My doctor was also going to give me Minocycline as well, but decided that two antibiotics was enough for now (I think three probably would have killed me...2,500+ mg of antibiotics a day...scary thought). I'm supposed to be taking 1,750 mg of antibiotics a day for now, and yet this is the first day I've started them (I've only taken 1,000 mg so far today) and my intestines have already staged a full scale revolt.

I am also taking acidophilus per my doctor's recommendation. I am only supposed to take the Flagyl for the next five days, but will continue with the Biaxin. Over the next five days I'm supposed to pee in these little containers, that's part of some kind of kit that I am supposed to ship to Igenex (I am unclear as to why however.)

I am willing to do whatever it takes to get rid of this Lyme disease, however I would like to be able to still go to school in the meantime. At this rate, however, such a prospect seems unlikely, (unless I bring a portable toilet with me or something). Realistically, what can I do to try and calm down my intestines? Are things like pepto-bismol ok to take with the antibiotics? I've read that soluble fiber is good for diarrhea, but that insoluble fiber makes it worse; is the Metamucil they sell at the drug store soluble?

I wonder if this intestinal revolt will continue after I'm off the Flagyl next week...Does anyone know for what reasons my doctor might have put me on the Flagyl for a temporary period? Is Biaxin or Flagyl harder on the intestines? I have still yet to take the full daily dose antibiotics, so I'm praying that the next 750 mg I am about to take doesn't do me in.

Any suggestions will be greatly appreciated.

 
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Old 11-17-2004, 08:02 PM   #2
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Re: Help! Antibiotics are causing an intestinal REVOLT!!

DO NOT TAKE PEPTO w/ Biaxin. It is contraindicated. Read your insert--it's listed as something like bismuth--which pepto is. Also, Flagyl I think constipates you--but maybe not. My son was put on Biaxin and puked it right up. Trying it again tomorrow. I wish you the best of luck--beware of over the counter things while on so much abx--it's astounding what can screw you up worse. GOOD LUCK! (get some moist wipes, they really DO help. Drink lots too, you can become dehydrated in a heartbeat. Lots of water--no soda. Maybe gatorade too but watch your sugar intake--yeastie beasties love sugar. Hope I helped some. Good luck!!!--L

 
Old 11-18-2004, 05:45 AM   #3
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Re: Help! Antibiotics are causing an intestinal REVOLT!!

Did you get tested(stool sample) for c-dif- a colon infecton? That is what the Flagyl is for . I had this and it is Hell! Took me 20 days to clear up the infection . Was told to take 20 acidophilus pill/ hr till the runs stopped. Who is your LLMD? I am praying for you . What kind of acidophilus are you taking ? The refridgerated kind?

 
Old 11-18-2004, 06:02 AM   #4
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Re: Help! Antibiotics are causing an intestinal REVOLT!!

Good point Braazil!! Good acidophilis is a must. Get the refridgerated kind and entrin coated--it's made to disolve in the intestine rather than the stomach which is a must for you.

 
Old 11-18-2004, 07:28 AM   #5
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Re: Help! Antibiotics are causing an intestinal REVOLT!!

JamesII -

You got your diagnosis...so it looks like it took us about the same amount of time from the time we started having problems to the time we have started treatment. I just started on my regimen 2 weeks ago yesterday. I have been on antibiotics for a month though. They put me on Cipro and Flagyl for 2 weeks for a small intestinal bad bacterial overgrowth...as well this kept the lyme at bay until my appointment with my specialist.

When I was on the Cipro an Flagyl I did have moments of diarreah but after a week on it my body got more adapted to it and it wasn't as bad. I take a double dose of ProBiotics once in the morning on an empty stomach upon waking and then in the evening before retiring to bed. You want to take the probiotics on an empty stomach so it can plant itself where it needs to be planted. Be sure you get a probiotic that has as many multiple strains of good bacteria as you can, not just acidolphilous. It should be refrigerated...a health food store can help you with this.

I am taking the Mepron for Babeisosis and Zithromax at the moment and I still have my moments where I am running to the bathroom. I think it is the Zithromax because I can time it after taking it. I feel like I can't be more than 10 steps from the bathroom. It is a drag.

The urine test they are having you do I think is to look for the borrelias byproducts in your urine after being released by the antibiotic. IgeneX has some information on their website I believe about this test. The urine just helps to prove that the bacteria is present.

Did you get tested for coinfections?

I am so glad you are doing alright and are getting treatment. I posted a month or so ago when I finally got my diagnosis - "JamesII are you out there?" I just felt a comraderie with you since we both got sick within days of each other and it was your symptoms that you posted that really helped to convince me this was what was going on with me. As well, after your parent's reaction thinking you just needed a good antidepressant I was hoping that you had gotten to a LLMD and hadn't ended up at a therapist's office instead.

It turns out I have lyme, ehrlichiosis, and babesiosis and that I am chronic at this point...really stinks! At least I have a great doctor and know that I am getting the best treatment I can.

Take care and I hope you are feeling better.

-ncgirl88

 
Old 11-18-2004, 09:41 AM   #6
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Re: Help! Antibiotics are causing an intestinal REVOLT!!

I feel for ya! Last year I was on a month of doxy and it tore my stomach up big time! I don't think I left the house that whole month! I have no advice for ya but wanted you to let ya know you're not the only one! Hope it gets better soon!

 
Old 11-18-2004, 04:44 PM   #7
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Re: Help! Antibiotics are causing an intestinal REVOLT!!

Hi JamesII1984, I am glad you are getting the treatment you need

Are you taking the Flagyl three times a day from the start? From what I understand, it is best to start off slow with Flagyl and slowly build up the dose. Call your doctor and see if you can build it up over time. Also, make sure you have no alcohol of any kind when on Flagyl. This includes alcohol in mouthwash etc. It can make you very sick. Also, check your pharmacy print-outs to see if you can take the meds after eating. This should help tremendously. Make sure you wait at least two hours before or after taking the meds to take the acidophilus or the meds will not be absorbed properly. Your body needs some time to adjust to the medication.

It sounds like you are doing a Lyme Blot Assay test--a urine test that IgeneX does.

Many doctors do pulse therapy with the meds. The person takes it for so many days on, then so many off. One example is to take it for five days on and two off. This may be what your doctor i s prescribing for the Flagyl. I suggest asking him.

I think your intestional problems will resolve soon--I sure hope they do. Most antibioitics can be taken with food or after eating, so check to see if yours can. If so, eat something substantial. This should be a big help.

Good luck!

 
Old 11-18-2004, 08:55 PM   #8
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Darius HB User
Re: Help! Antibiotics are causing an intestinal REVOLT!!

I recommend taking an acidophilus pill that also contains bifidus. I have read that bifidus prevents diarrhea much better than acidophilus alone, and this is consistent with my own experience.
Darius

 
Old 11-19-2004, 06:42 AM   #9
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braazil HB User
Re: Help! Antibiotics are causing an intestinal REVOLT!!

Yes, Bifidus is very important! Acidophilus is for the lower intestine and Bifidus is for the upper.(or just the opposite) Hope you're feeling better soon!

 
Old 11-19-2004, 01:01 PM   #10
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Re: Help! Antibiotics are causing an intestinal REVOLT!!

I took Biaxin for about five weeks when I first started treatment and I put up with the problems and it almost killed me. I lost 25 pounds and got really tired of peeing with my butt. I am underweight anyway, the stuff almost put me in the hospital.

I switched to doxycycline w/zithromax. Much better.

 
Old 11-20-2004, 08:04 AM   #11
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Re: Help! Antibiotics are causing an intestinal REVOLT!!

Hi All -

Well I have found something that has seemed to help me tremedously with my antibiotic induced bowel explosions (sorry to be graphic) - When I get up in the morning the first thing I drink is this...I take a teaspoon of Metagenics Powdered UltraFlora Plus (probiotic) it says take 1/4 tsp. I take a 1/2 tsp., then I put in one teaspoon of Glutamine Powder, 1 tsp. of Nature's Sunshine Fiber Supplement that is a powder called Nature's Three, a tablespoon of Aloe Vera Juice, and a tablespoon of Garden of Life Omegas liquid fish oil - I mix it all together and drink it at least a half an hour before I eat anything or take any medication. I have done this religiously the last 4 days and the last three I have had no diarreah.

Thought I would share my formula. Oh, I also found a Jarrow product at a leading healthy grocery store chain that is based in Austin, TX yesterday - it is enteric coated probiotics that do not need to be refrigerated....I don't know how they get away with it not being refrigerated but I am trying them as my night time before bed probiotic. They are in individually sealed in packaging that is similar to cold remedy capsules where you push the capsule through the tinfoil like backing...this makes traveling with them really easy. We will see how good the product is...it makes me nervous that they are not refrigerated but Jarrow makes other good supplements.

-ncgirl88

 
Old 11-22-2004, 08:06 PM   #12
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JamesII1984 HB User
Re: Help! Antibiotics are causing an intestinal REVOLT!!

Thank you for all of the replies everyone. I have been feeling better lately--I think my body is adjusting to the antibiotics. I only have one day left of the Flagyl, and then I will continue only on the Biaxin. I will look into all of these supplements that you guys have suggested--and I will make sure I get the re-frigerated probiotics.

To ncgirl88---I am glad to hear that you are getting treatment now. I haven't been to this board in a couple of months, but had been follwing your dillemma when it first started out, as we had both had many of the same symptoms and gotten sick around the same time. I'm glad you found a good doctor---I've found a good doctor as well (and no, this doctor didn't tell me I was crazy and needed Prozac!). I wish you luck and hope that you get completely cured.

Thanks again for all the replies.

 
Old 11-23-2004, 12:30 AM   #13
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Re: Help! Antibiotics are causing an intestinal REVOLT!!

About 3 months ago, I was on serious Doxy 400 mg/day for a month to combat Lyme. About 4 days after stopping the Doxy, my stomach was in shreds. I had been taking Acidopholus during the Doxy but stopped taking it right after I stopped the Doxy treatment. What happens when you take these antibiotics is that it kills ALL bacteria -- bad AND good. Think of it like a lawn where you have grass (the good bacteria) but also a few weeds (bad bacteria). A plush lawn will have a few weeds but the grass overrides it. Antibiotics effectively kill everything -- sticking to my analogy, antibiotics kill the grass & weeds are you're left with nothing but dirt. Now, if you don't REPLACE the good bacteria (i.e., replace the grass), you WILL suffer. I suffered horrific stomach pains, diarrhea and even had blood in the stool. This lasted a month before I realized what was going on. Without the good bacteria, my stomach lining was not protected. The stomach acid and stuff that you eat simply causes the bad bacteria to grow in. So, going back to the analogy, no grass was growing back.....just weeds. And it not only effects the stomach lining but worse, the bad bacteria finds its way into your intestines and causes and intestinal nightmare. What I did was buy Acidopholus (refrigerated, liquid) and Biffidus AND Probiotics. I took Acidopholus before AND after breakfast & dinner meals (stomach acid & food can absorb it before it does its magic so some bodies can react to it better o an empty stomach and some can absorb it within their food). Also took Biffidus 1x/day a day AND made sure I had Probiotics (yogurt -- make sure it has cultures like Biffidus, Acidopholus). After a week, I all of the sudden started feeling better & within 7-10 days, I was finally back to normal again. What I did was simply replace the good bacteria -- or what the antibiotics killed. Its absolutely ABSURD that doctors prescribe all these antibiotics and don't mention side effects or prep you for that. I had one doctor preparing a colonoscopy. Well, whatever. Bottom line is to not stop taking the Acidopholus after stopping the treatment. You'll go through the same intestinal nightmare I did. I realize that all people's bodies are different but that's at least what helped me out.

Last edited by Camel22; 11-23-2004 at 12:51 AM.

 
Old 11-27-2004, 11:32 AM   #14
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JamesII1984 HB User
Re: Help! Antibiotics are causing an intestinal REVOLT!!

Thanks Camel. I will definitely keep on the probiotics after I stop with the antibiotics. I am glad that my doctor recommended acidophilus to me in the first place---Most doctors don't (at least whenever I've been prescribed antibiotics in the past for anything). But after all the responses and recommendations, I am going to the local health food store today to get some more of the supplements that have been recommended. My doctor also is having me take a supplement called CapriPlus. It is a caprylic acid supplement---caprylic acid being supposedly good as in anti-viral and anti-fungal. I can understand why my doctor would give me this, after all I've read about the fungal infections that people can get after taking bouts of antibiotic treatment, but I was reading up on how antibiotics work, and from what I understand, antibiotics are actually a fungus which kills bacteria. If this is the case, I am wondering if the caprylic acid might counter act the effectiveness of the antibiotics? Probably no one is still reading this thread but if they are maybe someone can clear this up for me. I am probably missing something key here.

 
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