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6Blues · 01-31-2005, 09:02 PM

Hi all. Mickie here, a young 40 yr old @ the Jersey Shore w/2 kids, 1 hairy dog and a fat cat. My ability to live with this long term illness vacillates between hopelessness and patient.

Health history:
- Don't ever remember a tick bite
- I was one of those annoying people that never had so much as a sniffle; I've been quite humbled by this whole thing
- Probable infection fall/winter 2004 with rash and joint pain that I dismissed
- Above sx got really bad summer 2004
- Saw 9 or 10 docs who couldn't find anything wrong with me
- Finally saw Dr. E in Jackson and diagnosed w/LD
- Positive IgG WB by IgeneX (5 bands); IgM Equivocal

Current sx:
- Fogginess 24/7; I feel like I'm stuffed in a giant marshmallow; as if I'm drunk
- Imbalance; walk into walls; can't walk at all in the dark
- Brain fog is 100 on a scale of 1 to 10; it's horrible!!
- Short term memory is G-O-N-E
- Very irritable; slightest thing sends me flying off the handle
- Speech problems; I'm not not articulate anymore
- Weird numbness in my face; I don't feel connected to my surroundings or the air around me ... very strange
- Itchy red rash with raised bumps; semi-circular ~ 5" dia.; comes and goes

Current treatment:
- 1200 mg of Omnicef/day
- 800 mg of Ketek/day
- Milk Weed

ciconner · 02-03-2005, 06:26 AM

Hey Deejavu,

I used to live on L.I. and I used to do field surveys in Huntington. Worked in Huntington for a while.

You just refreshed my memory. When you mentioned the spider bite, now I remember thinking I had a spider bite this past summer. I live in NJ in very heavily deer populated area. The only thing is I didn't have flu symptoms until October 2004 and was diagnosed. That was a couple weeks after I went running on wooded trails in a park and I was jumping deer everywhere. If that's not an omen. But now I'm wondering if that thing I thought was a spider bite was a tick bite. My property is partially wooded and we did a lot of fishing and were at that park a lot this summer. I know people who have no trouble with lyme when they've been diagnosed early and I'm having too much trouble for thinking I've caught it early.

I'm on my 3rd 30-day cycle of doxy. If that doesn't work they will try something else. It's possible I've had lyme before (because of my history) and was reinfected . When I lived on L.I., I suffered hip and shoulder pain for years and thought it was from running and living near the water and being over 30. I did tai chi for a year and it went away and is now back with this last infection along with many other symptoms.

Hope you are feeling better.

Cathy

Mrs Ekim · 02-03-2005, 01:30 PM

Hi
My name is Nadia and I am from Bulgaria. I live now in Philly. I am 26 years now.
My husband has Lyme and that's why I got tests done. A tick has never bitten me.
I had ELISA done in Bulgaria and it came positive for IgG and I had Western Blot done here in IGeneX, which came positive for IgM.

Anyway I am on Biaxin 500 mg twice a day. In two weeks the doctor will probably switch to Doxy (we are going to Florida for couple of days and with Doxy you can't stay in the sun).
I am on medication for one day so I don't feel bad yet
My symptoms are not so bad, I have swollen glands for over a year now- on and off-; sore throat- on and off; acid reflux - I have never had any problems with my stomach before and rashes lately - after shower in the beginning

I am sure my husband Ekim will have lot more to say

Cuteheart · 02-08-2005, 10:04 PM

I'm Valerie. Age:37
My husband is Rob. Age:43
Lima, OH

Symptoms started in Feb.2004, although I now think it could have been 2001.

heart palpitations
dizziness
nausea
weight loss
muscle pain
muscle twitches
hair loss
jaw/tooth pain
swollen glands
carpal tunnel
rib soreness
chest pain
horrific panic attacks
extremely easy to anger
couldn't stand noise (tough w/ two small boys)

two ER visits, heart monitor, stress test, numerous EKGs, Echo, gallbladder ultrasound, CAT scan, two upper GIs, two HIDDA scans, more blood tests than I care to mention

gallbladder removed in June 2004

Chiropractor suggested Lyme. Asked my dr. for test, she refused. Office would not return my calls. Gastroenterologist told me to see a psychiatrist. Nurses made some very rude comments. Finally sought a naturopath.

Bowen test in Sept. 2004. Positive for Lyme - negative co-infections

Husband tested in Dec. 2004. Positive Lyme - negative co-infections
His symptoms were heart palps, muscle twitches, joint pain, jaw pain

sagedreamer · 02-10-2005, 08:29 PM

Carole :: age 47 :: located in Belleville New JErsey

My symptoms i realize in hindsight have been a constant progression :: their onset i do not remember.

tingling in hands and arms
trigger thumb
back pain
swollen left knee
deep leg pain
heart palps :: chest pain
easily fatigued

to be honest, i attributed all of the above to menopause, arthritis, age, etc and just thought, okay it's just part of life, man am i glad i sought help. I have not started any type of treatment as of yet

cjFTWORTH · 02-26-2005, 11:06 AM

I'm embarrassed at how long this has turned out to be. Skip the doctor's appt's unless you have insomnia or extreme curiosity.. I reversed original order and they are at BOTTOM so you don't have to wade through them if you don't choose to.

Probably bitten in North Texas but numerous tick bites over the years and
quite a bit of travel/camping/backpacking, etc.

Diagnosed in late Jan. '05 and put on oral amoxycillin, single dose 3000mg daily.

From original order of post: In hindsight, I became ridiculously symptomatic in late ’04. Starting questioning my own self – hypochondriac?? But I FELT horrible which strange symptoms popping up all over the place and seemingly so unrelated.
I now wonder if constant use of steroids kept my immune system suppressed or ? just enough to hold off lyme or lyme symptoms??

Late ’04 was the beginning symptoms that I couldn't ignore.

· Oct. ’04, new GP was SURE I had gallstones. Cat scan showed clear GB. Put on Prilosec, etc which took care of symptoms. Esophagus area began feeling tight/constricted, giving me the sense that I needed to massage it, help it relax but nothing really helped. Sensation a large air bubble underneath left rib cage that was very uncomfortable and came in waves - like contractions come. Hard to swallow; nausea with pain.

· I lost my appetite during this time for a few weeks that is absolutely the most contrary experience to my normal day-to-day existence you can imagine. Food has ALWAYS been an issue for me. Lost 10 – 12 lbs. over 10 days.

· My head/neck/shoulders began to have a constant ache, drawn up feeling and pain that reminded me of when I knew an infection was coming on.

· Heart palps, swollen (arthritis) bone at sternum, ribs/chest wall/shoulder blades became very sore with other ‘moving’ sore/tender spots around trunk area. Occasional labored breathing when sitting still.

· Area under right arm pit very tender/sore and moving towards right breast. Feels like lymph nodes.

· Entire upper right arm and shoulder have since become very sore and weak with limited mobility. Arm socket pops when I do use it.

· Hands have become very sensitive to bone pain in the night. I wake and need to straighten them because either the wrists or fingers hurt due to position I have them in while sleeping. Same with right shoulder. I wake with it aching either because I have my arm stretched over my head or I'm lying on that side.

· Low back pain is increased at night – some feels muscular/skeletal and some feels clearly more organ related. Need to urinate in night increased.

· Difficulty thinking, word retrieval, increased memory problems, depression – different from my ‘normal stuff’. Strange dreams, altered sleep,

· Ringing in right ear; intermittent sensitivity to noise, intermittent vision fogginess, eye pressure; have had floater for some time as well.

· Spatial perception became skewed as well as balance/coordination and reactions to visual stimulus, like when driving.

· Two very scary, strange bouts of ‘weightedness’ where I felt like bricks were on me though I was sitting. I felt like there was something over me pressing down on me and all I could do was just sit it out. Both were very short.

· Left eyelid seemed to loose some elasticity over night.

· Occasionally, when lying in bed at night, I feel like I'm plugged in to something. Like I'm buzzing. This week, while herxing, notice that during day as well. Like a low-key vibrator is on.

Doc that saw me for GB definitely thought I was lulu and then I sought out another GP that I’d was a GP for local lyme patient and heard he might be open to working with Bedford LLMD. He told me I had eczema, wanted me to take an entire dosepak of steroids in one day, and swore I’d be well for Turkey day and that I needed to stay on my Zoloft!

After seeing these two docs and knowing I wasn’t imagining my symptoms, I heeded Ticker’s advice and got in to see an LLMD and requested Igenex lab testing. In hindsight, thank goodness Ticker informs about the use of a good lab, because although the doc I chose is touted as a LLMD, she minimized my symptoms as well, and turned out to be a very mean, uncaring doc who I’ve since heard of worse horror stories than the way she treated me. So, THANKS TICKER, for leading me in the right direction for getting a timely diagnosis and beginning treatment.

Much of the above symptoms are already decreased, especially the highly annoying, depressing and CONSTANT head/neck/shoulder pain! I’m herxing right now and symptoms are back which simply reminds me of gratitude that I’ve already come this far.

********************
I’ve listed some of my symptoms before but after getting a copy of my records from my GP, I went back and listed appt’s since late 2000 and now wonder if appts. back then weren’t early lyme related stuff. Don’t know.

No more visits with GP until late ’04, (AFTER getting sick and tired of using gels/cremes to no avail which I think is very interesting).
4 visits in Oct. ’00 in reference to same bug.

· 10-2-00 Repeated visits to doc for flu-like symptoms; complaints: lower back pain, body aches, right ear pain, sore throat. Viral Pharyngitis
· 10-17-2000 – chest congestion; head/ears stopped up; decreased taste, hearing, smell; green mucous from nasal and chest. Chest wall hurts; wheezing. Bronchitis/Sinusitis – Bactrim/Flovent Rx’d.
· 10-31-2000 – still sick. Headache, neck pain; day before; dizzy, wheezing, out of breath. Productive cough. Large, swollen mass on neck – painful to the touch. Rx’d Augmentin and come back on Monday?
· 11-3-2000 – ears cracked a lot. Less tenderness to neck and shrinkage. Apparently some time after this appt. I reported rash on stomach to augmentin. Was this really a herx???

· 2-7-2001 – Pain in sternum area. Reported waking in night with much burping. Increased pain/pressure that builds up; starts in epigastric area and goes up into her mid esophagus. After swallowing, feels pressure. Liquids and food worsen it. No family history of gall bladder disease. Started on Prilosec. (I have no recollection of seeing doc for these symptoms back this far).
· 4-4-01 Knot on upper right arm that I reported had existed for 5 years. Said it had possibly grown in size. Lump has a bluish tint to it. Doc notes that mass is ‘now getting large and has some discoloration to it’. I’d like to refer her to a surgeon as it way too large for me to be poking around in it. (smaller than a quarter) Most likely a lipoma but possibly something else and bothering her now.
· 4-17-01 – Physical. 1st pap came back irregular.
· 5-21-01 –Poison ivy; Some type of steroid dose pack rx’d. Notations of ‘other rash’.
· 5-31-2001 Poison Ivy in eyes. Prednisone;zyrtec; zantac
No visits in ’02 However, in Dec. ’02 began experiencing frequent numbness/tingling in fingers/toes and sometimes more entire hands/feet.
· 1-02-03 - Very large ringed rash appeared on upper left thigh. Continued to spread outward (fyi - this is the only rash that has gone away.) Rest are still lingering in ’05 and have spread to stomach, back, legs, in smaller circles and less defined rashes. Doc noted on/off steroid use over last year. Did shave biopsy. GP biopsied and it came back benign as ‘early Seborrheic Keratosis’. Ran blood work as well.
· 1-9-2003 – Still has irregular rash ; 4” in diam. Round, red rash with some central clearing. Try her on Diprolene Gel. After several months of no results, referred to dermatologist.
· 4-4-03 – Yearly exam.
· 9-17-03 Dermatology report from punch biopsies: Clinical data: Granuloma annulare vs. Erythema annulare. Determined that rashes on upper left thigh and left elbow were consistent with Granuloma Annulare. On very potent steroid gels for a year.

TickedOffGaLina · 03-20-2005, 07:13 PM

South Carolina, near Clarks Hill. Middle aged.
each of my dogs contracted erlichia, and were treated, and cured. Although one died 6 months ago from most likely unrelated causes (heart disease).

I found a tick behind my knee while taking a shower. Within 3 days, I had an odd rash, the area was feverish, and itched like crazy. Day 5 I was in the doctors office. My ususal doctor was absent that day, so I saw another. He stated the rash didn't look like the ususal bullseye, but put me on doxy for 7 days 100 mg x 2 daily as a precaution. 17 days later, saw my reg doc, who apparently had not taken the time to peruse my chart/records, and I had to cue him in. 2nd blood test taken. We discuss my flu like and other symptoms. I didn't know what "herxing" meant at the time, and apparently he didn't have a clue himself. Refill of the doxy for 14 more days. Went back to the doc 3 wks later, the 2nd test came back as high as the 1st one, I get the "must be in your head" treatment, brief discussion of anti-depressants, which I turned down and a trial of sonata...nasty worthless stuff! I only tried one pill. Also got a "well you've most likely had enough of the doxy to take care of it. Come back in 3 months we'll recheck.

I haven't been back. Tried some supplements, green tea caps, sib. ginseng, coQ10, flax seed, evening primrose, and ginko biloba, all of which have helped somewhat with the fatigue and "brain fogs" . That is until the last several months. Starting in late Jan, it all started again. Fatigue so intense, I can't seem to force myself to move from the couch during my time off. Body aches and pains so severe I put off going to bed because I know how badly it will hurt getting up the next day. Here's the list of worsening symptoms in no particular order of intensity.
1. Fatigue
2. Body aches --all over
3. tingling and numbness in extremities
4. facial twitches on again (for weeks) and off again.
5. eye pain from bright light especially sunlight
6. sharp shooting pains in extremeties
7. Brain fog, disorientation, lessened ability to concentrate
8. heart pounding, even at rest and "relaxed"
9. Sudden unexpected anger or impatience at "little things", vague uneasiness, sudden feelings of doom and sadness.
10. Back of skull headaches preceded by swelling and muscle knots.
I' m sure I've left something out.

bbird · 03-22-2005, 04:36 PM

From Monroe CT

Was sick for 2 1/2 years. Was bitten by tick, had circular rash - dr told me that if i had flu like symptoms to call her, otherwise, don't worry about it (great huh?)

In the 2 1/2 years following diagnosis made:

Rheumatoid Arthritis
Sjogren's Syndrome
Fibromyalgia

Lyme Disease Diagnosed by Steven Bock, Rhinebeck Health Center (he does both traditional and homeopathy) in 11/04.
- traditional test negative
- tested positive for Babesea
- tested positive in urine test - showed antigens (?) (he told me that this was a positive)

11/04 - 1/04
Doxy
Mepron
Zithromax

12/04 - current
Rocephin IV

No significant changes - do get terrible 'hicks' reactions every 4 weeks

Symptoms:

severe nerve and muscle pain
joint pain
bone pain
stomach problems (get stabbing pain)
memory problems
brain fog
headache
neck ache
severe fatigue
blurred vision
ringing in ears
fevers
weight gain
cannot sleep
elevated cholesterol & triglycerides (didn't used to have)
elevated blood pressure
sweats (during day - very rare at night) - drenching sweats
depression
eyes extrememly dry - feels like there's fires in them

That's about it. Am losing hope

mominca · 04-03-2005, 09:45 PM

mom, two young kids
Southern california (but travel to east coast frequently)
DX last month LD; co-infection tests pending
no recent tick bite history

dizziness
vision wierdness, blurryness, blind spots, photophobia
numbness/tingling
heart palpitations
fast/weak pulse
intermittent weakness
kind of electical power shortages in legs and arms; sinking feeling
arms and legs go to sleep overnight
panic/anxiety (mostly of the what-the-heck-is-wrong-with-me sort)
recentl--joint popping/pain
facial twitches
whole body fasiculations
facial numbness
ear "tiny dial tone," strange sensations in left ear, cold/noise sensitive,
hearing distorts like a stereo speaker when my kid is screaming
fatigue

artimpassa · 05-14-2005, 04:23 PM

Hi all. Figured I should introduce myself and its nice to know there are others out there. I am doing as much research as possible.

I have been tested for all three Lyme/ Ehrlichiosis /bab.
Started around April 25, 2005
Started as flu like symptoms and it progressed from there.

Fever, on and off.
Extreme Fatigue
Headache, severe
sore throat, mild to annoying
lower back pain
Brain fog big time
Knees a bit achy
All over sick feeling
chest pains-BAD
lightheadedness-woozy feelig
night sweats -I'm menopausal....so could be normal really
edgy electric type feeling-hard to explain, loud noises felt electrifying?

I am a dog groomer and I did pull 4 ticks off me in one day. All four had bitten me, only one little teeny one was actually stuck in me.

Originally my endo thought my thyroid went out of whack but I had the good sense to WRITE everything down and it hit me , crap, I had ticks on me.
When he saw that, they stated me on Doxyclc. immediately. I should have my results by Wed of this week.

I was only given a 2 week dose of doxycycl....if my test results are positive for Ehrlichiosis , should I push for a 4 week treatment?

In the past 3 weeks, 3 other people have tested postive for Ehrlichiosis in my county including one vet. We are located in Middle TN.

I have been on meds since Tues and do feel better, though still tired. My doctor is also running several other tests on adrenals, thyroid, blood chemistry, liver, etc......so I am getting a thorough work up. I've been a thyroid patient for 12 years and I have never felt LIKE THIS before, ever, so I will surprised if I come up neg to any of the tick diseases. Also, insurance will not pay for any of testing for the tick disease. Isn't that sweet [not!]

I have been extremely health with no other health issues. I have never felt this bad for this length of time before. I continue to work but its been difficult, and my area, and my line of business brings me in contact with ticks on a daily basis.

I hope I have some answers by midweek

Musclesnjoints · 06-06-2005, 07:37 AM

Can you please tell me what a LLMD doctor is? I suppose something like Lyme Medical Doctor but I can't figure out the first L.

Thanks!

laurie864bla · 06-18-2005, 03:16 AM

L-lyme, L-literate,m-medical, D-doctor.

RedeemedChild · 01-13-2006, 02:16 AM

Location: Tennessee
Age: 41

Onset of symptoms: Now I’m not so sure,
I have had tick bites over the years, but never recall the bullseye rash **shrugs**

(Symptoms in no particular order)

1.Sleeping problems esp insomnia
2.Fatigue
3.Hair loss
4.Low Blood Pressure
5.Brain fog
6.Severe Joint/Muscle pain
7.Low body temp (normal for me is 96.8)
8.heart palpitations
9.ear pain, fluid in middle ear
10.weight gain
11.tingling/numbness in extremities
12.ringing in ears
13.night sweats
14.Neck Pain
15.Before hysterectomy at 28, had a barrage of problems there
16.Always have yucky green sinus drainage
17.gall bladder removed after being very sick for 3 months
18.have bad acid reflux
19.most recently, flu like symptoms to the point that I could not get out of bed, and the pain was unbearable.
**EDITED TO ADD**
20. mouth sores!!!

There could be more....

I could and apparently have dismissed all of those symptoms as this or that. Are we sure that those are symptoms of Lyme?

I was just diagnosed last week (not sure what kind of test was done) and started Doxy for 2 months, not sure about the dosage, don’t have it with me, I am at work.

I so pray my doc is wrong. I cannot imagine myself with something like this.

battling on · 01-21-2006, 05:04 PM

Hi fotomom
Sorry havent done this yet dont often come up to the top level

Based in UK
Im 39
16 stone,
Shoulder length brown hair.

The clan consists of..

1 cat Smudge
I son Mr namless of 23yrs
My mum of 74.

Not lyme diagnosed but you dont need to be a genius, just wiser than a Most Qualified Docs

Symptom list to follow soon.

I realised a problem as afetr 3 years of struggle i actually gave up and no energy living on my settee as you do when lymie.

any way i was given lithium as im mentally deranged all in the head syndrome.

I was allergic to the lithjium and nearly died, while doctors stood by saying thats all in your head also.

anyway, i was so ill with the Lithium that Lyme ran riot, it was the only time i had had all symptoms together at once.
with that info gathered together i found Lyme!

I have been asking for help from doctors since 1991 and was shoved off to phyciatrists and phycologists and physios. So after being ignored i gave up and lived with it all not sure it was all lyme but ive never felt right.

I had a bite in 2001 that increased my vertigo and lymph swelling, and fever.
And in Spain 2002 i had teh only viable bite, shin pain all symptoms and i was collapsing.
Since then life was down hill.

I am now left with an allergy to certain meds, antiphycotic meds, manic meds
and any thing with E171 in it and possibly its nieghbour.

im waiting on igenex test with a doctor in Wales UK.

Thanks for reading
jules xx

Roman77 · 01-22-2006, 10:03 AM

Hi all....know I've been around for a while but like Jules just never got around to posting my situation up here for everyone. So here goes...

28 was living in Madison, WI pre-lyme....moved home to my parents in Hastings, MN b/c couldn't live on my own any longer this past summer...now making treks to Madison when able to. Hoping to move back to Madison for good in the next 6 months.

Applied to social security for disability in 6/05...still waiting for their decision. But have been awarded long term disability from my past job. So that's a definite god send.

Am seeing a llmd in Springfield MI....Dr. Charles Crist.

Have been dxd with Lyme twice -

AFter trip to east coast with my family at age 15, began getting sick/pain a few months later. Now remember had a big swollen red spot on my shin...didn't look like a bulls eye rash at all. But all tests through 1991-92 were negative or indeterminate but after battling for a year a doctor finally agreed to treat. Lyme went dormant. Began relapse 3 years later with onset of symptoms with increasing regularity over next 13 years, until becoming acute this past March in an alarming fashion starting with Optic Neuritis in both eyes. All of these symptoms and episodes at the time were overlooked as lyme related, and were sadly only looked and treated as seperate events. Including:

Colds, flus, and sinus infection after sinus infection, too numerous to count.

2 boughts with mono (1997, 2000) that each lasted 6 or more months causing me to lose 2 different jobs!

Dxd with Hypoglycemia in 2000.

Dxd with Raynauds syndrome in 2001.

About 15 months of strep (onset 2002), case after case of strep in a row leading to tonisl removal at age 27 (2004) - requiring 2 seperate emergency surgeries to stop the bleeding and a loss of another job due to slow healing and recovery!

4 months of reoccuring pink eye (up till then had never even had pink eye!) leading to a dramatic loss of vision in both eyes upon waking up one morning in 3/05 leading to a diagnosis of Optic Neuritis in 4/05.

EEG/VER (visual evoked potential) testing confirmed episode of Opitic
Neuritis in 4/05, forget what it's actually called but it means i have semi-permanent damage to communication highway between eyes and my brain. docs don't know if or when it will ever heal.

Tested for Lyme using Elisa/Titer...over 4 different times from 2/05-5/05 all came back negative.

Spinal Tap done (4/05) all normal....less than 3% of people with Chronic Lyme will test +

MRI scans of brain/c-spine in 3/05 showing multiple areas of extreme dymelynation of white matter in vision centers, speech, as well as cognitive areas. Had to some doctors suggested MS,would have been diagnosed with it but my family wouldn't accept it so convinced me to see Dr. C in 5/05.

Then I finally tested positive after sending for results from Ingenex labs. Postive in both IgMs ( *for bands 18, 23-25, 28, 30, 31, 34, 39, 41, 45, 58, 93)and IgG's (*for bands 30, 31, 39, 41, 45, 58, 66, 93) which meet CDC requirements plus an extra 5 bands or so! So much for all the other docs being right about being negative for Lymes and having MS.

Dxd Chronic Late Stage CNS Lyme in 5/05. Don't know if have any of the coinfections as didn't have money to test for them, but llmd is treating me as if have them. When I go to visit his office again in March am going to do tests finally and see if that's part of the problem to why i am not getting better faster.

Dxd with Hypercoagulation.
Dxd with Chronic Instestinal Yeast...ongoing treatment of Nystatin.
Dxd Neurotransmitter Deficent with almost non existent levels of Seratonin, Dopamine, Norepinephrine, Epinephrine. On Amino Acid Protocal for Non-Parkinson Related Diseases.

Began treatment in 5/05....treated with 200mg Doxy 2 bid...3 days later Herxed for 4 weeks. 6/18 restarted Doxy at 100mg 1 bid...1 day later Herxed for 1 week...this is how my pattern has been for all orals since beginning of treatment. Herxes left and right. Have been on Zithro, Doxy, Flagyl, Clindamyacin, Biaxin, Quinine, Hydroxychloroquine, and 3 rounds of IV through a Hickman Port; Rocephin 1 round and Primaxin 2 rounds. Both of these had to be pulsed as well since I couldnt' tolerate them. Am currently on Ceftin, 1/4 of a 500 mg tab every other day. All my body will handle. Any more than that and I'm in a herx for a week or more. Still have a long way to go.

Anyway here's a list of symptoms too ~

chronic, severe fatigue and exhaustion
swollen, aching, stabbing pains in all joints (varies from day to day where)
cracking/popping joints - chronic pain
sore/stiff/popping jaw almost like TMJ
bruised, painful muscles all over body
heart palpatations
chest pains
impaired gait (sometimes)
severe stabbing random pains (trunk/head/stomach/spine/etc)
intense, chronic headaches (blinding stabbing pains/pressure)
impairment of muscle coordination
loss of short term memory (cannot remember events sometimes from 5 mintues ago!)
loss of ability to problem solve/make decisions (produces anxiety attacks)
loss of ability to remember correct words/recall
saying/writing wrong words/letters (mixed up or entirely wrong!)
cannot follow conversation becomes to overstimulated/complex for me
inability to concentrate
loss of vision in both eyes (gradually came back - now have multiple images/floaters/auras/after images/grainy-fuzzy vision in both)
chronic sore throat
decrease in balance
vertigo/dizziness
motion sickness to the point of throwing up when in car....hence no more driving for me.
itchy all over (continue to do all the detox I can all the time, and yet still i itch.)
sensitive points of skin/body
buzzing/ringing in ears, throughout entire body
numb/tingly feeling/pain throughout extremities/head
red spots/blotches on all joints after bath/shower/stress
swollen hands/knees/ankles, very red/painful/mottled
change in taste, decrease of smell
extreme thirst
hair loss/thinning
photosenstive/sound sensitive (to the point of wearing ear plugs to run water for a bath sometimes!)
nausea, almost constant
mouth ulcers
nose ulcers
low body temp (96.8 - 97.9)
some days high fevers (101-103)
sudden onset of chills
hot/cold spots (most times one side of bod is cold/other is hot!)
burning or icy spots..feel like a dime size spot is on fire or frozen (varies on body)
chronic cold feet/hands causing pain and discoloration
severe pain in heel of both feet, unable to stand for more than a few minutes
insomnia - when can sleep only fitful for 2 hours in a row
night sweats
vivid dreams/nightmares
muscle twitching/electric charges in legs/arms/neck
tremors in fingers/toes/neck
twitching eye muscles
swollen glands
multiple allergies
extreme dry skin
numb arms/legs/feet/face (comes and goes, lasts hours or days!)
pressure in ears
stiff neck/grinding and swelling of vertebraes
burning/dry/itchy eyes
extreme mood swings
no patience
intolerable of exercise, alcohol, or sugar....increases severity of all symptoms ridiculosuly.

Could keep listing them off but these are the main ones....Anyway sorry this is so long, but felt motivated to actually cut and paste most of this from a post i put on the board months ago on a symptoms list thread and just update it a bit to what's going on now.

Can't wait for days when I feel just plain "crappy" agin rather than super extra crappy! This lengthy battle has so far cost me 3 jobs, more money than I can count, a good deal of my youth, and a few friends as well. Nasty business this Lyme...nasty indeed. anyway I am so glad to have you all on this board...don't know what I'd do without all of your support over th past months and in the future.

Shanna "shawna"

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