HI Ral86 - It was really nice. We went to the Mongolian Grill which was fun. It was a small group this particular night - about 15-20. Everyone was really nice and welcoming...there were quite a few newbies like us. I left feeling a lot better about everything. It was very therapeutic to talk to others who have been where I have been searching for a diagnosis and then there are others that have gotten through treatment and are doing better. It was good for me to feel that others know exactly how it feels, whose bodies experienced all kinds of crazy symptoms and who share the frustration at the lack of education out there. I made a new friend who has lived here all her life and said any time I want info. about the area or whatever to just pick up the phone - The group is meeting four times a year I believe.
I hope you are well. My treatment is going alright. My stomach seems to be holding up but my blood pressure started shooting up so I skipped one round of minocin but have started back again on 200 mg a day with the zithromax 750 a day and I seem to be alright. I just hope that was a fluke that day.
Take care and Happy Holidays!
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