Yes, yes...yes, yes, yes and yes!!!!!!!!! You sound just like Mark!! We use and have found relief from the following:
-Epsom salt/hydrogen peroxide baths during a herx--twice or three times a day as nec.
-Benadryl at night for the itching--too strong during day--bath helps with this during day
-Refresh endura eye drops. One of the only one's that are preservative free-a must!!
-Baby shampoo scrubs (not really scrubbing but gentle circular motions w/ baby shampoo and warm water on washcloth)-NIH told us it helps with blepharitis to unclog the glands around his eye that would get dry and stuck--causing irritated eyes. Really works, then we use drops.
--Lots and lots of water--16oz every 1/2 hr in "chug" form for about 1/2 the day.
--Lots of EFA (essential fatty acids)
--Up your sublingual B12--helps a lot with nerve stuff and what you do not use--you pee, so do not worry.
Hope so much this helps you as much as it does Mark!!
I had a rash today after hot bath and thought at first it was a reaction to first abx dose but it went away. Sure seems early for a herx but I don't know. My eyes are very dry as the day wears on and my skin itches and these are both pre-treatment symptoms.
I'm sure you'll get more feedback.
Another cut-n-paste, Laurie, thanks for all the great tips. cj
Yes I get those same symptoms. I used to wear hard contacts, but the last few months have oly been able to wear my glasses the majority of the time. My eyes are hurt and burn and itch terribly. My whole life growing up and into adulthood I have had severe allergies and this is not that. This is different. As for the rash, I do get that all of parts of my body at different times and my whole my body will itch, also.
Laurie has helped me with her info about the peroxide/epsom baths and the water for the 3hrs every 1/2 hr thing. That helps out great.
Thanks for the help, Laurie !!
Hang in there, CJ, we are going to make it !
Hey cj.....well I don't know if it is part of my herx or not but I too get very very bad burning of my eyes as well as vision disturbances - increased floaters and light flashing in the corner of my eye. Funny thing is about 7 months ago (before I was diagnosed) I had these problems and went to my eye doctor and he could find nothing wrong so maybe it is part of the herx!
You too, trigal. I don't think I'm herxing yet, but really don't know. My body does feel like i've been hit with a mac truck. but nausea stuff i'd think is just reaction to bunches of abx.
vision stuff is pretty weird. i noticed a few days ago that the floater i've had for what seems forever, had disappeared.
curious if it comes back now that i'm on a warpath against spirochettes...
have a best kind of weekend you can have. cj
thanks for the feedback. I used to be able to wear contacts- then my eyes burned so badly I just couldnt wear them any more. It wasn't until I started herxing and my eyes burned twice as much that I considered it had anything to do with lyme.
That's funny you guys should mention that eye stuff. Every single year when I go for my eye exam, my doctor gets all riled up about my eyes and says I have a thin retina and an enlarged optic nerve. Then she schedules me for all kinds of miserable tests that take forever and really hurt, most of them have to do with bright lights. Then she calls me back and says they didn't find anything. Every year we do this. What do you think of that?
Mark had two opthalmologists that said nothing was wrong with his eyes. THEN we took him to NIH and major different story. They refered us to the best in the country, Dr. Marshall Keys. He Dx Mark with 4th nerve palsy, severe dry eye, slight strabisimus (sp?) and somme deep scratching due to the dryness. Also a predisposition for near sightedness. How's THAT for nothing?? I have come to realize over the last few yrs that lots of docs are real stupid. It's amazing that they even graduate to me. Dr. Keys was floored that no ohter doc, an opthal at that, did not see these problems. He backed up the 4th nerve palsy with an MRI and told me the strabisimus was causing Mark's slight head tilt--NOT torticolis as we had been previously told by many docs. Did physical therapy for it a lot to no avail. Dr. Keys said we could have done PT 'till the cows came home and it would not have done a thing. Gee--I guess that's why, despite my strong efforts, it never worked! I swear I do not think I will ever trust a doctor again. I will always have my doubts. Take care ---Laurie
I also have the head tilt and the neuro said it had was caused by one of the optic nerves. If I recall correctly he said I was missing one... Would that be correct?
Anyway, he even called in his associate to see me and my head tilt. She said she had learned about this but never witnessed it. He even had me to get out my drivers license and showed my how my head is tilted in the photo.
My left eye does not move like my right eye and sometimes freaks people out... My mom had taken me to two specialist as a child and they kept telling her it was an optical illusion.