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Old 03-20-2005, 07:53 PM   #1
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Question Sore Throat and Tongue Pain - Herxing?

Ok this is a new one for me...the side of my tongue is hurting - the back right side - I mean a lot of pain. My throat is hurting too - no white marks so I don't think strep.

I do feel like I am starting to enter herx land...

Anyone else experience this? My tongue feels like it has been severly burned or bitten...so weird...the pain is like a dull throb almost and I am having problems swallowing - more like I won't be able to when I do...

Thanks for any info.

-ncgirl88

 
Old 03-21-2005, 03:52 AM   #2
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Re: Sore Throat and Tongue Pain - Herxing?

This is a strong, previlant symptom of Sjogren's Syndrome that people complain about. Reason I know this is b/c they thought Mark had this and Telvock was Dx w/it before Lyme. It is autoimmune.

Mark has had these symptoms in the beginning/middle of his undx period. He has a strong band 31 which Dr. Jones says is very suggestive of autoimmune triggers from the Lyme. Mark has had such strong Sjs symptoms at times--not being able to swallow, very dry mouth and eyes, and a burned tongue feeling.

All turned out to be Lyme--and has gone away with treatment. You could just be doing that herx thing with new weird symptoms that pop up. But oh yeah, I have not only heard of this, but experienced it and talked to many with the same.

I would watch closely and take some benadryl if you can stand it today. Helps with that a lot. Also you can get some Biotine mouth rinse which seems to help some. Careful with toothpast or any other mouth wash as it makes it worse and burns.

 
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Old 03-21-2005, 04:39 AM   #3
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Re: Sore Throat and Tongue Pain - Herxing?

Thanks for the info. Laurie. It is miserable I must say - the tongue just really hurts...it feels like I am one of those cartoon characters and my tongue was pulled real hard out of my mouth.

I looked up Sjorgren's syndrome and the only strange thing that doesn't seem to apply to me is that I am salivating a lot too which is the opposite of what they say - they claim it is a drying out of mouth and eyes. Although maybe it is my mouth drying out and that is why I am salivating.

This just stinks! I am so tired of all of this. Anyway thanks for the info.

 
Old 03-21-2005, 09:15 PM   #4
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Re: Sore Throat and Tongue Pain - Herxing?

I have that too this week! I thought I was getting a cancker soar on my tongue!!!!

 
Old 03-22-2005, 04:45 AM   #5
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Re: Sore Throat and Tongue Pain - Herxing?

How are your tongues today ladies???

 
Old 03-22-2005, 05:30 AM   #6
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Re: Sore Throat and Tongue Pain - Herxing?

Mine is a little better. I kind of forgot that I burned my mouth on Friday when I went out to lunch. It was a vegetarian restaurant and I was eating a spinach wrap that had been heated. I bit into the inside and OUCH. It rolled around my mouth under my tongue and on top.

I forgot about it and I think what is going on is that healing is different know. Very swollen and painful. Getting better though. I swished with Salt Water last night.

I was going through my medical records and getting them organized into a binder and saw that Dr. J's did test me for Sjouren's Syndrome and I came back negative of course that was in September so things could have changed. I am praying that is not what I am dealing with...I don't want to add any more to my plate.

Thanks for the info. Laurie and the Concern I hope you are having a great morning!

 
Old 03-22-2005, 05:40 AM   #7
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Re: Sore Throat and Tongue Pain - Herxing?

The only true test for Sjs is a lip biopsy. The rest is clinical for dry eye, mouth sores, dry mouth, somtimes neuropathy, etc. Where does your band 31 stand?

 
Old 03-22-2005, 05:45 AM   #8
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Re: Sore Throat and Tongue Pain - Herxing?

Band 31 was equivocal both in IgM and IgG antibodies...

 
Old 03-22-2005, 10:27 AM   #9
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Re: Sore Throat and Tongue Pain - Herxing?

Ladies ,
Weird that this conversdation happens this week. I woke up this mornin' with the right side of my tongue(back) feels like an ulcer on the back of the tongue/throat and attached to the gland in the throat/neck. I have this flair up every so ofter. I thought I had dealt witha situation last night but come to find out I just suppressed it . Guess I just buried it down. Gosh, I hate this!!
~P

 
Old 03-22-2005, 11:03 AM   #10
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Re: Sore Throat and Tongue Pain - Herxing?

That is weird that we are all having this problem the same week! Mine is still hurting like He** today.

I hope you all get better. I find the salt water rinses help.

 
Old 03-22-2005, 04:46 PM   #11
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Re: Sore Throat and Tongue Pain - Herxing?

I get the 'soar tongue' thing allllll the time.
Definetely helps to gargel with REALLY HOT salt water
bBird

 
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