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Old 06-19-2005, 05:04 AM   #1
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drug reactions and lyme

hi all,

I ve posted on the health boards several times trying to investigate my illness that i have had for six months. Im spending entire day today doing some research ruling out possible illness so i can take some information and questions to my doctor. I was lead to the posssibility of Lyme. and it seems from talking to people on this board that i am displaying several of the symptons.

Any way here are a few questions?

1. Is Lyme associated with bad drug reactions. I keep reacting to many medications. I particularly reacted to anti histamines when i was sick. Was given them cause they thought it was severe allergic reaction. But they made me worse. I felt sick blurry vision unsteady on my feet jaw swelling.
a similar experience happened when they tried me on steriods. also sleeping tablet zopiclone. Seems i have developed multiple drug sensitivities.

2. Is lyme associated with skin thickening?
Or Lymph node problems?
swellings in face area?

3. Is Lyme associated with hormones?


Any help would be appreciated

thank you guys

Zoe x

 
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Old 06-19-2005, 06:47 AM   #2
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Re: drug reactions and lyme

Hi zoe,

I know how frustrating it is to figure out what is wrong with you especially if the doctors don't have a clue.

I don't know about anybody else but when I was just having what I now consider a very small problem my GP gave me some valtrex thinking this might be some kind of virus. Either the lyme didn't like it or I had a bad reaction to it and all but lost the vision in my left eye.

This scared the heck out of me and I went to the opthamologist who sent me back to the neuro (who by the way kept telling me I had MS) and they put me on massive doses of IV steroids. It just about did me in. Unlike most people who get lots of energy, I couldn't lift my head of my pillow and couldn't eat anything. Most people are starving on steroids and gain weight. It's almost as though my body wants to do the opposite of what it should in response to most drugs. I don't necessarily know this is a lyme symptom but how I reacted.

I wouldn't say my skin is thickening but I have developed lots of skin problems such as mole and wart looking things on it. They are crusty and some you can flake off pretty much and others I hope go away with treatment.

The hormone thing is pretty prevalent with every female on this site who has lyme. I never had hormone problems and never took hormone replacement (I'm 57) but I know there is a definite hormone imbalance now.

The lymph glands also seem to be discussed on here all the time.

I don't know if you have lyme but if you suspect it then I strongly urge you to seek out a knowledgeable doctor and have the appropriate blood tests done and have them sent to Igenex in California. Ticker, our resident guru will soon be on to answer any other questions you have and point you in the right direction. She/he has all the patience in the world and has dealt with this disease personally.

You may not have lyme but this early in the game you have a better chance of beating it than the rest of us have had because we had to search for
years for answers and are now paying the price for our doctor's ineptness.

Keep us posted and ask any questions you may have. We have a very strong "brain pool" here and someone will know the answers.

betterdaysforme

 
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Old 06-19-2005, 07:07 AM   #3
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Re: drug reactions and lyme

Hi Zoe. People who have Lyme should not take steroids because they can make symptoms worse. I don't know if Lyme can cause bad reactions to medicines, but since it can affect so many things it seems possible.

The co-infection Bartonella, also know as cat-scratch fever, can cause swollen lymph nodes.

Lyme can affect hormones. Many women experience a worsening of symptoms before and during their periods. Sometimes women who have Lyme and are pregnant feel better during pregnancy, but feel much worse after delivery. Some people who have Lyme develop thyroid disorders.

Keep searching, you will find out what is wrong.

 
Old 06-19-2005, 02:09 PM   #4
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Re: drug reactions and lyme

Hi Zoe -

I love your name! I always have said if I have a daughter her name will be Zoe

Just wanted to weigh in here....as far as drug reactions...yes, since getting lyme and coinfections I have had awful Herxheimer reactions when on antibiotics...basically the bacteria die and they cause awful reactions for me which included parathesis (feeling like my arm wasn't connected to my body, disassociation feelings, severe vertigo to the point I couldn't drive, room spinning when laying down, difficulty breathing, hand swelling as I sit there watching it swell - it would happen so fast, chest pain...the list goes on and on.

I am taking the same antibiotic I did initially when the herxheimers were so bad but now it only affects me this way a few days a month and much less severe.

I also had food sensitivities and chemical sensitivities. This seems to be getting much better with treatment.

No skin thickening...for me it seems to be getting thinner and cutting more easily.

Hormones are definitely screwed up for me and after looking over my labs and talking with someone who knows a lot about thyroid I believe my thyroid is all a mess too. Lyme loves thyroids and the glands that produce hormones.

I am sorry you are sick. I would consider testing through IgeneX Labs in Palo Alto for Lyme and coinfections...I am one of many that had two negative tests through conventional labs to go on to IgeneX and be extremely positive for all antibodies to lyme and 2 coinfections.

Keep us posted Zoe and don't give up. You will figure it out.

All My Best,
NCgirl88

 
Old 06-19-2005, 05:42 PM   #5
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Re: drug reactions and lyme

Quote:
I don't know about anybody else but when I was just having what I now consider a very small problem my GP gave me some valtrex thinking this might be some kind of virus. Either the lyme didn't like it or I had a bad reaction to it and all but lost the vision in my left eye.
If I'm not mistaken, valtrex can surpress the immune system. I wonder if that could have caused this.

 
Old 06-19-2005, 10:04 PM   #6
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Re: drug reactions and lyme

Dear Tinuviel,

I never read that about the valtrex and immune system but after 18 months of absolutly no changes my GP gave me the valtrex thinking it was a virus maybe. When the eye problem occurred I tried to tell the opthamologist, neuro, and MS specialist that I thought I had a reaction to the valtrex because I had taken just 2 pills when the eye went blurry. Every single one of them blew me off and insisted it indeed was MS because of the eye . I later found an ad for valtrex while seeing my homeopathic that said on rare occasions it can cause vision problems. I now carry that ad in my wallet and when I beat lyme I will let them know what they did to me and send them a copy of it. Unfortunately by that time they had doused me with 1,000 mg steroids a day for 4 days. This is what let the lyme really get hold of me I am convinced. What had been a slight left side problem has taken over my entire body since the steroids. I am convinced that is why I am having such a hard time kicking this. I just have to keep on plugging away until I do but don't trust many traditionals doctors at this point.
betterdaysforme

Last edited by Betterdaysforme; 06-19-2005 at 10:05 PM.

 
Old 06-20-2005, 12:16 AM   #7
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Re: drug reactions and lyme

Quote:
Originally Posted by Betterdaysforme
Dear Tinuviel,

I never read that about the valtrex and immune system but after 18 months of absolutly no changes my GP gave me the valtrex thinking it was a virus maybe. When the eye problem occurred I tried to tell the opthamologist, neuro, and MS specialist that I thought I had a reaction to the valtrex because I had taken just 2 pills when the eye went blurry. Every single one of them blew me off and insisted it indeed was MS because of the eye . I later found an ad for valtrex while seeing my homeopathic that said on rare occasions it can cause vision problems. I now carry that ad in my wallet and when I beat lyme I will let them know what they did to me and send them a copy of it. Unfortunately by that time they had doused me with 1,000 mg steroids a day for 4 days. This is what let the lyme really get hold of me I am convinced. What had been a slight left side problem has taken over my entire body since the steroids. I am convinced that is why I am having such a hard time kicking this. I just have to keep on plugging away until I do but don't trust many traditionals doctors at this point.
betterdaysforme
betterdays,

Thank you for posting this info. I'm really sorry to hear about the Lyme/steroid connection causing you so many problems.

You mention "left side problem", can you describe what you mean by that? Whatever illness I have also occurs only on the left side most of the time (numbness, tingling, loss of feeling). Lungs and heart are also affected (some sort of inflammation).

My Rheumatologist prescribed Prednisone 100 mg to start out with (I have not filled it yet), and then each week after cut the value by 1/2 until down to 10 mg daily. I've been taking Ibuprofen instead, seems to help somewhat (800 mg every 8 hours). I am going to refuse the Prednisone.

MS was also mentioned to me, but has not been tested for yet. No way could it be MS. My vision is very screwy, left eye is blind, right eye fades for no reason (right eye always returns to 20 though)

This week I have MRI and EMG testing, have you had those? Anything turn up? Autoimmune testing?

1,000 mg of any steroid seems like an awfully large dose.

-Ryan

 
Old 06-20-2005, 07:00 AM   #8
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Re: drug reactions and lyme

Dear Ryan,

Everything that was wrong with me was on the left side in the beginning. Tingling on the left side of my head and neck. Then a tringling stiff sensation in my left hand and some weakness in my left leg. Also some tingling in my left foot near my toes only. I honestly think if I had gone the natural over the traditional route I wouldn't be where I am today which is barely functioning. I think my immune system just needed a little jump start and I would have been okay. Never having been sick though I didn't even know about the difference.

I was really freaking out because my mother had died of a stroke at 49 but it was probably because of the stress of my father being killed fighting a fire 10 years before. Once my younger sister and I were gone she died within a year. So sad.

I have had every test under the sun and if you key in on my name under this thread it will pull up options. Go to my threads posted and search out the first one I sent. I warn you it is quite long but I wanted to detail everything up to that point that I had ben tested for. I don't want to bore everybody here because most of them have already read it. It's totally amazing to me how clueless the doctors were and how they tried to push the MS theory on me. When I go back and look at my tests and results I can't fathom how they were coming up with this conclusion.

I beg you to not take any steroids until you have found out for sure that this is not lyme. As I said, what I thought at the time was just horrible was nothing compared to what I have gone through post steroids. Yes, 1,000mg IV steroids is just incomprehensible to me now that I am more medically literate. Unfortunately I came from a generation that believed the doctors knew what they were doing. Now I know a lot of them have "funnel vision" and maybe all the specialists in the world is not what we need but a doctor who has a little knowledge about everything and doesn't always treat with the most drastic meds. Just an opinion I have developed over the last few years. It may be too late for me to recover to a normal place but you can keep that from happening. It is stated on many websites lyme patients can't take steroids. If only lyme had even entered there heads. If you want to know what has happened post steroids let me know and I will try to tell you in a condensed version.

Keep me posted on your progress and what you end up doing.

BDFM

Last edited by Betterdaysforme; 06-20-2005 at 07:04 AM.

 
Old 06-20-2005, 07:12 AM   #9
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zorm HB User
Re: drug reactions and lyme

Hi guys,

thanks so much for your reply.

i have to ask my doc for the Lyme test on WEds really its the only wat to know for sure.

thank you for your help im sorry to hear what a hard time you are all having from it too.

i hope i get some answers from my Doc one way or another and will keep you posted as to how its all going.

funny it seems people on here sure know or have more concern than the doctors.

Thanks my good wishes are with you

zoe x

 
Old 06-20-2005, 01:25 PM   #10
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Re: drug reactions and lyme

Dear zoe,

Make sure your doctor sends the bloodwork to Igenex. Mine did not but was curious enough to question when just 1 band came back positive so although I didn't have a definitive positive at least he felt I should be treated. Unfortunately the rocephin IV that was working made my liver enzymes go from 40 to 737 so we had to stop that. Doxy did nothing and I got tired of filling my body with meds so I am now on cat's claw and colloidal silver and hope it will help. Time will tell.

Insist on your rights as a patient (something a lot of us never did and are now suffering for it) because you are paying the bills. Good luck and keep us posted. By the way I saw your response in another thread to the left side problem. I know that more people than the 4 of us have talked about this problem in the past on this site. Hopefully they've recovered.

BDFM

 
Old 06-20-2005, 03:16 PM   #11
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Re: drug reactions and lyme

betterdayesforme,

i don't think i will be able to send my stuff to that lab as i live in the uk.

but im definately going to get some answers.

Thank you for your help

zoe x

 
Old 06-20-2005, 09:50 PM   #12
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Re: drug reactions and lyme

Quote:
Originally Posted by zoemarie1
betterdayesforme,

i don't think i will be able to send my stuff to that lab as i live in the uk.

but im definately going to get some answers.

Thank you for your help

zoe x

Zoe, Good Luck. You're in my prayers.

 
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