discouraged...Herx again after 1 day of Doxy - Lyme Disease Message Board

Roman77 · 06-26-2005, 05:47 PM

This will be a short one today. First time i'm sitting up in bed all day...other than to take 2 baths, and down my pills/benadryl/tylenol.

As i've posted this week it has been a very long path with my doxy...my bod can't handle it at all. I was supposed to start my pulse therapy (100mg doxy 2xweek, trying to add flagyl in 3 weeks if no herx). Well yesterday AM took my doxy....by evening I was heading into herxville...speech, comprehenison, motor skills, vision all went downhill trememdously, as well as pain/HA/tremors/neurpoathy/itchiness increased x 100 it seems. Also left arm went numb/fingers locked up. This AM everything so much worse...couldn't and still havent gotten out of bed! Broke out like the "lobster" 2 times requiring two baths...slept when I could...and cried when I couldnt'. I am sooo discouraged that I cannot be even on my meds for one day without feeling like I am going to die, the pain is just incredible.

Have to stop typin now pain is too much. Keep me in your prayers...hope my LLMD will have ideas when I call tomorrow...think he will say we're going to start iv traetment.

sleeperwoken · 06-26-2005, 05:51 PM

Sorry for what you're going through. I have been in that place, it's very painful indeed. I'll pray for you right now, okay? Hope you get some relief. Don't be afraid to ask the doc for painkillers.

sleeperwoken (Ephesians 5:14)

Roman77 · 06-26-2005, 08:43 PM

Thx sleeper ~ means so much to know that I have prayers being sent up for me and positive vibes circulating....been sleeping most of the evening and feel just a tid bit stronger....can now hold my head up without using pillows and don't feel like I have an anchor weighing down each arm.

Still don't think will be strong enough to go across town wiht my mom to have my food stamps/assistance interview tomorrow. But thankfully they will let my mom go in my plcae if I can't...just need to write a letter. So hopefully will be able to hold a pen tomorrow to wirte if I'm not able to go.

And about the pain killers....tonight I wish I had some, however my LLMD Dr. C is really against them adn I mostly agree -except on days like these. With the way my brain is, body handles things these days...narcotics would seem to worsen things and have in the past. He believes that using them regularly for the pain just causes more probs and masks herxs and symptoms that need to be dealt with...if that makes sense. But mabye I wll bring it up to him again tomorrow and see what he says.

cjFTWORTH · 06-27-2005, 07:52 AM

I am praying for you... can't imagine what you are going through.

Psalm 145: 9 The LORD is good to all;
he has compassion on all he has made.

and yet I can imagine you might feel that he has forgotten you... tell him! But if so, try to remember his promise and get to the place where you can rest in it...

My husband just walked in and i told him what you are dealing with... he just said, 'man'...

you think about the road so many walk just to get an accurate diagnosis but then to know that there is medicine that can help and your body just won't accept it?! you've got to be in a tough place... all said to say, empathy is here for you... you've got a strong support group here on the boards that can relate and are PULLING FOR YOU. cj

Roman77 · 06-27-2005, 09:04 AM

thx cj...I needed that great reminder, what a wonderful passage to be put in front of me at this time. God, prayer, and the good book (when I can read it!) have been a mainstay in this fight....added to it my fam and friends....now this wonderful board...if I could get the medicine to cooperate than I would have an unstoppable arsenal of support.

Until the meds come on line, I'll hang on like a monkey!