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Old 07-05-2005, 03:17 AM   #1
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mish-el HB User
How reliable is the Lyme Titers Blood Test ???

can anyone tell me how reliable the Lyme Titers Blood test is and if it would be useful to detect late-stage lyme disease?????

Many thanks

Last edited by mish-el; 07-05-2005 at 03:22 AM.

 
Old 07-05-2005, 04:06 AM   #2
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Re: How reliable is the Lyme Titers Blood Test ???

Don't know the exact percentage--but HORRIBLY unreliable. The worst of them all, and will not pick up late stage disease. Read on, on this site and others why this is and you will understand more. The key to this disease is first understanding it yourself, and then finding a LLMD who understands it.

 
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Old 07-05-2005, 08:58 AM   #3
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Kali M HB User
Re: How reliable is the Lyme Titers Blood Test ???

Mish-el,

Ticker may come by and give you more info, but I asked a similar question on 6-26 around 10pm (you'll find it on about the third page of this board - just find it by date and time).

Denise Lang (in "Coping with Lyme Disease") says some researchers believe Lyme may be difficult to detect (through current tests) in folks with chronic disease because our immune systems have been so pummeled that we're not producing the antibodies the test is designed to find (which identifies us then as having the disease). According to Lang, other things like antiinflammatory drugs (NSAIDS, COX-2 inhibitors) or prednisone can inhibit antibody production as well. Also, the spirochete can HIDE and we can have Lyme but our bodies not produce antibodies because our bodies don't know it's there. (Slimy little suckers!)

To date, my understanding (which is still very limited) is that most general practitioners (and many specialists) will start testing with the ELISA because this is what the CDC has recommended. I think I read somewhere that the ELISA is only 66% reliable for finding Lyme Dz. (Don't quote me on that number - but whatever the correct figure is, it is definitely LOW). If the ELISA comes back positive, the CDC then recommends the Western Blot Test. But again, low reliability, especially if docs only test for the "CDC-specific" bands (only 3 bands on the IgM blot and 10 bands on the IgG blot out of 99 possible bands). Ticker put a really good list of the Western Blot bands on one of the strings that's at the top of this board (I think the "Lyme disease info" string). Look at it!

There are other tests, in addition to the ELISA & Western Blot, but again, my understanding is that unless folks have seen a Lyme specialist (LLDS) or a Lyme-sympathetic doc, it's unlikely you're going to be tested using the other diagnostics. IGeneX labs in Palo Alto, CA is one that's widely mentioned here on the boards as being meticulous about testing for Lyme.

Have you been tested? Who tested you and what tests did he/she use?

I've had the question about chronic lyme showing up on these tests as well. I'm currently waiting to be seen by a LLDS. Good luck!

BTW - I wanted to add that I'm quoting Lang's book a lot only because it's the only one I've really been reading to date. (And it's very good!). I've got others I've bought and that I will read after Lang's, and others that are highly recommended through folks on this board.

Kali
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Last edited by Kali M; 07-05-2005 at 08:59 AM.

 
Old 07-05-2005, 07:36 PM   #4
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Re: How reliable is the Lyme Titers Blood Test ???

Hi mish-el, welcome to the board!

No Lyme test is completely reliable. From what I understand the ELISA, also called the titer, is the least realiable and the one most doctors run first.

When Lyme disease is a possibility, the most important thing you can do is see a Lyme knowledgable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can transmit several co-infections including Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It is important to be tested by a Lyme reputable lab such as IgeneX in Palo Alto, Ca.

If you tell me where you are located, I will tell you of the closest knowledgable doctor to you that I know of.

Hang in there okay?

 
Old 07-06-2005, 04:05 PM   #5
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yogadiet HB User
Re: How reliable is the Lyme Titers Blood Test ???

Can anybody please reccommend an MD in Nassau county Long Island or New York City.
Thanks

 
Old 07-06-2005, 04:17 PM   #6
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gottagetbetter HB User
Re: How reliable is the Lyme Titers Blood Test ???

Yogadiet ,

Welcome to the board!! You might want to post a new thread so that when Ticker comes along he/she will see this and respond.

~P

 
Old 07-08-2005, 05:15 PM   #7
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Re: How reliable is the Lyme Titers Blood Test ???

Hi yogadiet, welcome to the board!

Do you think you have Lyme? It is very important to see a knowledgable doctor and also be tested for the co-infections that ticks may also transmit--Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma.

I know of three Lyme doctors in NY: in Armonk, Hyde Park, and East Hampton. Would you like one of their names?

 
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