How to pulse - Lyme Disease Message Board

jennsen · 07-12-2005, 07:02 PM

Hello Everyone,

Has anyone pulsed their antibiotics 3 day's on-2 day's off? I'm currently on my second round of Flagyl w/Biaxin. The first round of Flagyl really knocked me down (major vertigo/pain, etc...) I'm trying to avoid that if at all possible because my daughter made the All Star team and I would like to attend her games.

I put in a call to my Dr. office with this question and sshe hasn't called me back and I'll be surprized if she does.

Is anyone on a pulsing schedule? If so, what is it and what antibiotics are you pulsing?

BTW-I'm coming up on 13 months of oral with some improvement but not enough yet.

Thank you!

jennsen · 07-15-2005, 07:14 PM

Slow down! I can't handle all the quick replies!

I have an appointment Monday with my LLMD and will ask her about pulsing. I think it may be helpful to avoid really bad herx's and I was curious if anyone on here is on a pulsing schedule, Anyone?

Betterdaysforme · 07-15-2005, 09:43 PM

Hey jennsen,

Don't you just hate it when you are waiting for a reply? The only person I know on the boards who is pulsing their drugs is ekim. Maybe he hasn't checked in for a few days but I am sure he will respond when he does.

I have never taken flagyl but understand it is one of the hardest meds to take because it does just what you are complaining about. It has really knocked Romans for a loop too.

I hope the doctor allows you to do this and it won't screw up your getting better. If you don't hear from ekim soon post a thread to him personally.
Have a great weekend.
BDFM

6Blues · 07-16-2005, 12:07 AM

Hi Jennsen.

The only thing I know about pulsing is that its purpose is to allign the level of abx in your body with the spirochete lifecycle (I think it's ~ 2 weeks but my brain fog might not recall correctly).

Hopefully your pulsing will kill more of the little buggers than the usual daily doses.

Let us know how it goes.

What abx were you on for 13 months? How would you categorize your improvement (neuro, joint, fatigue, etc)?

Peace and health to you.

Betterdaysforme · 07-16-2005, 06:28 AM

Dear 6blues,

I think this sounds great and would love to know more about it. Even Amber said she is instructed to take 1 day off per 12 but I am not sure why. I just know with my luck the spirochettes and meds would miss each other and I would be in cycle hell!

I wonder how you time it? If nothing else I think it would give your body a rest. I also wonder why ekim changes meds each time he pulses. When you do this does that mean the meds you are on become obsolete because of stoppage if it is for weeks at a time? Just trying to understand.
BDFM