Is it just on your exposed skin(ie legs and arms)? If so it could be a side-effect of the minocycline which causes extreme sensitivity to the sun. I got burned just driving in my car and walking to the mailbox. It has been my experience that even the highest spf sunscreen is useless. Hope this horrible symptom subsides!
Dallasmommy, it is pretty much a constant burning sensation in my arms, back, shoulders and legs. I have had it ever since I have been ill, 2 years. During abx it has gotten worse. When I get in the sun it actually feels better. It is kinda like I feel so cold that I burn, sounds silly. Right now it is 75 in my house and I am freezing under the surface yet burning on the surface. I have spoke to people with fibro who feel the same.
I know exactly what you are talking about. I tried to write a thread one time and figured everybody would think I was nuts. I honestly couldn't tell if my legs mainly were so cold they were burning or if they actually were hot. And my hands were freezing. Ticker even suggested I see somebody about circulation but I am sure it was the lyme. Maybe even that "thick" blood they talk about from the lyme.
This has pretty much subsided for me after months of abx and natural treatments such as cats claw. I really hadn't even thought about it for a while so I guess that is one thing I can cross off the list.
In Texas it is near 100 every day and our upstairs is pretty warm but when I have the twitching in my legs I like to sleep up there so I don't keep my husband awake. We have turned the temp in the house down and to me it is too cold downstairs and half the time I sit and watch tv with a throw over me. We even turned it back up last week just 2 degrees and then it felt too hot. You might try this and see if you have the same reaction. Like the rest of us I am sure you are running a low temp which is normal for lyme.
I agree with takemylife, I think the detox baths help a lot. I can just about tell when I need one. Like Romans I am wiped afterward but feel a little better the next day. Sometimes I am afraid to do them without my husband home for fear that I won't get out. I was just taking epsom salt/peroxide bath and having a lot of twitching and takemylife said to add baking soda too. I did this yesterday and it was so much more relaxing I thought I would fall asleep in the tub. Much better. Wasn't sure how much of it to put in so I added 1/2 cup to the normal mix. I did have a hard time getting out because I was so relaxed but that's okay. I know I need them. He said this would get better with time.
Hope you feel better when they do the picc-line. Keep us posted.
I developed the skin 'burning' sensation about a year into antibiotic treatment. When it got really bad I mentioned it to the nurse practitioner at my LLMDs office. She said that they see a lot of extreme skin burning and tingling with Ketek, which I was on at the time. I'm off Ketek right now, and it is less intense, though still present.
Anyway, according to this NP, it is associated w/ herxing, and some abx will aggravate it worse than others. Are you on Ketek or something in the same family?