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Old 09-10-2005, 08:35 AM   #16
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Re: I want to cry-bulls eye

CS,

I have to get another mammogram, too. I have those calcifcations and had a cyst drained. Now over a year later, I have an unusual sharp pain where the cyst was. I know they say a lump is supposed to be painless, but a lot of things are said which have exceptions. I always seem to be or have the exceptions. Plus there's a strong history of breast cancer. More reason to detox.

When the lymph node popped up from the lyme last year, it gave me a sharp pain in the neck. Last night my hips were hurting. Don't know if it's the weather or a new infection. My neck was stiff, but I took a flexerill before bed and slept until 11:00 (I normally get up by 7:00).

What do they mean by stiff neck with lyme. I was stiff back of the neck and upper back and I think it is from cleaning a room for a few hours yesterday, but I cleaned the boys room all day a few weeks ago and didn't have any trouble. I don't want to read too much into these aches and pains, but when you pull a tick out of yourself and have gone through all this before, it's just not something you want to take a chance with.

My doc appt. is tomorrow-two weeks after the bite.

 
Old 09-10-2005, 09:59 AM   #17
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Re: I want to cry-bulls eye

Hi Ciconner

I know it's hard to not read too much into the aches and pains - is this normal or not? I have a chronic stiff neck, and this is common in Lyme's. Range of motion is limited. Yoga doesn't even seem to free it up. 1/2 hour, easy stuff, before I go to bed although I wax and wane in my dedication to it. My neck crackles too. If I take my head and look from extreme left to right, very crackly. I figure this is one of the keet's base camps - I think the other base camp is my hips and lower back. From reading Buhner's book, he says they love viscous gel-like material, that which surrounds our joints. They love collagen. I'm a bit worried about permanent damage. I wonder if the joints can regenerate themselves? Hmmm.

When you see the doctor, just tell him all that you're feeling regardless of whether you think it's related or not. I've recognized many things I have which I didn't pay much attention to before, just from reading some of the common complaints people have.

Re the cysts, I didn't realize how painful this one area was until the doctor palpated it. Yeow. Being that they're cystic in nature anyone, it's none too comfortable to have my breasts palpated anyway, but this did hurt more. And the lymph node under the armpit is on the same side as the cysts. I did talk about this on the breast cancer site (only site near related) and someone recommended I take my films and my lymph node to a breast surgeon for a consult. Haven't done that yet.

 
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Old 09-10-2005, 07:24 PM   #18
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Re: I want to cry-bulls eye

Hi CS and everyone else,

I have to mention a resident of a nursing home I worked for over 20 years ago. It was in West Virginia. I was haunted by this condidtion. There was a bedridden woman who could do nothing but lay in bed. I mean she could not move at all. The story was that she just woke up one morning and her joints just locked up on her. I hear so many stories of people ending up in the hospital because of joint-related complications due to lyme, that I just look back and wonder.

Second, I didn't know MS was so common. I mean all these MS diagnoses aren't being questioned? Also fibromaleysia (sp)? and Chronic fatigue syndrome??

Third, I'm just glad I'm aware of what lyme disease is. If I hadn't come to this board, I might have missed my son's symptoms and wouldn't have had him tested, and would think I was completely cured just because the doctor claimed I'd be cured after 30 days of abx.

Even the nurse at the lyme specialist told me she thought lyme patients were full of it and would tell her husband there is nothing wrong with these people-until her son was diagnosed. Then she saw what damage lyme disease can do.

 
Old 09-12-2005, 04:29 PM   #19
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Re: I want to cry-bulls eye

So, I went to the GP and he gave me 10 days of doxy. Then he's going to give me a Western Blot in two weeks.

 
Old 09-12-2005, 06:20 PM   #20
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Re: I want to cry-bulls eye

Ciconner, ten days of Doxy is not long enough treatment. What dose are you taking? A bullseye rash is a definite sign of Lyme disease. The rash alone merits treatment.

I highly recommend that you get tested for the co-infections. Babesiosis can cause the sweats you describe. Swollen lymph nodes can be a symptom of Lyme and/or Bartonella.

Last edited by ticker; 09-12-2005 at 06:25 PM.

 
Old 09-13-2005, 08:18 AM   #21
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Re: I want to cry-bulls eye

Hi Ticker,

I was only given 100mg 2x per day. What I'm worried about is if I start taking the abx. now and am infected, what is the chance of it showing up on a Western Blot 2 weeks later. If I take a ride to the LLMD I was seeing a few months ago, I know I can get 30 days of doxy out of them.

 
Old 09-13-2005, 03:04 PM   #22
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Re: I want to cry-bulls eye

Hi Ciconner,

I am also confused about others taking Doxy (I took Doxy too) when a person is going to have a WB test done. Does the antibiotics mess up the antibodies? I guess Ticker knows.

I am taken with your story about the lady in the nursing home, poor woman! Yes, I have a couple of friends who were diagnosed with MS and found out later on they really had Lyme all along. Isn't that scary? As I said in one of my other posts, LD is so "under" treated.

Denise

 
Old 09-13-2005, 03:50 PM   #23
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Re: I want to cry-bulls eye

The woman who was diagnosed with MS was in her early 30's and TOTALLY bed ridden. She had children, too. Her husband remarried. MS from then on was a disease I was petrified of. I mean, chances are. MS is what she had, but then you consider if it was lyme, that would have been something that could've been treated. It's ironic that I actually thought of MS when I first started having involuntary muscle spasms and eye twitches.

The other woman who woke up dedridden freaked me out. I was 23 when I worked at this nursing home and I just couldn't believe that something like that could happen to someone and no one could help her and there was no medical explaination.

I remember the very first time I heard of a serious tick related illness (I don't recall it being called Lyme Disease). I was pretty young and heard the story on the news. But the story sounds like it wasn't reported correctly. It was about a boy who was admitted to the hospital because he became very ill (I don't recall symptoms reported). And by chance a nurse found a tick in his scalp and then he was miraculously cured. Sounds bizaar, but I recall this news story being reported this way. I remember it because I thought how lucky the boy was. I was in my early teens and lived on Long Island.

 
Old 09-14-2005, 02:58 AM   #24
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Re: I want to cry-bulls eye

Well, here's the situation. I couldn't sleep because I was getting shooting pains in my shoulders and hips all night. I didn't start taking doxy. My knees hurt. Not running related because I haven't run in 10 days or more. My neck is stiff, but that could be the herniated discs. It's just that hasn't bothered me this much in a while.

This is bearable, and I still don't know if I was re-infected. I'm just afraid of going thru the headaches, the fatigue and the brain fog. So now I'm 2-1/2 weeks from the time I was bitten, and I have to decide what to do.

I went to the GP to begin with because of convenience, but not too confident with the amt of abx I was prescribed and doing the bloodwork after. When my son's pediatrician prescribed medication, she told me not to start until after the bloodwork and she already had a script ready for us for 30 days. He ended up doing IV treatments, but thank goodness we knew.

 
Old 09-14-2005, 04:59 AM   #25
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Re: I want to cry-bulls eye

Hi ciconner. The bullseye rash is a definite sign of Lyme. The rash alone merits treatment, and a knowledgeable doctor knows this. I would not delay taking antibiotics.

Please get the proper treatment now. From what I understand, 200 mg of Doxy is not strong enough. I believe the recommended dose for Lyme is 300-600 mg daily. I hope you will go to the Lyme doctor. Getting the proper treatment early in the infection may reduce the chance of long-term complications. The longer the infection remains untreated or under-treated, the harder it will be to eradicate.

Keep us posted on how you are doing okay?

 
Old 09-14-2005, 07:17 AM   #26
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Re: I want to cry-bulls eye

Oh boy. I called the LLMD and the good thing is they agree that the minute a tick bites you can be infected. But they also think 10 days of doxy will do the trick. But, since I haven't started taking it, they are double-checking with the doc. So I guess if you know you were bitten by a tick, you need to take abx. immediately.

Also the place where I had that little "reaction" that I don't think looks like a rash is still a red 1/4 inch circle and you can barely make out a 2" diameter clearing and that is outlined with slightly darker irregular ring. It wouldn't show up in a photo and if I didn't know where I was bitten, I wouldn't know it was there. To make sure I wasn't nuts, I had my husband look at it and he could see. If you look too long, it gets lost in all the different irregularities of my skin color.

Truthfully, it was wishful thinking on my part that I would have bloodwork done and if it was negative, not take abx. at all. (I was told by the LLMD that I should have known better). I think I was avoiding taking anything because I'm looking forward to nausea and/or herxing. I have a total of 14 days worth of abx.

I know some of you did abx. for 10 days as soon as you had a bite and are still sick. I think that's also what I'm afraid of-still being sick and bloodwork coming up negative. But if I still have symptoms, I know I can still be treated by the LLMD. Do I sound like I'm starting to freak out, considering I underreacted to begin with?

 
Old 09-14-2005, 05:15 PM   #27
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Re: I want to cry-bulls eye

Hi ciconner. I cannot understand a Lyme doctor prescribing only ten days of Doxycycline. A bullseye rash is a definite sign of Lyme. It is my understanding that an infection caught within two weeks of the bite should be treated with a minimum of six weeks of the proper dose antibiotic. If symptoms are still present, futher treatment is warranted. If your infection is longer, longer treatment is need.

I hope you will take this seriously and get the treatment you need. Getting the proper treatment now, may reduce the chance of long-term complications.

 
Old 09-14-2005, 06:29 PM   #28
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Re: I want to cry-bulls eye

I was bitten while I was out of town and unfortunately what I did was looked up deer ticks on the internet to see if what I pulled was a deer tick. The site I looked at said if removed within 48 hours, you are not likely to be infected. First mistake. So I kept an eye on it and noticed a little reaction, which didn't look like much and then I called the doctor as soon as we got back and I expected to get 30 days of abx. I was surprised to get only 10 days worth, and I have 4 days left from last time. Now I have shoulder and hip pain, which is like the pain I had for about 5 or 6 years when I lived on LI, then it just went away. I never did go to a doctor about the joint pain because I just thought is was something that you lived with when you hit your 30's and I thought my physical activities were to blame. Stuff I did to stay healthy.

Treatments vary so much, I thought I was doing the right thing waiting to get bloodwork and a few symptoms (I figured I'd get 60 days of abx). You know, I just feel like the docs, even the LLMD I go to give you just enough to hide the symtoms and show a negative result. I usually respond pretty well to abx. The symptoms are not the same as last time. My heel was hurting this morning and my joints are more sore than last time. But no headache. That was the worst. I'm not fatigued either. I wonder how long it takes for the abx. to get rid of this joint pain.

When my neighbor was bitten, she must've had the Elisa. She said the numbers kept getting higher and she didn't start abx until the test was positive.

When I took my son to the pediatrician (after I pulled a tick from his neck), he was given an order for bloodwork and no abx. and I was told to look for symptoms. That was before anyone was ever diagnosed with lyme in my family and we knew nothing about lyme other than it was a tick borne disease and you never get rid of it.

I still have the tick and I am in enough pain that I think they'll give me at least 2mos. of abx. (they only give 30 days at a time, then I have to go back). I also started writing down the symptoms in date book. I have to try to convince them to give me more than 200mg per day. One doctor I asked about the dosage said she'd give me the same dosage because of my size. That doesn't really make sense. I don't think the bacteria care what size you are.

I just can't believe how quickly my joints are being affected. It's like this pain came out of nowhere. I started abx. today, 2 weeks and 2 days after I pulled the tick. I did make an appt. for Monday, so that's the good news. I just don't want to do this again, but I have to. Well, it's not like I have to have a PICC line, so I shouldn't complain too much.

 
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