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Old 02-06-2006, 04:12 AM   #1
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dealer1111 HB User
Doctors: Number one reason why Lyme patients get so sick!

Doctors are the reasons why so many of us here are as sick as we are.

Doctors just don't get. Don't want to get. And have thier heads buried so far up thier own %*&^* that they can't see they are distroying more people then they are helping. Thank God for LLMDs!

Almost everyone I've met has been misdiganosed, or mistreated one way or another.

Can't believe how quite this disease is, and at how it continues to run rapid with no one really screaming about it. Yes we are hearing about it, but in the same breath more and more people are being mistreated.

I blame many of the ill people on this site, as being so ill, because the doctors in the USA are dropping the ball...

Hope soon to hear some good news. Like they understand that with Lyme long term antibiotics are a good thing. Good luck to all. But as I read the posts here, the only clear thing is, doctors are fools when it comes to Lyme!

I saw over many years maybe over a hundered doctors before I was diagnosed. Remember now I had all the tell tail sysmptoms that point right to Lyme, yet no doctors could see it at all.

 
Old 02-06-2006, 04:52 AM   #2
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Re: Doctors: Number one reason why Lyme patients get so sick!

Hi Ekim,

I'm sorry you feel that way. I don't buy into the blame game, it's a waste of negative energy.

I feel that it's up to the ill people to make our voices heard as a big portion of this disease is political, especially the CDC. I believe it is our responsibility to write and call our congress people and tell our story.

Don't forget, there is a Lyme Bill sitting in Congress as I write this. Have you called your senators and local government people? I have.

Almost everyone I talk to, I educate them about Lyme Disease (not only in the USA, but Canada, Switzerland, Australia, the UK and more as I have international friends) as I feel the more people I can educate, the more word gets around. It's like playing the game "telephone".

Interesting, one of my friends in Switzerland asked me if I could help a friend of hers who has Lyme in Florida and we connected and I have helped her. This disease is my passion.

I know deep in my heart that one day soon Lyme will be BIG NEWS. But instead of sitting back and waiting for that day to happen, we have to help it along. I feel that is our responsibility to ourselves and to others.

As far as doctors "not" getting it, I think many of them do get it, but there's no money in it for them as you know that insurance companies don't pay them. I agree with you, thank God for the LLMD's who risk their licenses helping others.

Remember, these doctors also go by the CDC guidelines which is so outdated.

Denise

Last edited by deejavu; 02-06-2006 at 04:56 AM.

 
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Old 02-06-2006, 06:44 AM   #3
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Re: Doctors: Number one reason why Lyme patients get so sick!

I disagree with you.

Doctors in most cases don't get it, and nothing your going to say will change my mind. I've been to many doctors, and out of many years of doctors only one got!

I do write all the time. I am a member of my local Lyme Group, and I also spread the word about Lyme.

But it must hit the news and talk shows for there to be any impact at all. Other wise most people your speaking to will think you are nuts about Lyme.

Good luck, and I have my faith right where it belongs...

 
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Old 02-06-2006, 07:02 AM   #4
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Re: Doctors: Number one reason why Lyme patients get so sick!

Hi Ekim,

It's fine to disagree, that's what makes the world go around.

I also saw at least 100 doctors if not more during a course of 5 years before I was diagnosed. Actually, I diagnosed myself and had to get a doctor to believe me. So thanks to a nurse that I sought out who saw my spirochetes underneath a microscope and getting my blood sent to Igenex, I would still be out there seeking more doctors.

I will only say this: if doctors knew they were going to get paid by insurance companies, I believe there would be alot more LLMD's in this world. Believe me, they would get themselves educated real fast!

Money talks and most doctors are greedy in my opinion.

Denise

 
Old 02-06-2006, 07:49 AM   #5
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Pearlscale HB User
Re: Doctors: Number one reason why Lyme patients get so sick!

Ekim
I got a thank you card from Dr Jemsek this week. Thanking me for my letter of support. He mentioned the possiblility of an open hearing and said he would let me know if there was. That may be one way we can have our voices heard.

I agree that most drs have that know it all, you don't tell me nothing attitude. They do not want to treat lyme because of what the CDC says. They know the insurance will be a big problems.

I was reading a post of yours from about 2 yrs ago with the CDC. You and Tin were talking. You had contacted CDC and talked for an hour. Has anything good come out of that conversation. Has there been any changes to CDC views on lyme.

Prayers..........Marsha

 
Old 02-06-2006, 08:01 AM   #6
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dealer1111 HB User
Re: Doctors: Number one reason why Lyme patients get so sick!

I spoke with the CDC for an hour. They listened. Answered questions.

They read their information to me.

It is clear that they say, that the doctors write the info the CDC studies and passes it on.

Its the doctors, not the CDC that have to presure the CDC so things are seen different.

I would go to an open hearing for Jemsek.

 
Old 02-06-2006, 08:06 AM   #7
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Re: Doctors: Number one reason why Lyme patients get so sick!

Ekim
Maybe Helping Jemsek fight is our fight to. I'll let you know on the hearing you want. He did mention the first possible day in April............
Take care Ekim. Hows the wife? Prayers..............Marsha

 
Old 02-06-2006, 08:50 AM   #8
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Re: Doctors: Number one reason why Lyme patients get so sick!

Please ekim I feel your frustration, but let's stop with the negativity! I like this website over other lyme sites because people here are positive and trying to get better. That is personally what I think we all need is a positive attitude. The situation is what it is. I choose to believe that most Dr's go into medicine because they want to help people. The problem with lyme is that treatment invovles long term antibiotic use and long term antibiotic use does cause problems. There are now strains of antibiotic resistant bacteria that have the medical community very concerned. Every time you take antibiotics long term you run the risk of building resistance in yourself as well as those who share your home with you since they are being exposed to the supposed resistant bugs now as well. Also, there is the issues of resistance to antibiotics in the face of bioterrorism. So I don't think they are out to get lyme patients. It just is what it is. I think all these Dr's telling those of us with lyme or something "lyme like" that we don't have lyme deep down inside know that we do, but their hands are tied and they are afraid of losing their medical license. I agree that it is important to get the word out to legislature an lobbyists, so lets just focus on that aspect and not be negative.

Frango

P.S I am not a medical professional, but I did stay in a Holiday Inn Express last night.

 
Old 02-06-2006, 10:43 AM   #9
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Re: Doctors: Number one reason why Lyme patients get so sick!

Your missing what my point is. It is not the antibiotcs I am speaking about. Just to get a diagnoses is very hard, due to doctors and many don't believe there is a real Lyme problem.

It seems like everytime I here from someone new to this board they have been mistreated or misdiganoses this is all I am saying. This leaves many in a much worse shape then if a early diagnoses was found.

Sorry you see it as Negative I never did. What is negative to me is still the medical community is for the most part lost with Lyme. Can't get the same anwers twice from most doctors.

Have a nice day all.

 
Old 02-06-2006, 11:57 AM   #10
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Re: Doctors: Number one reason why Lyme patients get so sick!

the doctors are too blame for it....

 
Old 02-06-2006, 12:36 PM   #11
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Re: Doctors: Number one reason why Lyme patients get so sick!

The doctors, CDC and insurance companies all are to blame.
Ekim I understand what you are saying. When you live in a state that is not a hot spot, (per CDC as I do in NC) then doctors tend to want to say we don't have it here so it can't be lyme. They also rely to much on inaccurate blood test. They don't know all the facts and as my MD told me, He had enough to learn just to treat the regular stuff. He would leave lyme and the co infections to experts. And how many of those do we have. In NC one.
Prayers.....Marsha

 
Old 02-06-2006, 01:02 PM   #12
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dealer1111 HB User
Re: Doctors: Number one reason why Lyme patients get so sick!

You have hit it right on the head.

Example:

Every doctor for years that misdiagnosed me all did the same thing. I went in. Answered a couple quick questions. And they did test. All kinds of test and they stuck me everyway you could be stuck with everything.

And not one could figure out what was wrong. Nero, Allergy, This that, and all of the kings clowns, couldn't put 2 and 2 together.

The doctor that got it right and saved my life took ONE HOURE with me the first appointment. Didn't run in and out. Spoke to me, listened, and diagnosed me, and started treatment with no tests! AND HE WAS RIGHT!.

It was expensive, he told me he can't take insurance due to he would have to see at least 40 patients a day. He is from Europe, and likes to learn about his patients. And he told me he couldnít afford to take insurance and meet their criteria. He said he thought they were crazy, and could never see as many patients as they where asking, hence this is why he does not take it.

My doctor did do follow up blood work. I have come back negative and positive several different times. A doctor needs to be able to spend time with a patient, other wise he is just guessing quickly and jumping to false conclusions.

I think the biggest problem is that Doctors are so thick headed. They think they are Gods many of them, and then there are the ones that flex to the turns of life, the good doctors. But most are trained by the drug companies how to write a fast prescription, and hand you a pill. This is what best drives the life styles of all that are making money on it. For those at the bottom of the chain, it is clear there is corruption here. Especially if you are sick and stuck in the system.

 
Old 02-06-2006, 03:12 PM   #13
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agentbad HB User
Re: Doctors: Number one reason why Lyme patients get so sick!

what were your symptoms over that time frame? i too have seen tons of doctors and had test after test without any overall improvement.


Quote:
Originally Posted by ekim1111
Doctors are the reasons why so many of us here are as sick as we are.

Doctors just don't get. Don't want to get. And have thier heads buried so far up thier own %*&^* that they can't see they are distroying more people then they are helping. Thank God for LLMDs!

Almost everyone I've met has been misdiganosed, or mistreated one way or another.

Can't believe how quite this disease is, and at how it continues to run rapid with no one really screaming about it. Yes we are hearing about it, but in the same breath more and more people are being mistreated.

I blame many of the ill people on this site, as being so ill, because the doctors in the USA are dropping the ball...

Hope soon to hear some good news. Like they understand that with Lyme long term antibiotics are a good thing. Good luck to all. But as I read the posts here, the only clear thing is, doctors are fools when it comes to Lyme!

I saw over many years maybe over a hundered doctors before I was diagnosed. Remember now I had all the tell tail sysmptoms that point right to Lyme, yet no doctors could see it at all.

 
Old 02-07-2006, 01:00 AM   #14
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Re: Doctors: Number one reason why Lyme patients get so sick!

Hi guys,

I too want to believe that doctors go into the profession to help people but there are a number out there who are specialists and have tunnel vision. My neuro, opthamologist and MS specialist all told me that valtrex would not cause me to lose my vision. This was after taking 2 pills. I had not changed one bit in 18 months but nobody had the time to look it up or talk to a pharmaceutical rep. Instead I was loaded with IV steroids and my life has been downhill ever since. The doctor's nurse could have called if he didn't have the time and guess what, I found an article in an ad for valtrex that says this can happen on rare ocassions. That would be me. So you can imagine how angry I am that my life for the last 5 years has been taken away from me. I don't dwell on it but it is sad that there are some doctors willing to go the route and others who can't be bothered. As my husband says "It is the bottom line with some of them". I do focus on the positive because I know the negative gets me nowhere but I have learned a lot over the past 5 years and the best thing I have learned is that I am my own best advocate. Nothing goes in my body that I don't research now and it is a shame we all have to be that way.

Maureen

 
Old 02-15-2006, 04:26 PM   #15
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Exdancer HB User
Re: Doctors: Number one reason why Lyme patients get so sick!

I agree with you Ekim, I personally don't find it negative, I think a little outrage at how the Dr.s are mistreating/misdiagnosing us is a good thing! And I for one am outraged when I think of how many ppl re having there health and lives ruined becuse they are niave enough to believe what the doctors tell them!

Also can I get the info on of open hearing? I would really like to help Dr. J out as well.

 
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