This is my first time posting to the board. I have been here for months reading other Lymes posts and always thought I should take part instead of just reading.
I have had Lymes since August 2004, but was not diagnosed til April 2005. At first it was my fault, not knowing anything about Lymes. I got a small, nickel-sized red rash that was clear in the center that expanded til it was about the size of my fist. It did look like ringworm at first. After about 8 weeks, it began to fade and another rash began on one of the leading edges of the old rash. It, too, expanded to fist size. My family doctor was just sure I had lymes and started me on doxy and did the Elisa which came back negative. He kept me on doxy for 3 weeks to be safe, then that was it. I still had the rash and yet another one was beginning to start on the leading edge of the second one. In January, 2005, I went to a dermatologist who refused to consider Lymes and thought it was a fungus because he said that if it was Lymes, the rash wouldn't have stayed that long and kept repeating. He did 3 different fungus tests, 1 of which was a biopsy and they all came back negative. He wanted to put me on some meds that could potentially damage my liver so I decided against it since I didn't have fungus anyway. I wasn't sure what it was, but I was sure it wasn't fungus.
Finally, a friend of ours that had had Lymes recommended my doctor who is a definite LLMD and a fantastic one at that. That was when I started getting my answers. After a ton of tests last March, I was diagnosed with Lymes as well as the co-infection Borreliosis and Mycoplasma. My doc jumped right on it and started me on Mepron/Zithromax combo as well as a multitude of supplements. I had to do a major change in diet as well, with no sugar or yeast products. I used to have a Coke in my hand from sunrise til the time I went to bed and I thought that alone would kill me. I did that combo til August of 2005, then was changed to Ceftin. I took Ceftin til about Thanksgiving, then changed to Tindamax/Zithromax combo. That went well for the first couple of months, then had some kind of reaction (not a herx) and had to change to Doxy. I will take that for 2 months, then go with the Clindamyacin/Quinine combo. By the way, when I went to my LLMD last week, she said I could now have small amounts of sugar and yeast products in moderation. I went right out and got a cheeseburger, fries and a coke. And guess what...the Coke tasted "funny" and I haven't tried another one since (which was 10 days ago). I have done really well on all the treatments I have been on so far, but I'm a bit nervous about starting the Clinda/Quinine since I had problems on the cyst-buster Tindamax.
Can anyone tell me what I might expect with this combo or is it a fairly easy one to tolerate?
By the way, thanks to everyone for all their posts I've read. It is a comfort to know that there are so many of us out there that are demanding answers to this disease. If we keep "banding" together, we'll all do so much better with our health and our healthcare. Sorry this was so long, but once I got the courage up to speak, the dam broke!