I agree with Jules. If nothing else you should see if you can set up a phone consult. I know that doesn't provide him with your data but maybe somewhere down the road you can sit face to face. As Jules said they are dealing with sick people and know it. Maybe once a week you can hunt down one piece of info until you have it all and if you need to give it to one of your kids to put in a safe place so it will all be together.
I also agree with Kim about the meds. I swear I am 10x worse since starting meds for lyme. I did the 9 weeks of rocephin and then never did anything else for a year and now have been on them for 5 months. When will it end?
Kim, I know what you mean about the walls. I am sure I would be able to walk better if my kind of vertigo problems weren't so bad. I know when my feet feel nailed to the floor it isn't the vertigo but I also know if it wasn't there I would walk much quicker and with more assurance. The walker I have sometimes I think slows me down because it doesn't have wheels so I have to move it every couple of steps. I do feel safer with it though. Maybe a cane would be better. Hang in there and someday you and I will leave our husbands in the dust when we go for a walk.
PS By the way Kim I didn't respond to your AHCC thread but meant to. I posted about this quite some time ago because I received a brochure in the mail about it. If you know how to maybe you can key in AHCC and see what I said. I can't remember.
I did get Tinuviel's Host defense from New Chapter though. Haven't seen anything yet.