Welcome to the site.
Sorry you feel the need to be here.
First off, please do not feel guilty about amount or length of posts. We have all been there and done that. My first post was so long I had to cut some of it down because you are only allowed 10,000 characters per thread.
I am the resident novelist I guess.
I don't ever remember being bitten by a tick not did I have the rash. I had 2 tests run for lyme through Quest and both came back negative (CDC standards) with just band 25 showng reactive. My PCP questioned why even one showed reactive and sent me to an ID doctor.
He didn't think lyme but something made him put me on an IV of rocephin which had to be pulled 9 weeks later because of liver enzymes. I had been told for 4 years I had MS but with no real proof so never started medicine for it. Thank God.
The IV helped so we knew we were on the right track. Unfortunately during the MS diagnosis the neuros put me on 1,000 mg steroids/day for 4 days and that really fouled up my immune system and let the lyme gain a real hold on my system. Until the steroids nothing had changed for over 18 months. Post steroids it has been downhill ever since. I won't bore you and the others with my story but maybe if you are interested you can punch in my board name (or anybody else's for that matter) and you can pull up my/our story.
My ID doctor was not lyme literate and probably didn't know about the co-infections although I am grateful he at least tried to help. I now see Dr. Crist in Missouri and travel 8 hours one way every 4 months to see him. I hope he will be able to "cure me".
Enough about me. I wanted to ask if you have been going thru any kind of stress? This is a key for bringing lyme to the forefront. I was hiking in Maine 2 months before symptoms showed but who knows maybe it really had been years since I had been bitten and my immune system was handling it until my husband lost his job and a close friend died. I will never know.
Search your mind for any little thing that might have set this off. The sooner you are treated the better the results. Right now I am just fighting to get back to walking because of the length of time it took to discover what my problems were. This disease is curable but it puts up one heck of a fight to survive.
I did discover months after joining this site that sinus infections can show up at the beginning of this and when I looked back I did have a sinus infection when we returned from Maine. Please come here frequently and contribute, ask questions, or just lurk. You will find many helpful people and lots of info.
Good luck with your PCP. If he/she is good maybe you can get your bloodwork done thru Igenex and then he/she can work thru an LLMD. I only have to see Dr. Crist every 4 months but can do a phone consult too. The main thing is to be diagnosed with or without lyme thru a knowledgeable lab and doctor. Since the test is flawed you need both. Good luck and keep us posted.