Granted, I"m a newbie but I"m steam rollin' through sites on the web and come up with this scenario: antiobitoics don't cure lyme and the stuff can creep up again and load up in a body. So.....isn't there any other answer??
I'm not all that bad off even though my Q-RIBb is the highest possible reading so I feel like my immunity machine might be able to knock out the 'borrelia burdorferi' if I can juice it up. ANd how do I know I don't have some old type of lyme my ancestors picked up out in the German black forest and that's just in me.
Am I totally off here or can someone send me down a path? Thanks, CAdreamin' (and antibiotic phobic)
Hi CAdreamin, welcome to the board. I know what you mean, it does seem like antibiotics aren't always the answer. Although, I know quite a few people who have taken antibiotics and gotten better, there are those others like myself who take them and can't seem to get rid of the lyme.
There are quite a few people here who don't take abx and they are on supplements and herbs. A few are doing really well, maybe they can give you some ideas. You say you're "not that bad off", what are your symptoms? How did you know to get a test? Did you go to a lyme doctor for the RiBb test?
Welcome again, I know you may not get all the answers here because we are also searching for answers, but you will definitely get lots of support and encouragement.
I think the answer is to kill and rid the body of as much lyme and co's as possible and get your immune system to pick up the battle and let it handle the remaining few. At least that is my understand from my Dr. If we can do that, maybe we can beat this horrid disease. With years of battling lyme and the co's my system had given up the battle. I just had some immune testing done to see if it is starting to fight again.
The only thing we really know about lyme is that we still don't really understand lyme at all.
Sleeperwoken, thank you. I hope others will chime in with what they are doing.
I had ovarian failure and went from alternative doc to doc to find out why. A routine lyme test was run and then the doc searched for another to qualify. Antibiotics were recommended and lots of them. I don't know if my doc was expert in this but also gave me the name of a specialist who had a super long waiting list. I canceled my appt. after about a month; I disbelieved the diagnosis partly; I couldn't see the point of letting antibiotics hijack my immune system as it seemed to be mounting something of a fight. I was diagnosed with thick blood too.
I take an enzyme for this. I wonder if it actually made my bowen test go up?
back to my story...
Ultimately I had some symptoms crop up (crack in neck/ pain--largely resolved now; signifcant burning in feet that subsided adn left me with severe pain upon walking, rubber band snap sensations, extreme pain to wear any kind of heal and pain now when I'm under emotional stress or on concrete for any time--even walking across a parking lot's tender) After two podiatrists without answers and x-rays by my local phsicial and doing nothing but suffering for months, I really got down. One podiatrist told me it was nueromas and I should give it time/ so I gave it time. A chiro helped me a lot with trigger point therapy. I'm still not okay; I feel like something attached me and now I'm dealing with the aftermath. If I didn't work from home I"d probably have qualified for disability as I went nowhere/ couldn't do it. But I hoped/hope it was these neruomas or nerve tumors that might go away.
Also, I experienced fatigue but with ovarian failure this is common as estrogen is nill. This isn't an issue if you're, say, over 45ish but the younger you are and the more estrogen receptors, the greater the problem.
All this time that voice in the back of my mind was whispering .....Remember...that....lyme....thing... .test?
I went to my local family phsyician, got the Bowen stuff off the internet and they obliged. Sorry for such a long story but I'm hoping by putting it all out there I can gain more insights.
Thank you Marsha also for this insight. That makes sense. I don't have any co-infections according to this bowen test and the western blot I had a couple years back; that probably explains why I'm actually not as systemicallys sick as I might be.
My suggestion would be to see a Lyme doctor for an evaluation and then decide what to do from there. Were you ever tested for the co-infections (Babesiosis, Ehrlichiosis HME & HGE, Bartonella, and Mycoplasma) from IgeneX in Palo Alto, CA?
Lyme can cause neuropathy and thickening of the blood.
Lyme disease is caused from a bacteria, so I do not think going untreated is a good idea. Your system may fight it off for some time until it becomes additionaly weakened from an illness, accident, divorce etc. The stronger the infection becomes, the more difficult it is to eradicate.
If you post where you are located, we can tell you of the closest Lyme doctors to you that we know of.
Thank you for this. I'm in Kansas City and somebody earlier recommended a doctor outside my area. I did a little research (phone calling/ googling) and a couple names for kansas city showed up--Dr. Carol Ryser and Dr. Brewer. But I don't know anything for solid certain here.
Thanks for any names/ ideas.
I did also see this Jernigan guy some foks here in the thread are chatting bout is in Witchita which is ony a handful of hours, drive time, away. Is he good?
hi cadramin! i can relate to you, i was an antibiotic phobic all my life!! even when i had minor infections, i wouldnt take it, o ake it one day and then stop, because it always upset my stomach and i am not in to chemicals........ so when i discover lyme.. i freaked out. i never though i could take abx for soo long!! i was soo scare......not only about abx, about any pill. as a child when i had headaches, i wouldnt take anything, my dad use to ask me why suffering if a simple pill can help me...afger taking so many and different medications since july 2005.....believe me...... doxy is a piece of cake, i have gone throug 7 abx in a month and a half, tons of anti parasite medications for 2 months... anti inflamatories, etc etc........ so being in doxy for 3 months, at this point is like my breakfast........only dosis of 300 mg makes my stomach upset... thats why i am taking 200 and slowly i have been improving.....200 mg doesnt give me any side effect.....in the meantime, i had to stop a coulple of tiomes and take another antibiotic for something else... and really, no side efects...a year ago, if i had some kind of infecction there was no way i would take abx......you mention abx cause cancer, but smoking too, polution, xrays, soo many things!! my friends boy, he is 5, is dying of cancer.. whats the reason? who knows! before starting my doxy.. i told my self that i really anted to get better so i should take it, if that wouldnt work, after trying different abx, i will natural, but thats a choice, most of the peolple go natural after abx..so i think you should make a decission hereand be determinat with what would be best for you
CAdreamin, I don't believe that anything you take can skew the results of the bowen because it is literally a count of the lyme in your blood. If it's there, then they will see it and give you the ratio, it's right in their view, no mystery at all. I like the bowen, I think it's a good test, but it does not tell you if you have bartonella.
The foot pain you describe sounds like you may possibly have bartonella, I have it and I have the same foot pain. It's very bad in the morning. I wear comfy shoes all the time, no heels. I would use Igenex to test for bartonella before doing anything else.
I work from home a lot, I forward my phone from my office, I am self-employed. It works out pretty well for me except on the days when I can't think at all. It's a shame we can't get disability though, I could have used it two years ago when I really couldn't work one bit. This year is better.
I have only one ovary left, but it has been doing okay. In the beginning I had a lot of cysts and pain in my remaining ovary, but now that I am taking hormones to supplement, I am doing better. I am on yasmin for the estrogen, and I take pregnenolone and a lot of DHEA. My DHEA is at the level of a 90 year old when I don't supplement. I also take thyroid and adrenal support.
Have you lost any hair? That has been a problem for me. Have you gotten Dr. Jernigan's book yet? Based on what you have said so far, I think you will like his way of thinking and his insight on these things.
Last edited by sleeperwoken; 05-15-2006 at 05:13 AM.
Thank you Brid for sharing this. Yes, the last time I had an antibiotic was in third grade and I'm really afraid of taking some for months. I know in my heart of hearts I just can't do it.
Sleeperwoken, I'm going to call my local physician and see about testing for Bartonella. He's quite helpful though can't help; he calls me the 'complicated one.'
But the clinic has an in-house lab and theywill prettymuch order anything I want.
My feet have improved tremendously and I can walk without pain unless on pavement. I guess I"m pretty lucky.
My fatigue is abating as well so maybe my body's pulling out of this one? If the next one is worse, I think it will defeat me.
I ordered the Jernigan book. I also ordered a book by a Stephen Buhner or somehting. But I don't think I can take Samento.
Doesn't it contradict or isn't it contraindcative with HRT?
Hi CAdreamin. Dr. Charles Crist in Springfield, MO comes highly recommended. There are a couple of members here who see him.
Dr. Jernigan wrote the book "Beating Lyme Disease: Using Alternative Medicine and God-Designed Living." I believe there are a few members here using his protocols. Hopefully they will see your post and can give you more information.