Re: Lyme antibiotics?
Hi steerpike, welcome to the board!
How long have you had Lyme disease? Biaxin and Plaquenil are often prescribed. It is my understanding that Plaquenil is prescribed with Biaxin because it enables the Biaxin to work more effectively.
What doses of each are you on? Lyme needs much more aggressive treatment than many infections. It is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Often, infectious disease doctors are not the best to see. That is not to say the one you are seeing is not knowledgeable.
Besides Lyme, ticks can transmit several co-infections including Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected, and it may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you been tested for these?
Be aware of the Jarisch-Herxheimer Reaction (herx). Often, when people who have Lyme take antibiotics, their symptoms become worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel sicker. It can be very scary when it happens, but it is a good sign the antibiotics are working. Although it can vary individually, many people experience this at the beginning of treatment and every three to four weeks. It is a good idea to document your symptoms daily. One way to do this is to list the three main symptoms you have each day and a numerical rating of their severity, from 1-10. Over time when you review this, you can see when your herxes occur and how you are responding to the meds.
It is also important to learn as much as possible. I recommend reading "Everything You Need To Know About Lyme Disease (2nd edition)" by Karen Vanderhoof-Forschner, and Dr. Burrascano's treatment guidelines. He is one of the top Lyme doctors in the country, and many doctors follow his protocols.
If you need a doctor recommendation for your area, let us know.