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Old 07-20-2006, 06:30 PM   #1
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Join Date: Jun 2004
Location: Newberry S.C.
Posts: 247
wmjsease HB User
flagyl info

I'm supposed to start flagyl along with my ketek and amoxicillan. I'm also taking a medicine called depakote for headaches, and artery spasms. I'm kind of scared to start the flagyl. Is it as bad as I hear it is? Just wondering. My llmd says she's interested to see how it does for the week that I take it. I have to take it twice a day. Let me know what to expect. The other two antibiotics don't really bother me any. I'm having awful headaches, lightheadedness, and eye pain to the point where I always feel like passing out, but I don't. All of my bands came back negative, except for a few questionable, so I'm not sure whether to still try treatment. My llmd says possible lyme. My family doctor is convinced that I have ms, and wants me to see another neurologist, to have the ms testing. What do you think? Any info is appreciated. Also, if it's lyme and neurological, is there a better treatment like iv therapy to the brain or something? Just wondering.

Old 07-21-2006, 05:50 PM   #2
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Join Date: Jan 2005
Location: NJ
Posts: 1,945
6Blues HB User6Blues HB User6Blues HB User
Re: flagyl info

Hi wmjsease.

Hard to tell what to do sometimes, isn't it?

I have no experience at all but I have heard that flagyl can be hard on the disease - so good luck with your decision. When I have doubts, I usually trust my LLMD.

I have tried abx that have helped others but turned out to do nothing for me at all. I have tried other abx that others don't tolerate - and its working great.

Its a tough disease to treat and recover from.

A person can test negative and still have Lyme. Was your Western Blot done at Igenex?

Did your headaches and eye pain and lightheadedness get worse after you began taking abx?

It might not hurt to take the MS tests, just to put your mind at ease and maybe even rule out - or get definite diagnosis of - MS.

Sorry I have no answers. Hang in there.

Peace and health to you,

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Old 07-21-2006, 07:06 PM   #3
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Join Date: Jun 2004
Location: Newberry S.C.
Posts: 247
wmjsease HB User
Re: flagyl info

Thanks. Yes my western blot was done a Igenex. Six of my bands came back questionable. The rest negative. They eye pain, lightheadedness, and headaches along with my eyes twitching, not being able to focus them, and legs twitching and going numb have been going on for almost 6 years now. I think I will start the flagyl. I just hope that I finally get some kind of definate diagnosis just so I'll know what I'm fighting. I am seeing my llmd soon, and I'm going to talk to her about other options and her opinion about the neuro. Again, thanks.

Old 07-21-2006, 07:10 PM   #4
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Location: NJ
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Re: flagyl info

Good luck.

And be sure to tell us what the LLMD says. We share a lot of experience here. Good luck with the flagyl. It doesn't hit everyone hard so I'm sure you'll be Ok.

I can relate to not having a diagnosis. Thats the worst feeling. It gets better!

Old 07-21-2006, 09:11 PM   #5
Join Date: Feb 2006
Location: CO
Posts: 94
lymiesarah HB User
Re: flagyl info

i have been on flagyl for several months now... on two weeks and off for four weeks... twice a day. the side effects that i notice are that i get extremely nauseous and my temperature drops dangerously low sometimes... the lowest was 93.5. i now know what it feels like to have my temp go that low so i can stop it before it gets down too much... i cant think normally and i start crying uncontrollably for no reason... i feel really weird and confused... weird things happen with low temps, but even with all that i still take the flagyl.

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