I have to share something funny going on in my neck of the woods. I just had surgery on my foot and leg a couple of weeks ago. I told my surgeon about the Lyme diagnoses and during my surgery he discussed my Lyme case with the operating room staff. One nurse knew nothing about Lyme disease! My surgeon could not beleive she hadn't learned about Lyme disease in nursing school. Everytime I go in for a follow up this surgeon is so curious as to the protocol I am following. I saw him yesterday and he told me he was talking to an infectious disease doctor in my area about me and the medications I am on. This doctor is interested in following my case as well. They both find me "interesting".
I then get a call today from a good friend of mine. Her husband is a PA at the local air force base. He wants to know my protocol, who I am seeing etc. He has a patient who he beleives has Lyme Disease. He said he wouldn't know to look for this if it wasn't for me. He has requested all of my blood work results so he can follow me and learn about Lyme Disease. My best friend tells me that God is using me to educate the people/doctors in my area. I think it's kind of neat!
Oh yeah, I called my dermatologist' office yesterday to inquire about the best sunscreen to use while on the doxy. I have a history of melanoma and I have a very bad burn so I am a little freaked out. Anyway, when the nurse found out I was on such a high dose of doxy she left a message for the doctor to call me. When he spoke with me today I expected to just have him tell me the sunscree to use and get off the phone....I should have known better!
He kept me on the phone inquiring about the Lyme, how I found out, asking about my stroke, how I found the doctor I am seeing, about my dosages etc, etc. He told me he is just facinated to learn about this disease. I almost feel like a freak show.
If I can make one doctor aware of Lyme disease then this all will have been worth the struggles I and many others face on a daily basis. Anyone want to come to Ohio and be on display??!!