It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Lyme Disease Message Board


Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 07-25-2006, 06:17 PM   #1
Senior Member
Join Date: Jun 2004
Location: Newberry S.C.
Posts: 247
wmjsease HB User

Just wanted to update you all. As of now I'm going off of my medicines for lyme. My llmd doesn't think that's what it is now. We are not sure what it is at this point. I'm having a ct of the chest done, mri of the c spine, and more bloodwork. The bloodwork is for some hormones like cortisol. I will keep reading your posts on here, and some times responding. This is kind of like family now, and I hate to leave it. Then again, if nothing pans out with these tests and the neurologist that I'm being sent to, I may go back on the meds eventually. We'll just have to wait and see. Hang strong all of you that have lymes, and for all of you that hasn't been diagnosed. I'll be thinking of you all. Thanks

Sponsors Lightbulb
Old 07-25-2006, 07:05 PM   #2
Senior Veteran
Join Date: Jan 2002
Posts: 5,813
ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
Re: update

Hi wmjsease. While I am glad your treatment is ending, are you still having symptoms? If so, what type of symptoms are you having? Why does the doctor think it is not Lyme? How long have you been treated?

It is always good to check out all possibilities. Have you had a complete thyroid panel done including the Free T3, Free T4, and thyroid antibody tests? I recommend that anyone who has Lyme have their thyroid checked, some people who have Lyme have a thyroid disorder.

Do keep us posted on how you are doing okay? Good luck!

Old 07-26-2006, 06:39 AM   #3
Senior Member
Join Date: Jun 2004
Location: Newberry S.C.
Posts: 247
wmjsease HB User
Re: update

Hey Ticker. They llmd doesn't think it's lyme since I'm having mostly neurological symptoms. My joints do not hurt, I'm not really tired, and all of that stuff. My main symptoms are extreme lightheadedness, headaches, neck pain, and some tingling and numbness in my left side. That includes the jaw, neck, side of my face, arm and leg. I have had the thyroid panel done, just last week, and I had my electrolytes, cbc, and lipids checked also. I'm on thyroid meds right now, because my thyroid was out of whack about 1 1/2 years ago. Since then, I've been on 100mg of Synthroid, and now my levels are good. Also, my blood work came back negative on my bands for the western blot, except for a few questionable. Therefore I'm not the typical lyme patient that they normally see. However, if all of the testing and neurologist doesn't pan out, I will return to the meds and be treated for it again. I'm having my bloodwork and ct scan of the chest tomorrow, and my mri of the cspine done Friday. I'll update you on them when I know something. Also, I go to the neuro August 11, and will let you know then what he says. Thanks for the info, and for caring so much about everyone. My family doesn't understand much about my illness, and to be able to talk to someone else who is ill is a blessing in a way. Thank you.

Old 07-26-2006, 09:08 PM   #4
Senior Veteran
Join Date: Aug 2005
Location: North Carolina
Posts: 1,247
Pearlscale HB User
Re: update

What about co-infections. Were you tested.

Old 07-27-2006, 03:30 AM   #5
Senior Member
Join Date: Jun 2004
Location: Newberry S.C.
Posts: 247
wmjsease HB User
Re: update

no my llmd did not want to test me for coinfections. She said that my symptoms did not suggest any coinfections. I could have done it but financially, I'm so strapped now, I just couldn't do it. I owe so much money to so many doctors, that they are turning it in against my credit now due to me not being able to pay them all. I tried to pay each one a little, like 25 or 30 each month, but some of them won't take that. My llmd is really thorough, and is trying to find the root of the problem, but just really has her doubts about lyme right now. If these tests don't show anything, I may try to get tested for them then. Right now, our local hospital has a 6 month program for low income that helps me get my ct scans, mris and stuff like that payed for so I'm pushing all of them right now just to make sure. But, it's a small hospital-3floors- and it doesn't have a lab dept. equipped to test for coinfections as well as igenex does, so I'm not going to get it done through them. I'll keep you informed. Thanks

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Pterygium *Update* pingsrgone Eye & Vision 13 05-31-2011 03:52 PM
hormones and diet, my story...update #5 idealist Acne 5 10-22-2010 03:15 AM
Update on surgery...Horrible PM nurse Brosiah Pain Management 7 08-20-2009 01:44 PM
Update and meds change..... one2wonder Thyroid Disorders 3 05-18-2009 07:43 AM
My experience (no actual dx right now) thoughts?? Stormangel28 Fibromyalgia 6 08-25-2006 09:34 AM
DSAK update friendofD Pregnancy 113 03-12-2006 09:37 PM
Twins...c'mon already...update! update! Brenda1231 Addiction & Recovery 39 12-13-2004 05:57 AM
On My 4th IUI - Need Encouragement Please ang7182 Infertility 7 09-29-2004 07:04 AM
Update Mart7 Addiction & Recovery 1 04-27-2004 11:20 AM
Oralsex, negative std results, and no answers yet JimmyDeanToo HIV Prevention 10 12-13-2003 09:51 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 10:49 AM.

Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2016 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!