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Old 07-27-2006, 09:25 AM   #1
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mirandamom HB User
Tests for Lyme

Would someone please explain to me if there is a test or tests to be done after one has been on antibiotics for 6 weeks to see if the Lyme spirochetes have all been erradicated or whether the disease is in the dormant stage? My daughter, age 9, was on 6 weeks of Ceftin about 8 months ago. She hasn't had any recurring symptoms (lyme arthritis, headaches, difficulty speaking/writing/dyslexia, poor coordination, loss of memory) since her treatment except she gets a sore throat now and again for no apparent reason, but we would like to test to make sure she's well and not just in remission. Is there any such test? She had the lyme titer test done initially when finally properly diagnosed (after one year of misdiagnosis as JRA). What does the Western blot test test for? She has not been tested for any co-infections because I didn't even know about that until I started here. I need more information about the different kinds of Lyme tests and whether she should be tested again. Also, which doctor would you recommend us contacting for these tests? Someone mentioned a pediatrics specialist in NJ. When I call their office, I'd like to be prepared to ask about these various tests. I really need to be informed.

Thanks!

 
Old 07-27-2006, 02:54 PM   #2
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Re: Tests for Lyme

Hi mirandamom.

I think it would be good to have your daughter evaluated to make sure the infection is eradicated. The best Lyme pediatrician in the country is Dr. Charles Ray Jones in New Haven, CT. I highly recommend calling his office.

Realize though that no Lyme test is completely reliable and results can vary by lab. It is my understanding the the ELISA or titer is the least reliable and the one most doctors run first. The Western Blot lists a series of numerical bands with a + - or IND after each one. Even though the CDC requires a large number of bands to show for it to be positive, many people do not have this many. Lyme doctors often focus on which bands are present--some are specific for Lyme. It is important to be tested by a Lyme lab such as IgeneX which uses more sensitive testing and lists more bands on the Western Blot.

I recommend reading "Everything You Need To Know About Lyme Disease (second edition)" by Karen Vanderhoof-Forschner, and Dr. Burrascano's treatment guidelines. He is one of the top Lyme doctors in the country, and many doctors follow his protocols. Both of these sources discuss co-infections, testing, and treatment.

Keep us posted on how things are going okay?

 
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