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Old 07-27-2006, 03:45 PM   #1
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Lyme again?

I was diagnosed with lyme disease about 5 years ago. I lost a lot of weight then that i have since been unable to gain back (5'6 and 105lbs) For the last 8 months or so i have been having sever pain in my hip whenever i walk distances to the point its unbearable (a few city blocks or between classes at college), in addition to my elbow and knee hurting at times (nothing compares to my hip though). I am so tiered i have trouble getting out of bed to write this although i can make myself go through the day. And im so depressed all the time i could cry (not sure if this is related to the disease). Ive had bloodwork done tues am waiting for the results. I am worried my doctor will prescribe me the same medicine (doxycycline) as last time. Last time i was only on the treatment for 10 days and didnt finish the cycle because i felt so sick (the doctor said this was ok). They say that it still shows up in your blood for a while,even after the antibiotics. Is this true? Unfortantly i have to go back to school with a busy schedule, i cant afford to feel as sick as i did with antibiotics last time. Is there treatment options? How do they figure out what stage the disease is? Im worried that the disease was never properly cured the first as im reading here the life cycle is about a month to 6 weeks. What do i do if they reccommend another 10day dose, is there any way to verify that the disease is gone? Just to throw this in there, i didnt get the rash the first time i was diagnosed, and havent ever seen one.

I was reading some more posts when a symptom someone mention rang a bell. When i speak i tend to, not stutter, but rearrange words, and knowing what i want to say, but something else comes out, and just sounding akward. Its difficult to explain, and now that i think of it i dont remember doing before i had lyme. Is this also possibly attributed to lyme?

Last edited by andreacw04; 07-27-2006 at 04:12 PM.

 
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Old 07-27-2006, 04:04 PM   #2
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Re: Lyme again?

Hi Andrea, Sorry Ou Are Not Feeling Well... You Took Doxy For 10 Days??i Guess 10 Days Of Doxy Doesnt Kill Lyme Baceria.. Llmd Says 6 Weeks Within One Month Of The Bite..i Suggest You Go To A Lyme Literate If It Was 5 Years Ago, You Probably Need Different Treatment Now... I Take Doxy, Sometimes Gives Me Stomach Upset And I Take Atural 300 At Night And It Works, But I Sugest You See A Lyme Literate Doctor, Good Luck!

 
Old 07-27-2006, 04:16 PM   #3
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Re: Lyme again?

Andrea
Welcome to the lyme boards. I'm so sorry you're having such a hard time.

How were you diagnosed with Lyme before. Blood Test, Clincal?

I was diagnosed 19 yrs ago, had all the symptoms (had blood test done which later came back positive) started on doxy. I was on it a few days and ended up at ER. All my symptoms had gotten worse and I had broken out in a rash. The ER DR said I was having a reaction to doxy. He took me off. A week later was back to see my PCP and was back on meds for 10 days. Most drs just don't understand lyme and use outdated protocols.

I know now that was not long enough and I was also infected with Babesia, Mycoplasma, Bartonella (the ones we know about)

My advice to you is find a LLMD. It is good that you have already sent blood work. But most labs are not accurate. Igenex is the best. Lyme is a clincal diagnose. Let us know what you find out. Were you also tested for the Co-infections? Your thinking and speaking problems can definitely be lyme related.

Are you familiar with Herxs. Detoxing.

I have been in treatment since last fall and can say I'm beginning to see improvement.

You are a strong person. Going to school with all the pain has to be difficult. But that strength will see you though.

I will keep you in my prayers.
Marsha

Last edited by Pearlscale; 07-27-2006 at 04:20 PM.

 
Old 07-27-2006, 04:31 PM   #4
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Re: Lyme again?

I really know nothing about the tests. I was 14 at the time. I just went to my peditrican, as ive done this time. I have no idea what half the words you are saying are, but they dont sound pretty....heh. Are they other bacteria? Is there anyway to be sure of lyme so i dont have to feel like a hypochondriac? I just wish there was a definitive sign besides the rash (which i never had).

Last edited by andreacw04; 07-27-2006 at 04:34 PM.

 
Old 07-27-2006, 05:12 PM   #5
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Re: Lyme again?

Hi Andrea, welcome to the board!

I am sorry you have been so sick. As was stated, ten days of treatment is never long enough for Lyme disease, and it sounds like you did not even take it for ten days. You were not treated long enough initially. Although a bullseye rash is a definite sign of Lyme, only about 50% of people who have Lyme ever get a rash.

Below is a Lyme disease symptom list. You can have any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

Are you aware of the Jarisch-Herxheimer Reaction (herx)? Often, when people who have Lyme take antibiotics, their symptoms become worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel sicker. It can be very scary when it happens, but it is a good sign the antibiotics are working. This may have been why you felt bad on the Doxy.

It is very important to see a knowledgeable doctor. No test is completely reliable, and results can vary by lab. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can transmit several co-infections including Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected, and it may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. If you post where you are located, we can tell you of the closest doctors we know of.

Hang in there okay? With proper treatment you can get better.

 
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