Re: Question re: children/lyme/tests. HELP!
Hi Wendy, welcome to the board!
I am sorry you and your son are sick. It is good you know the signs so he can get the treatment he needs. He has a positive test and symtoms, he needs to be treated. I love it when someone has a positive test and the doctor says it is a false positive, but when it is negative it is definitely negative!
Regarding the Western Blot, the CDC requires a large number of bands to show for it to be considered positive yet many people who have Lyme do not have this many bands show. Lyme doctors often focus on which bands show, some are specific for Lyme. It is important to be tested by a Lyme reputable lab such as IgeneX in Palo Alto, CA. They have more sensitive tests and list more bands on the Western Blot.
Besides Lyme, ticks can transmit several co-infections including Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected, and it may affect treatment choice and progress.
As was posted, Dr. Charles Ray Jones is the best Lyme pediatrician in the country. He is located in New Haven, CT. I hope you can get an appointment with him soon. Keep us posted okay?
Hang in there. Good help is available.